Which doctor???

Posted by susan62 @susan62, Jun 23, 2020

It’s Susan.
Haven’t been on for awhile, but doing okay. Always read everyone’s posts however. I was diagnosed with PD two years ago and was given a neurologist at the Rochester Mayo for a second opinion. I really like him, but I am beginning to wonder if he is the right neurologist to see since I have found out his specialty(can’t remember what though), is NOT PD. Not even listed as an area of interest for him. I see there are a number of other neurologists at the Mayo who are PD specialists. When I saw him last December I asked him about other PD meds(just curious what he would say since the Sinemet was working well for the most part). I have read about and heard from other PD patients about a number of other drugs. He said that the other drugs were based on Carbidopa Levodopa. Is this true? I would appreciate everyone’s feedback.

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Hi @susan62, good to hear from you again. Here is some information about Parkinson's care at Mayo Clinic https://www.mayoclinic.org/diseases-conditions/parkinsons-disease/care-at-mayo-clinic/mac-20376068
As the article mentions "You can trust Mayo specialists to collaborate and offer you the best possible outcomes, safety and service." Mayo physicians work as teams. The neurologist you are seeing benefits from the team's collective knowledge. However, I can understand your concern. Should you wish to clarify your neurologist's specialty, you can call the neurology department or contact the Office of Patient Experience https://www.mayoclinic.org/about-mayo-clinic/patient-experience

Regarding you other question about carbidopa and levodopa, it is the combination used to treat Parkinson's disease and is sold under various brand names including Parcopa, Rytary and Sinemet. Here's more detailed information from the Parkinson's Foundation
Fellow members like @hopeful33250 @sadiecora @johnjames @trouble4343 @ggopher @sallyk @jdb and others will have first-hand knowledge to share about specialists and medications.

Susan, remind me, what medications are you taking? Dosage? How are you doing?

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