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johnwes5819
@johnwes5819

Posts: 5
Joined: Dec 12, 2018

I'm getting worse and I need help

Posted by @johnwes5819, Sun, Jan 6 3:39pm

I've been trying to figure this out for a while. It's always marked up as anxiety. Doesn't add up to me.

So I have these episodes and it takes a toll on my mental and physical health.

A few nights ago, I was on the computer and started to feel a headache. No biggie, I took some ibuprofen. That headache turned into a migraine and I started to feel very nauseous. I went to sleep since it was already 10pm. I woke up to urinate and when I layed back down I felt weird. I started shaking and sweating, then before I know it I'm just slimey and shaking. Checked my blood pressure and it was 141 over 95. I was freezing but sweating. I checked my oral temperature and it was 95.5 degrees. 10 minutes later my oral temperature was 93.8. This went on for about 25 minutes. So i called the ambulance and when they arrived they didn't check me out or anything. Basically they told me it was anxiety and that oral thermometers are garbage and not accurate. That's fine to be biased towards oral thermometers but how can I feel ok and they read 98 degrees and then when these shaking episodes happen they read 95 degrees or under? After it subsided, which was about an hour later, I slept for 10 hours and then for the past 2 days I feel like I was hit by a truck. Completely sore. This might sound like the flu to some, but this happens regularly without any congestion, or cold related issues. It makes me feel depressed and anxious but it's only after these harsh episodes that beat me up. Also when the episode happened, I urinated a lot that day and my stool felt burning. Normal stools but very acidic. Any help would be appreciated. Thanks.

REPLY

Hello John @johnwes5819, From all of the conditions you described in the first discussion you created you certainly have a lot going on. It sounds like you've seen a lot of different doctors. I’m not sure if it is an option for you but if it is, the Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:

Mayo Clinic Contact Information: https://www.mayoclinic.org/appointments

I have no medical training or background but am wondering if what you mentioned in your first discussion that you have mild COPD and Parenchymal Liver Disease may have something to do with your symptoms. Have your doctors mentioned anything about the Parenchymal liver disease?

@johnbishop Hey thanks for replying. Well I had an ultrasound done which said parenchymal liver disease. However I saw a gastro/liver doc and he said not to worry about it. So… That's where I'm at with that. Not really sure where to go from here. I can't afford to go to the Mayo Clinic or I would have already gone.

@johnwes5819 sounds like your nights and following days are awful. Must be difficult. Early on, when I was first diagnosed with Clippers disease, I also had anxiety attacks. They would manifest as heart attacks. Scary! I also called an ambulance a d they too me to the ER. Nothing, no heart attack. I did get a workup from a cardiologist and he said my heart was great. I’ve had 1 or 2 since. Maybe go back to the GI doctors and have them do lots of blood work for your liver, explain all the symptoms you’re having and just start over. I always tell people to keep a written record of when, what they were doing, exactly what happened, etc. so you have some good info when you see the doc. Hope this helps

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