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What questions would you ask your Dr about stage 4 COPD?

Posted by lesleys56 @lesleys56, Jan 12, 2025

I've asked my Dr questions about prognosis and he seems reluctant to answer questions. I get the feeling it's because he doesn't want me to worry but instead, stay positive. How can I stay positive if my questions aren't answered? That only makes me get into my head.

What questions would you ask your Dr?

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snohomishco | @snohomishco | Mar 10 11:12am
In reply to @kdny "More tips on handling emphysema are appreciated! I have found that nasal navage, even just with..." + (show)
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More tips on handling emphysema are appreciated! I have found that nasal navage, even just with water, helps my sinuses stay clear, which was what contributed to my hospital stay several years ago. I also take 400 mg guafinesin as needed at bedtime, it seems to help. Keeping the mucus thinned out and expectorating helps. I also attend pulmonary rehab three days a week and exercise at home the other days. An inexpensive walking treadmill is only about $100 and is handy to have when weather is not great for walking outdoors. I have severe emphysema and also severe pulmonary hypertension, so I'm doing all I can to stay as well as possible. Using your oxygen, masks if around crowds, and just being aware of how you are feeling can help you to manage day to day. Try to eat healthy and get enough water/fluids. There are several good books you can read about dealing with COPD also. Good luck and God Bless!! P.S. Having good doctors helps a LOT!!

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@kdny Also be aware when walking outside of air quality. I have a free app on my phone from the EPA (environmental protection agency) . I DO NOT walk outside if the air quality is above 50. Above 50 is moderate, but for those of us with breathing problems it can bring on severe breathing issues.

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kdny | @kdny | Mar 11 8:03am
In reply to @snohomishco "@kdny Also be aware when walking outside of air quality. I have a free app on..." + (show)
Profile picture for snohomishco @snohomishco

@kdny Also be aware when walking outside of air quality. I have a free app on my phone from the EPA (environmental protection agency) . I DO NOT walk outside if the air quality is above 50. Above 50 is moderate, but for those of us with breathing problems it can bring on severe breathing issues.

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@snohomishco Thanks for the reminder! I also have found I sometimes get reactions from various substances in the air or that I breathe in, like dirt mold or cosmetics/skin products etc. We don't always realize the impact of all we breathe in, right? Take care!

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