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What links are most important to share with newly diagnosed person?
I just had a call from a friend of a friend who was recently diagnosed with MAC. She is 80 years old, has had lung cancer and a part of her lung removed. She has a dry cough, and was diagnosed via a bronchoscopy. Her doctor is recommending watch and wait, but did not say anything about airway clearance, nor did he give her much information. I told her abut this group and will send her a link. I'll also send a link to Dr. McShane's video on airway clearance and NTM.org. What other info or links might be most helpful?
Thanks so much.
Anna
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HugInterested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
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@annagh One of the first places I send member is here:
https://connect.mayoclinic.org/discussion/resources-for-the-abcs-on-bronchiectasis-and-mac-ntm/
And then I encourage them to ask a question to "break the ice" - it usually opens a dialog. As she is in the "wait and watch" stage she may be interested in the discussion about managing MAC without antibiotics:
https://connect.mayoclinic.org/discussion/treating-mac-without-the-big-three/
People there have great suggestions about how they are living with the infection.