What helps prevent recurrence of endometrial cancer?

Posted by pangasinan143 @pangasinan143, May 28 12:26pm

I want to know more about endometrial cancer
* post treatment
* prevention of recurrence

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

cookercooker | @cookercooker | 2 days ago

In reply to @jc100 "@cookercooker I would ask for internal examinations. I have one each time at my follow up..." + (show)

@jc100 Yes, I plan to. I had tried to get an appointment with a gynecologist back home (my treating oncologist is in Kelowna and I'm in Victoria), but two out of two the gynes refused to see me.

cookercooker | @cookercooker | 2 days ago

In reply to @naturegirl5 "@cookercooker My NP performs an internal exam at every cancer surveillance appointment. I've been NED for..." + (show)

@naturegirl5
Yes, I will. Thank you!

jc100 | @jc100 | 1 day ago

In reply to @cookercooker "@jc100 Yes, I plan to. I had tried to get an appointment with a gynecologist back..." + (show)

@cookercooker
Typically, it is the treating oncology/cancer team does the routine follow up. Initially, I was followed up every three months, now every six months. CT scan, blood tests, and internal exam are included in the follow ups. My cancer team is in town. My oncology surgeon was 4 hours away, and I see him once a year for an internal exam also.

cookercooker | @cookercooker | 1 day ago

In reply to @jc100 "@cookercooker Typically, it is the treating oncology/cancer team does the routine follow up. Initially, I was..." + (show)

@jc100 Sounds like you're in good hands. I'll have to lean into my oncologist, it seems. Thank you for sharing.

jc100 | @jc100 | 1 day ago

In reply to @cookercooker "@jc100 Sounds like you're in good hands. I'll have to lean into my oncologist, it seems...." + (show)

@cookercooker
I hope everything works out for you.

ffr | @ffr | 1 day ago

No internal exam after endometrial cancer?!!!
The vaginal cuff is a common area for recurrence and to not have that checked is not standard of care. Definitely insist upon it or consider switching your medical care.

cookercooker | @cookercooker | 21 hours ago

In reply to @ffr "No internal exam after endometrial cancer?!!! The vaginal cuff is a common area for recurrence and..." + (show)

@ffr Hmmm. And I'm on a clinical trial. thank you pointing this out to me.

ffr | @ffr | 19 hours ago

I was also in a clinical trial, and
I would think that the trial guidelines would require specific surveillance measures, including the internal exam. It’s not easy, but questioning your oncologist and insisting upon the pelvic exam seems necessary, for your piece of mind more than anything.