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what happens when your lower back is in pain continually? I have stiff
I have stiff Person syndrome. i've had it for twenty years. I have igiv infusions. they slow it down. I can't walk i've lost my dependency. my hands are losing some motor skills. if you have any questions please just ask.
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I’m sorry I am not familiar with your diagnosis so this may not apply AT ALL. Just wondering if a Spinal Cord Stimulator would relieve some of the pain.
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2 ReactionsI have stiff Person syndrome for 15 years. the ivg infusions arn't helping my back any more. thank you for the suggestion. i'll look into it and give it a try.
@sandy1954
Just checking to see if anyone has left you advise or told you of things that might help them. Hope you have a blessed day today.
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1 ReactionI did someone said about having inserted in back. but I looked into it but it wouldn't help me. I was greatful anyway. thank you you have a great day.
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1 Reaction@sandy1954 So sorry the spinal cord stimulator won’t work for you. I wish you well in finding some relief.
thank you anyway.
What help from Doctors, imaging, physical therapy, or tests have you done?
Surgery should be a last option and you should not need to be in pain so much.
Gabapentin has helped me to sleep so I could heal bad back injurys.
i've had so many test. the sps I have incurable. the infusions I get has helped until now. i've had this for 18 years so I feel blessed. thank you for replying.
I use CBD cream and it helps ALOT with pain- lasts about 4 hours. I buy it online from earthlybody.com I order the Untimate Strength Cream. Let me know how it works or you!
Ellen
@ellenshe thank you I'll try it let you how it works
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