What happens after C.Difficile?

Posted by dn22 @dn22, Dec 6, 2018

I got C.diff back in October (early to mid). I had taken clindamycin for BV and it didn't react well for me. I went into the ER for intense pain, bloating, and diarrhea. They found out I had a severe case of colitis, my entire bowel system was extremely inflamed. But they didn't know what type of colitis it was until my 3rd day there. Then they did the colonoscopy, endoscopy, and biopsy. So they treated me with antibiotics. Sent me home with more antibiotics. And after finishing them, and giving it a few days I felt better.

I was still more aware of my bowels, which is saying something since I have IBS already. But other than awareness, and maybe some tenderness in a way, it was normal. Then Thanksgiving came, and I ate what my family made. I had immediate diarrhea and pain. I thought it was the dairy, bc I forgot to start taking my IBS meds again. They had me stop taking them for awhile after being diagnosed with c.diff. Then I tried the food the next day, after taking my IBS meds. Same issues.

So I decided no more thanksgiving food. But the pain, bloating, twisting feeling, and pooping didn't stop. And I would get the urge, but when I went to go, it'd be a lot of gas, that was hard put to come up. When I would poop, the stool itself was very hard, and not a lot would come out.
My mother bought me stool softener. It made the stool less dry and sandpaper-like. But I still wasn't getting any relief.
So last Friday she gave me some of her Super Colon Cleanse (about 3/4-5/8 of a scoop/serving) mixed with Metamucil in a water bottle. And I drunk half the mixture. I still haven't stopped pooping. I'm pooping for hours again, just like with c.diff. No blood this time though. And the stool is pellet like.
I keep waking up to poop, or try to poop. I can't eat anything. Especially not carbs or dairy. I feel like I'm dying, but in a very different way than when I had c.diff.
I don't know what's happening. If I should go to the hospital or not. Or if c.diff has different symptoms the 2nd time around. Or if, because it was such a severe case, that my bowels were damaged somehow. I'm really just not all right, and idk what to do.

Interested in more discussions like this? Go to the Digestive Health Support Group.

I have never been told that I will always test positive either in fact done couple tests after and both came back negative. May I ask for how long we should be on probiotic after CDiff? Anyone out there that continued with probiotic and for how long?? And what is the strain? @cece55 you could ask your doctor to repeat the test when you are off the antibiotic if you are still not well. Hope you don’t relapse. I took as well both the Boulardii and probiotic for good 3 month and stopped the Boulardii and now still on probiotic. But not sure when should I stop?

REPLY
@cece55

Thank you so much for responding. I am going to order Florastor right now. I take Align currently. May I ask what you take for pain?
Thanks...CeCe 55

Jump to this post

@cece55 When my cdiff was active, I felt like I was in labor every time I had to poop. When I asked my gastroenterologist, he said he would not prescribe anything for pain and to take tylenol! That's it! So I suffered for weeks.

REPLY
@mhi

I have never been told that I will always test positive either in fact done couple tests after and both came back negative. May I ask for how long we should be on probiotic after CDiff? Anyone out there that continued with probiotic and for how long?? And what is the strain? @cece55 you could ask your doctor to repeat the test when you are off the antibiotic if you are still not well. Hope you don’t relapse. I took as well both the Boulardii and probiotic for good 3 month and stopped the Boulardii and now still on probiotic. But not sure when should I stop?

Jump to this post

@mhi I had the fmt in March, 2019 and I still take boulardii and visbiome. Have no intentions of stopping either one!

REPLY
@ngorman25

@mhi I had the fmt in March, 2019 and I still take boulardii and visbiome. Have no intentions of stopping either one!

Jump to this post

Did you ask your doctor about Boulardii is it safe to continue taking it? What is visbiome?

REPLY

Meant what strain Visbiome do you take and how much do you take per day of both?

REPLY
@ngorman25

@cece55 When my cdiff was active, I felt like I was in labor every time I had to poop. When I asked my gastroenterologist, he said he would not prescribe anything for pain and to take tylenol! That's it! So I suffered for weeks.

Jump to this post

How are you feeling now? When will you finish the vancomycin?

REPLY
@mhi

Did you ask your doctor about Boulardii is it safe to continue taking it? What is visbiome?

Jump to this post

@mhi Visbiome is a high potency probiotic with various strains. I alternate every day between Visbiome and boulardii taking 1 capsule per day. My primary doctor agreed with me to continue taking both. As I said before, I haven't taken vancomycin since I had the fmt in March, 2019.

REPLY

I had cdiff two years ago and take florastor. My issue since I had it is I have attacks of stomach dumping and anxiety without reason. I have talked to my doctor because since the cdiff the anxiety I have gotten some days is overwhelming. He asked if I know of anyone else in the group I belong to has had this issue because he can’t find a reason. I have always been a person with great strengths and now out of nowhere I get anxious. Has anyone else had this issue. Thank you

REPLY
@losthope

I had cdiff two years ago and take florastor. My issue since I had it is I have attacks of stomach dumping and anxiety without reason. I have talked to my doctor because since the cdiff the anxiety I have gotten some days is overwhelming. He asked if I know of anyone else in the group I belong to has had this issue because he can’t find a reason. I have always been a person with great strengths and now out of nowhere I get anxious. Has anyone else had this issue. Thank you

Jump to this post

@losthope I get extreme anxiety if I think I am getting sick. The thought of having to get an antibiotic freaks me out!

REPLY
@losthope

I had cdiff two years ago and take florastor. My issue since I had it is I have attacks of stomach dumping and anxiety without reason. I have talked to my doctor because since the cdiff the anxiety I have gotten some days is overwhelming. He asked if I know of anyone else in the group I belong to has had this issue because he can’t find a reason. I have always been a person with great strengths and now out of nowhere I get anxious. Has anyone else had this issue. Thank you

Jump to this post

I too still get anxiety a lot after CDIff. Stopped the antibiotic 5 month ago and still get anxiety. Did your doctor say if it is good to keep taking Boulardii? Not sure what are the long term effects of continuing with yeast? I am still thinking if I should retake Boulardii now. I only take a probiotic now.

REPLY
Please sign in or register to post a reply.