What happens after C.Difficile?

Posted by dn22 @dn22, Dec 6, 2018

I got C.diff back in October (early to mid). I had taken clindamycin for BV and it didn't react well for me. I went into the ER for intense pain, bloating, and diarrhea. They found out I had a severe case of colitis, my entire bowel system was extremely inflamed. But they didn't know what type of colitis it was until my 3rd day there. Then they did the colonoscopy, endoscopy, and biopsy. So they treated me with antibiotics. Sent me home with more antibiotics. And after finishing them, and giving it a few days I felt better.

I was still more aware of my bowels, which is saying something since I have IBS already. But other than awareness, and maybe some tenderness in a way, it was normal. Then Thanksgiving came, and I ate what my family made. I had immediate diarrhea and pain. I thought it was the dairy, bc I forgot to start taking my IBS meds again. They had me stop taking them for awhile after being diagnosed with c.diff. Then I tried the food the next day, after taking my IBS meds. Same issues.

So I decided no more thanksgiving food. But the pain, bloating, twisting feeling, and pooping didn't stop. And I would get the urge, but when I went to go, it'd be a lot of gas, that was hard put to come up. When I would poop, the stool itself was very hard, and not a lot would come out.
My mother bought me stool softener. It made the stool less dry and sandpaper-like. But I still wasn't getting any relief.
So last Friday she gave me some of her Super Colon Cleanse (about 3/4-5/8 of a scoop/serving) mixed with Metamucil in a water bottle. And I drunk half the mixture. I still haven't stopped pooping. I'm pooping for hours again, just like with c.diff. No blood this time though. And the stool is pellet like.
I keep waking up to poop, or try to poop. I can't eat anything. Especially not carbs or dairy. I feel like I'm dying, but in a very different way than when I had c.diff.
I don't know what's happening. If I should go to the hospital or not. Or if c.diff has different symptoms the 2nd time around. Or if, because it was such a severe case, that my bowels were damaged somehow. I'm really just not all right, and idk what to do.

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@losthope

I had cdiff two years ago and take florastor. My issue since I had it is I have attacks of stomach dumping and anxiety without reason. I have talked to my doctor because since the cdiff the anxiety I have gotten some days is overwhelming. He asked if I know of anyone else in the group I belong to has had this issue because he can’t find a reason. I have always been a person with great strengths and now out of nowhere I get anxious. Has anyone else had this issue. Thank you

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The anxiety is so overwhelming at times. I am ok and then for no reason cry or have a feeling of impending doom. I was told about a book to read that gives an overview of how much the microbes In our body affect so many different things. I am going to read this if it is worth reading I will share the name.

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@losthope

I was sick for 8 months also due to Clindamycin. I was treated with vancomycin for 4 months or longer. I tried every probiotic there is. I was given the name of one on this group called florastor and it was a game changer for me. My cdiff got better which may have also have been the vanco for so long but I take it and I (thank God) have been ok. I can’t eat ground meat or corn or any ruffage but it’s ok as long as I never go through that again. I wish you the best❤️Hope this helps.

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Great to hear you are doing well so far. Seems that I developed post infectious IBS after my cdiff and I too have bad anxiety c Diff changed me. The florastor you taking is the S.Boulardii yeast based correct? And how many pills you take per day and for how long? Thank you!

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Hi,hang in there. I found it to be different each time. I`m on my third dose of C Diff. and vancomyicin. I find less is better when coming to C Diff. bananas,eloctrolite drinks and rice. vitamin d for sure and miso soup. Wait till you feel better before introducing new foods. No saturated fats for sure. When you feel weak, stay in bed and rest. Remember your body comes first and has to heel, there is no instant cure and have to have patience and calm.

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Hi, I tried the florastor and found it made me nauseaus,wonder if it`s the yeast in it?? There are so many probiotics on the market and my doc said most don`t do a thing. Not much in the way of research on this and the health food stores have different ideas than the doctors.

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@losthope

The anxiety is so overwhelming at times. I am ok and then for no reason cry or have a feeling of impending doom. I was told about a book to read that gives an overview of how much the microbes In our body affect so many different things. I am going to read this if it is worth reading I will share the name.

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thank you for posting this. I thought it was just me. I get so buzzy from anxiety and fear almost with this C Diff. You do start to wonder if this is what is going to take you down,then you feel a little better and you have hope. Today,I take one day at a time, very careful about how much food goes in me and what. do take Ativan occasionally when it gets bad, funny, but I don`t feel the signs of C Diff when I take one.

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@mhi

Great to hear you are doing well so far. Seems that I developed post infectious IBS after my cdiff and I too have bad anxiety c Diff changed me. The florastor you taking is the S.Boulardii yeast based correct? And how many pills you take per day and for how long? Thank you!

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I had to quit taking florastor because it made me nauseous,my doc told me to take it twice a day and 4 weeks after the diahhera stopped, then once a day till forever.

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@dilly69

I had to quit taking florastor because it made me nauseous,my doc told me to take it twice a day and 4 weeks after the diahhera stopped, then once a day till forever.

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Hello @dilly69 how you doing? Better on vancomycin? About florastor not sure why it made you nauseous try a different boulardii maybe AOR? Did you doctor say it is ok to take florastor forever 1pill without stopping?

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@mhi

Hello @dilly69 how you doing? Better on vancomycin? About florastor not sure why it made you nauseous try a different boulardii maybe AOR? Did you doctor say it is ok to take florastor forever 1pill without stopping?

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I'm on another wean off program, some days are better than others. Today, gone r times already and feeling weak.

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@dilly69

I'm on another wean off program, some days are better than others. Today, gone r times already and feeling weak.

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Sorry to hear you are still struggling. I hope soon you get out of this. But do read about Boulardii it does help c Diff try another brand. I had a scare myself this week had diarrhea did the test and haven’t heard back yet usually if it is urgent they would have faxed it to my doctor. It is very depressing dealing with all this. Did you doctor recommend florastor? And to keep taking it forever no problem?

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Hi, one thing l've noticed if l eat more than usual for dinner l pay for it the next day. Doc said twice a day and continue for 4 weeks after off vancomycin. It's the only probiotic she recommended and she's a gastroenterologist.
I have had good days in the last 10 months but suffer now badly with anxiety, have no desire to go to hospital with the covid thing going on.

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