What happens after C.Difficile?

Posted by dn22 @dn22, Dec 6, 2018

I got C.diff back in October (early to mid). I had taken clindamycin for BV and it didn't react well for me. I went into the ER for intense pain, bloating, and diarrhea. They found out I had a severe case of colitis, my entire bowel system was extremely inflamed. But they didn't know what type of colitis it was until my 3rd day there. Then they did the colonoscopy, endoscopy, and biopsy. So they treated me with antibiotics. Sent me home with more antibiotics. And after finishing them, and giving it a few days I felt better.

I was still more aware of my bowels, which is saying something since I have IBS already. But other than awareness, and maybe some tenderness in a way, it was normal. Then Thanksgiving came, and I ate what my family made. I had immediate diarrhea and pain. I thought it was the dairy, bc I forgot to start taking my IBS meds again. They had me stop taking them for awhile after being diagnosed with c.diff. Then I tried the food the next day, after taking my IBS meds. Same issues.

So I decided no more thanksgiving food. But the pain, bloating, twisting feeling, and pooping didn't stop. And I would get the urge, but when I went to go, it'd be a lot of gas, that was hard put to come up. When I would poop, the stool itself was very hard, and not a lot would come out.
My mother bought me stool softener. It made the stool less dry and sandpaper-like. But I still wasn't getting any relief.
So last Friday she gave me some of her Super Colon Cleanse (about 3/4-5/8 of a scoop/serving) mixed with Metamucil in a water bottle. And I drunk half the mixture. I still haven't stopped pooping. I'm pooping for hours again, just like with c.diff. No blood this time though. And the stool is pellet like.
I keep waking up to poop, or try to poop. I can't eat anything. Especially not carbs or dairy. I feel like I'm dying, but in a very different way than when I had c.diff.
I don't know what's happening. If I should go to the hospital or not. Or if c.diff has different symptoms the 2nd time around. Or if, because it was such a severe case, that my bowels were damaged somehow. I'm really just not all right, and idk what to do.

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@minge

I am currently on 14 days of vancomycin because of C diff. My dentists prescribed Clindamycin that is how I got C diff. My question is should I be taking Florastor at the same time as the Vacncomycin? If so how many should I be taking? Or is there a better probotic that I should be taking now and after the Vanco? Any recommendations is helpful. I can only hope the one round of Vanco will stop this horrible disease!

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@minge I also got cdiff from clindamycin. It was after the 3rd round of vancomycin that I had the fmt. From what I have learned, vancomycin kills the toxins but the spores remain in your system. When you stop the vancomycin, the spores start producing the toxins again. And around and around we go!

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@ngorman25

@minge I also got cdiff from clindamycin. It was after the 3rd round of vancomycin that I had the fmt. From what I have learned, vancomycin kills the toxins but the spores remain in your system. When you stop the vancomycin, the spores start producing the toxins again. And around and around we go!

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When did you have the FMT and was it done by a colonscopy? How long ago was it?

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@minge

When did you have the FMT and was it done by a colonscopy? How long ago was it?

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@minge I got the fmt 7 months after getting cdiff the first time. Fmt was done in March, 2019 via colonoscopy.

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@ngorman25

@minge I got the fmt 7 months after getting cdiff the first time. Fmt was done in March, 2019 via colonoscopy.

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Good for you.. How are you doing now? Did the FMT work the first time? Can you eat everything now?

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@minge

Good for you.. How are you doing now? Did the FMT work the first time? Can you eat everything now?

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@minge I have been doing ok since the fmt. I have not been able to gain back any of the 14 lbs I had lost. I weigh 86 lbs now. As for food, I pretty much eat anything I want. I do alternate probiotics between saccharomyces boulardii and visbiome every day.

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Are you a male or female? Can you give me a range of your age? How many Saccharomyces Boulardii are you taking daily. I tried Florastor while on Vanco and it bloated me and gave me a lot of stomache pains. I was taking 4 pills a day, maybe too much for me. I am a female, 61 years old and weigh 96 pounds. I stopped the Florastor and now I feel better. I am still on Vanco

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I am two weeks off of Vancomycin and feel like it might be coming back. Stomach hurts, loose, but not watery stools. Is it a bad idea to take a prebiotic and a probiotic at the same time to try to keep it away? I am taking two Saccharomyces Boulardii a day right now.

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@foxx67

I am two weeks off of Vancomycin and feel like it might be coming back. Stomach hurts, loose, but not watery stools. Is it a bad idea to take a prebiotic and a probiotic at the same time to try to keep it away? I am taking two Saccharomyces Boulardii a day right now.

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Hello sorry you are dealing with this and I do wish you a speedy recovery. I was taking 6 S Boulardii per day for about three month and went down to 4 a day and then 2 a day for about 7 months. I was taking Probiotic with the boulardii and prebiotics. The Boulardii is yeast base and you need broad spectrum probiotics that has lactobacillus in it. This is what I was taking. I stopped the Boulardii after 7 months and I am still taking probiotics 50 billion for day for over a year now. Wish you all the best.

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I'm on my second recurrence and I'm not on antibiotics at the moment. Waiting to see a Gastro later this month. My symptoms were really bad a few weeks ago, no blood but I had the cramping the watery stools, extremely painful gas, blah blah blah... but I stepped up my intake on s. Boulardii capsules (align resistance formula thus far) and I started taking a multi-enzyme supplement with food. That combination helps with my symptoms quite a bit. Then I started drinking GT's gingerade kombucha, 16 oz a day spread out a few glugs here a few glugs there, which also has live and active s. Boulardii plus other probiotics and ginger to help with inflammation. I thought that was stuff was gross at first but it's calming down my system and giving me a little charge, so I've come to like the taste and look forward to it. Also still taking the capsules three times a day. Definitely not cured but my symptoms are much milder, like the germ is not able to proliferate as aggressively. I still need to see a doctor who will put me on the path to an FMT, and don't recommend doing probiotics instead of getting professional help. But really took the edge off for me and it's so far kept me from ER, so I wanted to share.

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I had it also and was on vancomycin but I also had ulcerative colitis. For the UV I was taking the Mesalamine. This happened last year. I just got off the Mesalmaine. No c diff has recurred. Ye Is know that c diff wears your body out. I lost 20 pounds. I have been on this robotic, Florastor. I take 2 times a day.

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