What downside have you experienced after an ablation?

Posted by mishel @mishel, Dec 5, 2024

I am 69 and have had an abib episodes every 2 months for a year; otherwise, I am healthy. I am approaching a decision to have an ablation and am assessing Pulsed Field Ablation vs. RF ablation and general anesthesia vs. deep sedation. I would love to know if you have experienced side effects such as tiredness, Hemolysis, Cardiac spasm, Gastric issues, Other. Have you tried to take medications such as Flacainade instead of having an ablation?
Thank you so much!

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Profile picture for aard @aard

I had been on Flecanaide, Diltiazem, and Eliquis to control my a-fib for about 2 years. Then the meds became less effective, I had a cryoablation at 67 and under deep sedation for the procedure. In the hospital for about 5 or 6 hours, mostly to make sure the incision site was stable, and home the same night. I had a-fib off and on for about 2 months, which was expected, while the heart healed. I was on flecanaide, diltiazem, and eliquis prior to my procedure and then for about 5 months after, then off of everything. About 3 months in, I went to Nepal and did a 2 week trek, then a trek for 30 days far from any medical help. I did not have any other side effects.

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This is very encouraging to read. I’m 72 and I’ve trekked in Nepal a few times, including a 30 day trek in 2019 before I had Afib. I returned once more in 2023 when I had Afib but it acted up to the point where I had to bail out at only 3500M elevation as I was simply exhausted from the Afib. I am now awaiting a call for an ablation in Montreal. It’s great to hear you were able to trek after your ablation - gives me hope!

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Profile picture for otiswinston @otiswinston

This is very encouraging to read. I’m 72 and I’ve trekked in Nepal a few times, including a 30 day trek in 2019 before I had Afib. I returned once more in 2023 when I had Afib but it acted up to the point where I had to bail out at only 3500M elevation as I was simply exhausted from the Afib. I am now awaiting a call for an ablation in Montreal. It’s great to hear you were able to trek after your ablation - gives me hope!

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Hope you have a successful ablation and can get back to Nepal to get above that 3500M elevation :-). I'm hoping to make another trip there in the next year or so.

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Profile picture for thisnthat @thisnthat

Hi mishel,
I had been experiencing heart palpitations since 2017 or so, but was not correctly diagnosed until 2020 with a Ziopatch wearable heart monitor. The first cardiologist misdiagnosed me with a normal heart ( totally missed the mitral valve prolapse & regurgitation), and missed the arrhythmia by only doing an ECG. Had increasing incidents and then one night my heart did flip flops for six hours. The next cardiologist only caught the atrial flutter. Then went to a big teaching hospital, and two top EP cardiologists there picked up on the Afib, too!
Each of them recommended a catheter ablation as a first-line method of intervention, and I could forego most of the drugs.
In retrospect, I think I should have first tried more natural means of treating the AF and AFL. The actual ablation took upwards of 4 1/2 hours, as the EP discovered I had a septal pouch wherein the aberrant AFL cells were percolating. It was difficult to ablate this hard to reach area, so I was under the anesthesia about 2 hours longer than predicted. I had two ocular migraines following the procedure, and was plagued by frequent PACs for over a year. I found these more bothersome than the AF! I also experienced other types of arrhythmias (SVT/AT/sudden rate drops) which were picked up by the implantable loop recorder necessitated by the perceived arrhythmias.
A recent brain MRI shows increased brain changes since an MRI taken just prior to my ablation. Could that be a result stemming from the prolonged sedation or minor infarcts from the procedure itself? Who can say for sure….
It’s over 4 years since the ablation, and I am still in NSR with those blips along the way. Thankful for the return to normalcy, but still wonder if I did the best thing for me.

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@thisnthat
Hi,
Like you I have suffered migraines with aura since an ablation and watchman implant. Stated with back to back one's when leaving the hospital and occur every 2 -3 days since then, just over a year now. I too was under longer than usual chasing an arrant signal which never stuck around long enough to zap. Did you find any med or anything that stopped the migraine occurrences? My primary and ENT drs. have thrown up there hands, tried a neurologist and meds he gave me made my loony but did not stop the migraines. I am at a loss where to go next. Thanks for any advice

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Profile picture for dalet1 @dalet1

@thisnthat
Hi,
Like you I have suffered migraines with aura since an ablation and watchman implant. Stated with back to back one's when leaving the hospital and occur every 2 -3 days since then, just over a year now. I too was under longer than usual chasing an arrant signal which never stuck around long enough to zap. Did you find any med or anything that stopped the migraine occurrences? My primary and ENT drs. have thrown up there hands, tried a neurologist and meds he gave me made my loony but did not stop the migraines. I am at a loss where to go next. Thanks for any advice

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@dalet1
Hi there!
Gosh, I wish I could give you some advice. But my migraine auras only occurred twice within the first 2/3 days of the ablation. I did have one other migraine aura about 2 months ago, after stopping my hydroxychloroquine prescription. My opthalmologist did not think it anything to worry about at the time. (Fortunately, I never got the actual migraine headaches, only the visual disturbances!)

It would have been nice if the EP/his team had been more forthcoming about the possible side effects of having an ablation done. I thought I was having a stroke! And then all the other arrhythmias that plagued me, especially that first year or two.

Now it’s been more than 5 years since my ablation, and nary a blip on the arrhythmia front. It did take longer than expected for my heart to truly settle down, but the loop recorder seems to confirm NSR every month.

Here’s hoping you can find some help for the migraines. It must be very unsettling!

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Profile picture for dalet1 @dalet1

@thisnthat
Hi,
Like you I have suffered migraines with aura since an ablation and watchman implant. Stated with back to back one's when leaving the hospital and occur every 2 -3 days since then, just over a year now. I too was under longer than usual chasing an arrant signal which never stuck around long enough to zap. Did you find any med or anything that stopped the migraine occurrences? My primary and ENT drs. have thrown up there hands, tried a neurologist and meds he gave me made my loony but did not stop the migraines. I am at a loss where to go next. Thanks for any advice

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@dalet1 Not sure if relaying my experience can help, but thought I'd share it in case it could help someone. I am not doctor, so take this as anecdotal only.
I have had migraines with aura that usually is connected to being dehydrated and is relieved by fluids, electrolyte drinks. So I am wondering if a fluid/ electrolyte balance is involved after an ablation surgery. I also suffered with vertigo and heart papitations for several years (before being diagnosed with proximal afib and supraventricular tachycardia). I do not know if there is any connection (but on some level everything is connected in our body systems). I saw a neurologist who diagnosed it as vestibular migraine and prescribed an anticonvulsant (She also prescribed Ubrelvy to take during an episode). I did not take either. An integrative MD suggested trying herbal tinctures of Tian Ma (Gastrodia elata) and Blue Vervain. While I went on to experience many episodes of supraventricular tachycardia (documented on 14 day monitor) I have not had one episode of vestibular migraine since taking these tinctures daily.

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I had put off having an ablation - call me overly cautiou. I had an unsuccessful cardioversion and was subsequently on Tikosyn 500, which worked for awhile, and uthat was later reduced to Tikosyn 250 (worked even better but both had detrimental effects on my kidneys) Normal sinus rhythm 2 days of 3. Ablation had been suggested early on & was finally convinced myself to go ahead.

I had an successful ablation at The Cleveland Clinic. No issues. Had hiccups for a few days but they went away after 72 hours. My heart has been in normal sinus rhythm 100% of the time for 3.5 mos - I checked daily with my blood pressure meter, pulse oximeter, manually, and my Kardia ECG device. I’ve remained on Tikosyn 250 and am scheduled to discontinue. I’m happy with the results.

No side effects. Afib gone I should have done it sooner. Cleveland Clinic was superb.

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Profile picture for thisnthat @thisnthat

Hi mishel,
I had been experiencing heart palpitations since 2017 or so, but was not correctly diagnosed until 2020 with a Ziopatch wearable heart monitor. The first cardiologist misdiagnosed me with a normal heart ( totally missed the mitral valve prolapse & regurgitation), and missed the arrhythmia by only doing an ECG. Had increasing incidents and then one night my heart did flip flops for six hours. The next cardiologist only caught the atrial flutter. Then went to a big teaching hospital, and two top EP cardiologists there picked up on the Afib, too!
Each of them recommended a catheter ablation as a first-line method of intervention, and I could forego most of the drugs.
In retrospect, I think I should have first tried more natural means of treating the AF and AFL. The actual ablation took upwards of 4 1/2 hours, as the EP discovered I had a septal pouch wherein the aberrant AFL cells were percolating. It was difficult to ablate this hard to reach area, so I was under the anesthesia about 2 hours longer than predicted. I had two ocular migraines following the procedure, and was plagued by frequent PACs for over a year. I found these more bothersome than the AF! I also experienced other types of arrhythmias (SVT/AT/sudden rate drops) which were picked up by the implantable loop recorder necessitated by the perceived arrhythmias.
A recent brain MRI shows increased brain changes since an MRI taken just prior to my ablation. Could that be a result stemming from the prolonged sedation or minor infarcts from the procedure itself? Who can say for sure….
It’s over 4 years since the ablation, and I am still in NSR with those blips along the way. Thankful for the return to normalcy, but still wonder if I did the best thing for me.

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@thisnthat -considering any aberrant rhythm could lead to a stroke or worse my feeling is a successful ablation beats the fears of a stroke or heart attack Glad your ablation was a success

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Thanks for sharing this good news! I am on Multaq & plan to have the ablation soon.

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75 year-old male, former athlete, gym rat for 50+ years.
My chain of events:
9/14/24 - saddle pulmonary embolism; prescribed 5mg Eliquis twice a day [will be on for life although hematologist said he could reduce to 2.5mg twice a day]
5/01/25 - diagnosed with atrial flutter in ER; prescribed 25mg metoprolol tartrate twice a day
8/29/25 - admitted to hospital with significant arrythmia (BP and HR in triple digits, would not come down)
9/02/25 - administered nuclear stress test (clear) and cardioversion (returned to normal sinus rhythm)
9/02/25 - prescribed amiodarone 1200mg for 3 days [awful], then 200mg daily [semi-awful]
10/1/25 - stopped amiodarone
10/8/25 - catheter ablation [felt much better immediately]; metoprolol regimen changed to 12.5mg twice a day
**Christmas-New Years time frame, I noticed a fluttering, skipping, off-beats in heart before falling asleep (unsure exactly what)**
1/07/26 - 3-month checkup with cardiology; administered ECG; metoprolol regimen changed to 12.5mg at night only for one week, then stop metoprolol entirely [in that process now]
1/08/26 - ECG results posted to my portal [luckily I have appt with cardiologist next week 1/13/26]:
SINUS BRADYCARDIA WITH FIRST DEGREE AV BLOCK AND FREQUEST PACS

I'm not sure this will help you, but this is my real-time experience. If I can offer one bit of advice, get a good electrophysiologist (EP). Best of luck.

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Profile picture for rdevries @rdevries

I had put off having an ablation - call me overly cautiou. I had an unsuccessful cardioversion and was subsequently on Tikosyn 500, which worked for awhile, and uthat was later reduced to Tikosyn 250 (worked even better but both had detrimental effects on my kidneys) Normal sinus rhythm 2 days of 3. Ablation had been suggested early on & was finally convinced myself to go ahead.

I had an successful ablation at The Cleveland Clinic. No issues. Had hiccups for a few days but they went away after 72 hours. My heart has been in normal sinus rhythm 100% of the time for 3.5 mos - I checked daily with my blood pressure meter, pulse oximeter, manually, and my Kardia ECG device. I’ve remained on Tikosyn 250 and am scheduled to discontinue. I’m happy with the results.

No side effects. Afib gone I should have done it sooner. Cleveland Clinic was superb.

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@rdevries
Can you share your doctor at the clinic please?

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