What can be done to help with hyperacusis?

Posted by wayfarer @wayfarer, Mar 10, 2019

Hyperacusis is a rare hearing disorder. Normal sounds are amplified to the point of becoming painful. Have been to 2 ENTs, had a brain MRI, had 5 audiology tests, took prednisone meds, and tried a hearing aid. Nothing helped. Was told to learn to live with it. Does anyone have a helpful suggestion?

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My son has sensitive hearing after a car accident causing concussion one and half years ago. He has seen neurologists and has done MRI but cannot find out the issue. We are told to check ENT about his inner and middle ear which could be damaged. Could you point us to go to which doctor in Mayo, who can help check his ears. Thanks.

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@prayingmom

My son has sensitive hearing after a car accident causing concussion one and half years ago. He has seen neurologists and has done MRI but cannot find out the issue. We are told to check ENT about his inner and middle ear which could be damaged. Could you point us to go to which doctor in Mayo, who can help check his ears. Thanks.

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Hello @prayingmom, Welcome to Connect. I recently had an ENT appointment at Rochester Mayo Clinic with Dr. Michael D. Olson but mine was for breathing related issues. Here's a list of the ENT doctors and their specialties at the different Mayo locations – https://www.mayoclinic.org/departments-centers/ent-head-neck-surgery/sections/doctors/drc-20424100 There is a Request an appointment button on the page also to get you started. If you would like to call for more information and request an appointment, the contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

I can't imagine how difficult this is for your son and for you trying to help him find out what is causing the sensitive hearing and what can help fix it. Mayo I ask how old is your son?

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@colleenyoung

Lacy, I'm glad that you were able to speak with someone at Telehealth who listened compassionately and offered a pre-grief support line. It can really help to speak to someone who has training (even volunteers are trained) to get perspective and help us focus. Stay in touch.

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..thanks. I only made the one phone call but its a safety net when I am having a bad day… when feeling a bit better I go back and read my posts and think: did I say that? Ups and downs … thanks for your understanding. It's hard on me mentally when in so much pain and then anxiety kicks in…. but I sure do appreciate the better, if not perfect, days/hours. 💐

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@lacy2

..thanks. I only made the one phone call but its a safety net when I am having a bad day… when feeling a bit better I go back and read my posts and think: did I say that? Ups and downs … thanks for your understanding. It's hard on me mentally when in so much pain and then anxiety kicks in…. but I sure do appreciate the better, if not perfect, days/hours. 💐

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Was today a better day? What gave you joy today? For me it was the gift of perennials from my neighbours garden. I got 11 different plants.

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@prayingmom

My son has sensitive hearing after a car accident causing concussion one and half years ago. He has seen neurologists and has done MRI but cannot find out the issue. We are told to check ENT about his inner and middle ear which could be damaged. Could you point us to go to which doctor in Mayo, who can help check his ears. Thanks.

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Hi Prayingmom, were you able to contact Mayo Clinic and get an appointment for your son?

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@colleenyoung

Hi Prayingmom, were you able to contact Mayo Clinic and get an appointment for your son?

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I called Mayo last year after my son came home for rest but the neurologist rejected our appointment. I am not sure why. So, I hope to get a recommendation about which doctor we can visit. Thanks!

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@prayingmom

I called Mayo last year after my son came home for rest but the neurologist rejected our appointment. I am not sure why. So, I hope to get a recommendation about which doctor we can visit. Thanks!

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I'm sorry to hear that. I might suggest calling again to see if an appointment is available now or, as you say, for a recommendation.

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@colleenyoung

Was today a better day? What gave you joy today? For me it was the gift of perennials from my neighbours garden. I got 11 different plants.

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…this seems such an easy thing to do, find joy in things , yet so hard some days… I am happy for you and I used to love gardening and plants…. I named my first child – middle name – Joy, and she is full of it, as is her sister: and I hope that they never, ever, go through what I have over the last years.. as with many others on this site, it's so hard to deal with illness and pain and, again, amazed at whaat some people can get through… I used to but now 77 have seemed to have lost my inner strength if that makes sense but do appreciate your and others kind words. J.

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Hyperacusis and tinnitus are addressed in the most recent journal of The Hearing Health Foundation. The magazine is free to read and available here: https://hearinghealthfoundation.org/

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Summertime here and all the fresh veggies etc., but so many diet restrictions.. at least , I think, none for hearing/tinnitus/eustachian tube/hyperacusis, etc.
Pelvic radiation damage from years ago: bowels and bladder damaged: no acidic fruit not even cranberry juice, no: onion, coffee, yogurt, chocolate, spices, tomatoes, vinegar, some cheeses, alcohol (I dont drink)…and the list goes on…. honestly with the daily pain of various ailments, or the inability to do "normal" things, ageing; plus the diet restrictions (which sometimes work, sometimes dont…(ibs/fecal incontinence) it can make for pretty unpleasant days, hard to be positive, and, yes, I always say it could be worse! But….and people wonder where my old smile went!!! Thanks for the web site. J.

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