What can be done to help with hyperacusis?

Posted by wayfarer @wayfarer, Mar 10, 2019

Hyperacusis is a rare hearing disorder. Normal sounds are amplified to the point of becoming painful. Have been to 2 ENTs, had a brain MRI, had 5 audiology tests, took prednisone meds, and tried a hearing aid. Nothing helped. Was told to learn to live with it. Does anyone have a helpful suggestion?

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@colleenyoung

Lacy, I'm glad that you were able to speak with someone at Telehealth who listened compassionately and offered a pre-grief support line. It can really help to speak to someone who has training (even volunteers are trained) to get perspective and help us focus. Stay in touch.

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..thanks. I only made the one phone call but its a safety net when I am having a bad day… when feeling a bit better I go back and read my posts and think: did I say that? Ups and downs … thanks for your understanding. It's hard on me mentally when in so much pain and then anxiety kicks in…. but I sure do appreciate the better, if not perfect, days/hours. 💐

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@lacy2

..thanks. I only made the one phone call but its a safety net when I am having a bad day… when feeling a bit better I go back and read my posts and think: did I say that? Ups and downs … thanks for your understanding. It's hard on me mentally when in so much pain and then anxiety kicks in…. but I sure do appreciate the better, if not perfect, days/hours. 💐

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Was today a better day? What gave you joy today? For me it was the gift of perennials from my neighbours garden. I got 11 different plants.

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@prayingmom

My son has sensitive hearing after a car accident causing concussion one and half years ago. He has seen neurologists and has done MRI but cannot find out the issue. We are told to check ENT about his inner and middle ear which could be damaged. Could you point us to go to which doctor in Mayo, who can help check his ears. Thanks.

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Hi Prayingmom, were you able to contact Mayo Clinic and get an appointment for your son?

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@colleenyoung

Hi Prayingmom, were you able to contact Mayo Clinic and get an appointment for your son?

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I called Mayo last year after my son came home for rest but the neurologist rejected our appointment. I am not sure why. So, I hope to get a recommendation about which doctor we can visit. Thanks!

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@prayingmom

I called Mayo last year after my son came home for rest but the neurologist rejected our appointment. I am not sure why. So, I hope to get a recommendation about which doctor we can visit. Thanks!

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I'm sorry to hear that. I might suggest calling again to see if an appointment is available now or, as you say, for a recommendation.

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@colleenyoung

Was today a better day? What gave you joy today? For me it was the gift of perennials from my neighbours garden. I got 11 different plants.

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…this seems such an easy thing to do, find joy in things , yet so hard some days… I am happy for you and I used to love gardening and plants…. I named my first child – middle name – Joy, and she is full of it, as is her sister: and I hope that they never, ever, go through what I have over the last years.. as with many others on this site, it's so hard to deal with illness and pain and, again, amazed at whaat some people can get through… I used to but now 77 have seemed to have lost my inner strength if that makes sense but do appreciate your and others kind words. J.

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Hyperacusis and tinnitus are addressed in the most recent journal of The Hearing Health Foundation. The magazine is free to read and available here: https://hearinghealthfoundation.org/

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Summertime here and all the fresh veggies etc., but so many diet restrictions.. at least , I think, none for hearing/tinnitus/eustachian tube/hyperacusis, etc.
Pelvic radiation damage from years ago: bowels and bladder damaged: no acidic fruit not even cranberry juice, no: onion, coffee, yogurt, chocolate, spices, tomatoes, vinegar, some cheeses, alcohol (I dont drink)…and the list goes on…. honestly with the daily pain of various ailments, or the inability to do "normal" things, ageing; plus the diet restrictions (which sometimes work, sometimes dont…(ibs/fecal incontinence) it can make for pretty unpleasant days, hard to be positive, and, yes, I always say it could be worse! But….and people wonder where my old smile went!!! Thanks for the web site. J.

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Hi all!

I am not sure if I am posting to the right spot or not. I recently suffered acoustic trauma and now have bilateral hyperacusis.

Here is my audiogram from yesterday:

Right: Normal hearing sensitivity 250-8000 Hz
Left: Normal hearing sensitivity 250-8000 Hz

Bone Conduction: Unmasked left ear bone conduction thresholds are within normal limits, with 10-25 dB air-bone gaps noted.

I'm told that this means I have superhuman hearing (so to speak). I am struggling, to say the least.

It's been just over a week since the initial injury. I was in horrendous pain for the entire week, particularly my right ear. Today, things have calmed down and I have been fine wearing an ear plug in my right ear.

I have a sensation of fullness in both ears and I wondered if anyone has had luck treating the fullness with corticosteroids.

My ENT doc hasn't given me anything to help with it other than Gabapentin, which I refuse to take because it makes me feel like I am on a tilt-a-whirl and I end up puking (think: The Exorcist). I read several studies where corticosteroids helped with the "fullness."

My pain is at a manageable level right now unless I am exposed to something like a lawn mower, leaf blower, abrupt closing of a heavy door, barking dog, etc. While taking the audiogram, I could scarcely hear anything in the headphones over the roar of the computer in the room (which to me sounded like a tornado). I believe that exposure to loud sounds are triggering cluster migraines but have yet to have any physician's input on my theory.

I was wondering if anyone in the group has similar bone conduction sensitivity — what my ENT jokingly called "supersonic" hearing.

I'm going for a CT scan tomorrow and vestibular function testing on Friday. I imagine they are looking to see if I have something wonky with my semicircular canals but they haven't told me anything.

I'm eager to see if anyone else is walking or has walked the "supersonic" path. Did surgery help?

Respectfully,
L.

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@lacyrazor5251

Hi all!

I am not sure if I am posting to the right spot or not. I recently suffered acoustic trauma and now have bilateral hyperacusis.

Here is my audiogram from yesterday:

Right: Normal hearing sensitivity 250-8000 Hz
Left: Normal hearing sensitivity 250-8000 Hz

Bone Conduction: Unmasked left ear bone conduction thresholds are within normal limits, with 10-25 dB air-bone gaps noted.

I'm told that this means I have superhuman hearing (so to speak). I am struggling, to say the least.

It's been just over a week since the initial injury. I was in horrendous pain for the entire week, particularly my right ear. Today, things have calmed down and I have been fine wearing an ear plug in my right ear.

I have a sensation of fullness in both ears and I wondered if anyone has had luck treating the fullness with corticosteroids.

My ENT doc hasn't given me anything to help with it other than Gabapentin, which I refuse to take because it makes me feel like I am on a tilt-a-whirl and I end up puking (think: The Exorcist). I read several studies where corticosteroids helped with the "fullness."

My pain is at a manageable level right now unless I am exposed to something like a lawn mower, leaf blower, abrupt closing of a heavy door, barking dog, etc. While taking the audiogram, I could scarcely hear anything in the headphones over the roar of the computer in the room (which to me sounded like a tornado). I believe that exposure to loud sounds are triggering cluster migraines but have yet to have any physician's input on my theory.

I was wondering if anyone in the group has similar bone conduction sensitivity — what my ENT jokingly called "supersonic" hearing.

I'm going for a CT scan tomorrow and vestibular function testing on Friday. I imagine they are looking to see if I have something wonky with my semicircular canals but they haven't told me anything.

I'm eager to see if anyone else is walking or has walked the "supersonic" path. Did surgery help?

Respectfully,
L.

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Hi Lacyrazor, this sounds unbearable. Perhaps @joyces @julieo4 @willows @lacy2 or @nurseheadakes can offer some advice.

I'm glad to hear that you have further testing (CT scan and vestibular function testing) in a couple of days. I'll be interested to hear what you find out.

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@lacyrazor5251

Hi all!

I am not sure if I am posting to the right spot or not. I recently suffered acoustic trauma and now have bilateral hyperacusis.

Here is my audiogram from yesterday:

Right: Normal hearing sensitivity 250-8000 Hz
Left: Normal hearing sensitivity 250-8000 Hz

Bone Conduction: Unmasked left ear bone conduction thresholds are within normal limits, with 10-25 dB air-bone gaps noted.

I'm told that this means I have superhuman hearing (so to speak). I am struggling, to say the least.

It's been just over a week since the initial injury. I was in horrendous pain for the entire week, particularly my right ear. Today, things have calmed down and I have been fine wearing an ear plug in my right ear.

I have a sensation of fullness in both ears and I wondered if anyone has had luck treating the fullness with corticosteroids.

My ENT doc hasn't given me anything to help with it other than Gabapentin, which I refuse to take because it makes me feel like I am on a tilt-a-whirl and I end up puking (think: The Exorcist). I read several studies where corticosteroids helped with the "fullness."

My pain is at a manageable level right now unless I am exposed to something like a lawn mower, leaf blower, abrupt closing of a heavy door, barking dog, etc. While taking the audiogram, I could scarcely hear anything in the headphones over the roar of the computer in the room (which to me sounded like a tornado). I believe that exposure to loud sounds are triggering cluster migraines but have yet to have any physician's input on my theory.

I was wondering if anyone in the group has similar bone conduction sensitivity — what my ENT jokingly called "supersonic" hearing.

I'm going for a CT scan tomorrow and vestibular function testing on Friday. I imagine they are looking to see if I have something wonky with my semicircular canals but they haven't told me anything.

I'm eager to see if anyone else is walking or has walked the "supersonic" path. Did surgery help?

Respectfully,
L.

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I'm sorry, this one is over my head. I know people who have hyperacusis. Sounds are extremely loud, but that doesn't necessarily mean 'clear' as in 'super hearing'. It appears from the data shared that you are hearing quite normally in the range of speech. Masking done with hearing instruments might be helpful. I hope that further testing may identify the problem. What kind of acoustic trauma was experienced? Is it possible that the acoustic trauma has ignited a tinnitus issue?

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Strange as it may seem, I am almost deaf yet suffer terrible hyperacusis. I have to turn off my hearing aids (which work fine in average settings) when I'm on a noisy street or in a crowd. Lip Reading helps me when I shut my hearing aids off send even when I am using them. There are noise canceling headphones, a good ENT or Audiologist should know about them. They can be adjusted to your needs

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