Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Hello
I just joined this online support group. I am already feeling better knowing I am not alone with my chronic condition. This involves lower back surgeries and ongoing treatments. I often feel like no one understands what it is like to deal with daily pain and limited mobility. The fatigue makes even simple tasks at work and at home difficult. Some days, getting out of bed, walking, or sitting for long stretches feels overwhelming. Keeping up with household chores is tough, too. Still, I am well enough right now to take part in this group's activities. I want to end this message by wishing you all a good day of recovery and painless mobility.

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Hi. I am 51 y.o. mom to four. I have ankylosing spondylitis and have recently been diagnosed with relapsing polychondritis as well. I've had big pain for many years but recently have become more slowed and limited by it. I'm still very hopeful. But I never met another with relapsing polychondritis, and I'm feeling quite alone with the magnitude and illness of that. Thanks!

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78 YO Male in North Idaho with Chronic back pain that seems to be getting worse rather than better. Started out many years ago and over the years moved furniture for 10 years and drove truck for 21 years. 2 back surgeries, laminetctory, dissectomy, double fusion and more plus a lobotomy :_> Tired of it all. Some nights dont sleep, loss of appitite and all that goes along with pain.

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Profile picture for joelhoward1092 @joelhoward1092

@msshonda Wow! You have been through it!

I am curious about the injection that you received for the pain radiating from your tailbone. Did they tell you what type of injection it was? Like where they placed the needle.

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@joelhoward1092 I’m not sure who I’m replying to. Which of the person who fell off the stairs and had 40 years of pain, I don’t know how you live through. I know spirituality is part of it, it’s so devastating. Please let me know if I’m responding to the right person.

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hi, I’m not sure who I’m responding to or what group this is. Think it’s the chronic pain proof from neuropathy group. please correct me if I’m wrong!!!!
these groups are so informative, and emotionally connecting. I have neuropathy of my corneas, it’s getting harder to type to negotiate, which chat I am on, and who I’m responding to. I’ve had tea since 2003, I learned in July 2024, I toes on both feet froze, then came balance, problems, blurry vision, despite everything that I’ve done, nothing has worked. Now it’s all up and down my leg, my diaphragm is neuromuscular impaired, it’s hard to breathe, and my eyes are failing. My speech has gotten wobbly, so words don’t come out right. So I have to use Siri, because I can’t see, and I can’t go back and proofread I’ve been on so many different anti-seizure, drugs, and pain, drugs, I’ve tried alternative methods, acupuncture massage… Recently low-dose naltrexone …. Bad side effects, so I’m just looking for any info that anyone can provide about relief. I’ve read much worse accounts than mine, but we’re all in this together. I just don’t know why I keep looking for the message with my symptoms, metaphorically… I lost. I love other people’s thoughts, prayers for everyone.🙏

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