Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@heisenberg34

That is terrible. No way to have to live. Have you considered a trial of the pain pump. The trial usually involves an injection of morhine or hydromorphone into the intrathecal space. Or, a temporary pump?catheter may be used. The goal is to see if you get significant pain reduction. If so, you can go ahead with the permanent implant which is a small device about the size of a large hockey puck. That goes in an abdominal wall. A tube is run under the skin and attached catheter is sutured into the space around the spinal cord. Unfortunately, the permanent implant has never provided any significant relief for me. Guess I'm in the unlucky ten percent who get little to no relief. It might ba worth having the trial if nothing else has worked. No guarantees of course.

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I don't think I want it in my body. I already have so much metal from replacements and total back fusion.

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@26sabrina

I don't think I want it in my body. I already have so much metal from replacements and total back fusion.

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I understand. Wish you well.

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@kfc1

Hi, my name is Francis and I’ve been dealing with tremendous low back pain for many years, enough so that I was put on disability at age 56. I’m 68 now and despite many different procedures from pain management specialists I am no better off, period, long term opioid use has been a big help but not near enough as the Dr’s I see are afraid of upping my dose or switching me to something stronger , afraid of a goverment that has no idea what they are talking about when it comes to severe chronic non cancer pain, I would get better pain relief if I actually had cancer. How sad is that.
Thanks for letting me ramble on 🙏🏻

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Yeah. It’s frustrating. No one really knows what it is like to be in constant pain. And some goofball worried about you getting “hooked” on an opioid.
I had Prostate removed. And have been in constant ever since. Have a spinal stimulator in now. Very little help. I can understand why some people end their lives have to live in constant pain and no hope on the horizon

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Happy Friday Friends!
My name is Lisa, from central Missouri…very rural area. When I moved here 17 years ago I was extremely worried that I wouldn’t find the right care for my Osteoarthritis. I’ve had bi-lateral Hip replacement, right side revision done cuz of Surgeon error…no suffering permanent nerve damage & severe nerve pain from him “traumatizing the femoral nerve while trying to dislocate” defective hip parts. He actually told me that! Then, of course, blamed it on my back being the cause of the new hip repeatedly dislocating. I trusted him when he said it’ll eventually get better; 2019 still defective.
By the time I went to take legal action, of course, it was too late. I’ve also had 3 failed back surgeries, tried e-stimulators…couldn’t calibrate it correctly so no use for me. I need both my shoulders done and receive injections every 3mos to help ease that horrific pain. I’m scared to death to get my shoulders done, per the outcomes of previous surgeries.
Luckily 🍀🙏🏻 I found an amazing pain management specialist close (enough) to me to prescribe the right combination of medicine that makes things more tolerable. I am 70% functional but I’m so depressed that it hinders me from being a productive. Pain feeds depression and depression feeds pain…not to mention the anxiety that comes from things you know need to be done but you literally procrastinate or avoid completely. NOW they’ve determined that a lot of my shoulder pain is directed to my neck, which also needs a fusion surgery!
I’m scared for my future. My son and I have an understanding that he is not to let me suffer should I become non-mobile or productive. I don’t want to live in this pain and if I don’t take care of what needs to be done, it’ll all get worse. It’s not a bright sunny future I was hoping for.
God Bless All Sufferers with Peace & Comfort.✌️🙏🏻❤️‍🩹🥺

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Hello. I am a 66 year old woman who has been in pain since my 20s. I have had injections, pain management, the stimulator temporarily installed in my back, surgery, pain meds, PT, Tens unit and Medical Marijuana. I may have missed mentioning a few treatments. I have been diagnosed at WellSpan and John’s Hopkins with various diagnosis. The last several diagnosis were DISH, psoriatic arthritis and Osteoporosis. I was told by my Arthritis doctor that I have the bones of a 90 year old and I have bone spurs from
My neck to my tailbone and all my joints. Eventually I will need all my joints replaced. So far I only had my left knee done. None of the treatments really worked. I guess I have accepted the fact that I will continue to live my life in pain. Anyone know of any miracles?

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@momma1960

I have been suffering with chronic pain for approximately five years now and my doctor said that she is more worried about me getting addicted to the pain medication, They obviously haven’t suffered from chronic pain and surgery is not an option. I have had multiple falls and the worst fall was having my feet taken out from under me and I landed very hard on packed down dirt in a field and I thought I broke my back. It took 3 X-rays and a ct scan to find the damage done to my back. My doctor sent me for physiotherapy, but I don’t feel it’s helping because I’m in worse pain after the appointment.
My doctor has me on Hydromorph Contin which is a slow release medication that I take every 12 hours. And it’s not even relieving the pain anymore.

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@momma1960 I wanted to let everyone know I've been in lower back pain since I feel about 5 yrs ago .Trying everything for relieve prescription and herbals .I finally am using Omega xl been on it 6 weeks ,love it I don't have any pain have 2 more weeks then go to 2 a day I just ordered more on autoship.I recommend this product 4 a day for 8 weeks then 2 a day .This really helps 100,
%,try it for yourself .

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Hi. My name is Sandra and I am looking forward to learning from this group.

I’ve had chronic pain now for about 7 years. The typical lower back & cspine area from working as a nurse for almost 30 years and from being very physically active.

I am now 61 and disabled / retired.

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My name is Armor and I have had cervical dystonia since 2014 (I had received the right diagnosis at Walter Reed Neurology). I won't go on about the trials and tribulations since I was recently diagnosed with lung cancer and have completed chemo/radiation. They wanted to start me on immunotherapy, but it threw me for a loop, so we are waiting to see what the way forward. I thought CD was bad enough but with cancer this has become a real challenge.

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Hi all, I suffer from chronic pain, mostly osteoarthritis. Affected are my hands, twisted now, my tailbone sciatica in both legs, my neck my shoulders my feet, my jaw my face all suffer and electrical charge like feeling. Depression is chronic. Practice s for intuitive eating an mindfulness.

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Hi … my name is Meg and I’ve been dealing with chronic pain for over 2 years. In May of 2022, I had a fall at work which resulted in a full rotator cuff tear, a bulging disc in my neck, and spinal fusion surgery L3-L5 in April 2021. I’m still recovering from the surgery and am in constant pain. My spine surgeon transferred me to Pain Management because he believes he’s done everything “surgically” possible for my cervical and lumbar pain. My orthopedic doctor will not operate until Pain Management clears me, which won’t be for quite some time. I’m allergic to every narcotic pain medication except for Dilaudid.
I’ve been on every muscle relaxer and anti-inflammatory medication without significant relief. I have PT 2 times a week with dry needling, cupping and stim, but the relief is gone as soon as the treatment ends.
I want to research holistic treatments, but I’m on Worker’s Comp Disability and have no say in who my doctors are and what treatments I can do. It’s been incredibly frustrating.
I’d love to hear if anyone has a similar story and how they are coping.

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