Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@mikween

Has anyone ever heard of The Institute for Advanced Reconstruction in New Jersey? They are claiming. that they can fix people with foot drop if it has not been to long. I would appreciates anyone’s input. Thanks

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Hi @mikween, I have not heard of the Institute for Advanced Reconstruction but they sound impressive from their website. I also did a search of them on Google Scholar which is a good place to search for research, medical and educational info – you can also filter the results by latest year, and more. I was surprised how much information showed up. John
http://bit.ly/2rJOxLm

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@elkcg

Hi my name is Laura and I’ve lived with chronic pain since 2002. I have small fiber neuropathy, fibromyalgia, PTSD, and the list goes on and on! I’ve tried all sorts of medicines and treatments. Before I got hurt I only weighted 150 and now I’m up to 270 and I’m thinking of getting gastric sleeve surgery. I’m so tired of being in pain everyday

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@elkcg ,, just a thought .. on my MAC/Bronchiectasis Connect .. one of my Members put up a GoFundMe on her Facebook page to go to Mayo Clinic .. it worked for her .. just a thought .. don’t have a clue how it works .. but maybe a family member or friend could help you? She DID get to Mayo Clinic! Good Luck! Katherine

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@elkcg. Hi, Laura. I, too, was thin and active before my multiple illnesses hit me. I went from 112 (I am 5’6″ – I used to model) to 172. A lot of that was a drastic lowering of activity. I literally could not do any extreme sports any longer. Heck, I can barely walk a few blocks without pain. I have found water exercise to be best. I also had to change the way I ate and what I ate. I have been very lucky most of my life to be able to eat pretty much and still maintain my weight. However, once the fibro, RA, Sjogren’s, spinal stenosis and, now, Lupus took over, my health went down hill fast! It has taken me years of finding the right combination of medication and battling depression (I am on medication for depression) before I started getting my weight under control. Some of the medications actually cause weight gain, but ease the symptoms – so, I just had to adjust more. I am only down to 168, but am thrilled with each accomplishment. I have found peace in learning to accept that this is the “new” me. It just is what it is. I do my best to stay positive and do my water exercises. I used to be super depressed and verbally beat myself up all the time. This site has also helped me. Lots of good suggestions and there is comfort in knowing I am not alone. We are all struggling. Some days are better than others. But keep strong. Try to accept new limitations, but forge ahead on things you CAN do. You are in my prayers.

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@elkcg

Hi my name is Laura and I’ve lived with chronic pain since 2002. I have small fiber neuropathy, fibromyalgia, PTSD, and the list goes on and on! I’ve tried all sorts of medicines and treatments. Before I got hurt I only weighted 150 and now I’m up to 270 and I’m thinking of getting gastric sleeve surgery. I’m so tired of being in pain everyday

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I haven’t spoken to the doctors that would do my weight loss surgery. My neurologist gave me the name of a great surgeon. I went online and I’m in the process of filling out the huge amounts of paper.

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This forum is great. I am getting so much help and no loneger feel alone

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@nelsonpowell

I am nelsonpowell,constant pain all day iwant to know if anyone has had a wire inserted in ther back forpain

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I got the schedule today for the stimulator implant, July 19. Can’t wait!

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@elkcg

Hi my name is Laura and I’ve lived with chronic pain since 2002. I have small fiber neuropathy, fibromyalgia, PTSD, and the list goes on and on! I’ve tried all sorts of medicines and treatments. Before I got hurt I only weighted 150 and now I’m up to 270 and I’m thinking of getting gastric sleeve surgery. I’m so tired of being in pain everyday

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@elkcg

Your med list reads like mine. It’s surely frustrating trying to find the right combination. I’ve been seeing therapists for 15 years for depression, PTSD, anxiety disorder, panic attacks, and suicidal ideation, as well as chronic pain from idiopathic peripheral neuropathy. We keep going and searching for what will help us.

Jim

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@nelsonpowell

I am nelsonpowell,constant pain all day iwant to know if anyone has had a wire inserted in ther back forpain

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That’s great news Jim! Hoping it works for you.
John

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@elkcg

Hi my name is Laura and I’ve lived with chronic pain since 2002. I have small fiber neuropathy, fibromyalgia, PTSD, and the list goes on and on! I’ve tried all sorts of medicines and treatments. Before I got hurt I only weighted 150 and now I’m up to 270 and I’m thinking of getting gastric sleeve surgery. I’m so tired of being in pain everyday

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@elkcg Laura, if I can answer any questions on weight loss surgery, let me know.

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@mikween

Has anyone ever heard of The Institute for Advanced Reconstruction in New Jersey? They are claiming. that they can fix people with foot drop if it has not been to long. I would appreciates anyone’s input. Thanks

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Hi @mikween and John @johnbishop I also like to search on Vitals and LifeScripts for doctor reviews by patients. I find using the three of them gives a fairly good representation of the doctor.
Jen

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@mikween

Has anyone ever heard of The Institute for Advanced Reconstruction in New Jersey? They are claiming. that they can fix people with foot drop if it has not been to long. I would appreciates anyone’s input. Thanks

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That’s even better!
http://www.vitals.com/
http://www.lifescript.com/
Thanks Jen!

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@nelsonpowell

I am nelsonpowell,constant pain all day iwant to know if anyone has had a wire inserted in ther back forpain

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@jimhd Wishing you well on 7/19 and praying for you. Teresa

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@mikween

Has anyone ever heard of The Institute for Advanced Reconstruction in New Jersey? They are claiming. that they can fix people with foot drop if it has not been to long. I would appreciates anyone’s input. Thanks

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@johnbishop

Thanks for the links. It’s always a little scary for me to walk into a doctor’s office cold.

Jim

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I’ve posted before and I thought I’d introduced myself but I will again. I’m also Jen, I have many broken bones from two accidents that I’ve had surgeries to repair them. I also have fibromyalgia and a cyst on my lower spine S2 called a Tarlov cyst. All of these things cause me a great amount of pain. I manage life fairly well even with all of these things. It seems like everyone else has much worse things to deal with so I shouldn’t complain.
Take care!!
Jen

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@nelsonpowell

I am nelsonpowell,constant pain all day iwant to know if anyone has had a wire inserted in ther back forpain

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Congratulations Jim!
Praying that it all goes well.
Keep us posted.

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