Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

froggy1 | @froggy1 | Apr 12, 2021

Would like to connect to Arachnoiditis support group if possible

Erika | @erikas | Apr 12, 2021

In reply to @froggy1 "Would like to connect to Arachnoiditis support group if possible" + (show)

@froggy1 Welcome to Mayo Clinic Connect.

Below I have linked a recent discussion related to arachnoiditis. Members like @pjf @carolinapearl53 @jelizabeth @larauen have recently discussed the topic and may be able to offer support. You may wish to scroll through the past comments and connect with other members as well.

-Arachnoiditis https://connect.mayoclinic.org/discussion/arachnoiditis-2/

Jim, Volunteer Mentor | @jimhd | Apr 12, 2021

In reply to @ken82 "@jimhd Prednisone can have very bad side effects on bones and teeth.. particularly the jaw bone....." + (show)

Thank you, @ken8

Jim, Volunteer Mentor | @jimhd | Apr 12, 2021

In reply to @jenatsky "If morphine sulphate works to relieve your pain find a pain doc who will prescribe you..." + (show)

@jenatsky I don't know why I would stop taking one opioid and start another. I'm not addicted to mscontin, so I don't need a medication to stop taking it, which is the most common reason for taking buprenorphine. I see that it's also prescribed for acute and chronic pain.

I'm going to be seeing a surgeon about a DRG trial, which could be more effective than the spinal cord stimulator I have now.

@lorirenee1 How great that you found something to treat your neuropathy symptoms. I've added it to my list of things to discuss with the doctor, along with buprenorphine. These days, the arthritis pain in my hands is almost as bad as the neuropathy pain, mainly because I'm doing a lot of sanding and working on my tractor. Today I painted the engine Ford Red, with a special high heat paint. It was a real chore to work with the paint. Tomorrow I'm going to finish wiping down the back of it and start priming the tractor and front loader. I just keep going a day at a time.

Kevin adjusted the SCS Thursday, and it made a big difference. My pain level went down from 7-9 to 3-5, but it goes up in the evening when I put my feet up in the recliner or go to bed. I'm grateful for the team of doctors and other medical professionals who care for me.

Jim

Jim, Volunteer Mentor | @jimhd | Apr 12, 2021

In reply to @jenatsky "If morphine sulphate works to relieve your pain find a pain doc who will prescribe you..." + (show)

@jenatsky I've been seeing a pain specialist for more than 5 years, and he's had me try a really long list of medications. Some did nothing, some worked for a while but couldn't keep up with my increasing pain level, and others had unacceptable side effects. He won't have anything to do with opioids and gives me the same spiel about "opioids are not painkillers". I've discussed with him going to the pain clinic at OHSU this spring, somewhat depending on the Covid19 numbers in the Portland area. I'm also considering finding a new pain specialist. So, for now, I'm just going to continue with current meds until a few other things happen.

Thank you for telling me about buprenorphine.

Jim

jenatsky | @jenatsky | Apr 13, 2021

In reply to @jimhd "@jenatsky I don't know why I would stop taking one opioid and start another. I'm not..." + (show)

You're viewing buprenorphine from its original purpose. It is now being used instead of narcotic antagonists. Buprenorphine does not effect our bodies in the same way, different receptors. I feel a whole lot better using it instead of MS. Good luck with your DRG trial, hope it has the desired effect.

jenatsky | @jenatsky | Apr 13, 2021

In reply to @jimhd "@jenatsky I've been seeing a pain specialist for more than 5 years, and he's had me..." + (show)

We as a group of long haul pain sufferers go thru this process periodically as our bodies break down further. Our pain increases and we require additional somethings to help us cope. Keep us informed as you journey and good luck.
https://www.jpsmjournal.com/article/S0885-3924(04)00566-4/fulltext

olaf49 | @olaf49 | Apr 15, 2021

Hello. Olaf49 here. New to this site. Chronic Pain Sufferer of 46 years. I have benefited from having been able to receive help from a Chronic Pain Clinic in Calgary Alberta Canada. I'm 61 years old and I would like to be of help to other Chronic Pain Sufferers who may be able to benefit from someone who has coped with this for most of my life.

olaf49 | @olaf49 | Apr 15, 2021

In reply to @olaf49 "Hello. Olaf49 here. New to this site. Chronic Pain Sufferer of 46 years. I have benefited..." + (show)

I have Scoliosis, and two lateral curves in my spine; one between my shoulder blades and one in my lower back. I woke up one morning in 1975 with back pain that never went away. I tried to get help but basically was told it was all in my head. My parents bought into this and being an only child without support I convinced myself that for some reason I was here to suffer and determined to live life to the fullest for as long as I could. My back pain never prevented me from doing anything, but the way I was initially attended to I developed a very negative attitude in regards to the Medical Profession and accumulated multiple chronic injuries over the years from participating in sports, extreme outdoor activities, repetitive movement injuries from hard labor and sometimes being a complete idiot. I rarely got injuries looked at and when I did I usually ignored medical advice. So, now besides chronic back pain I have also multiple chronic injuries from head to foot.