Chronic Pain members - Welcome, please introduce yourself

Thanks, @johnbishop for the reply and other connections. Just started the Mayo's PRP process. Must get my physician to do the referral process. Not expecting immediate approval, since it's a huge nation-world-wide program, live about 6 hours away from Rochester.

thanks again,

Welcome @gcranor. Wow, eight back surgeries. I can imagine you are concerned about the testing for ALS. When will you know more?

@michelles74, I can imagine that you feel defeated. Managing back pain and now breast cancer. Have you reached out to a social worker at you cancer center? Learn more about oncology social workers in this blog post:
- How an Oncology Social Worker Can Help https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/how-an-oncology-social-worker-can-help/

I wonder if they might help coordinate pain management care and help you feel heard.

Gcranor and Michelle, you both may be interested in joining the discussions in the Spine Health group here: https://connect.mayoclinic.org/group/spine-health/

I am a disabled veteran and the using VA; it takes months to get all the doctors to work together and the test completed. It may take another three months to get all the test done. I am going to keep doing what make happy and just keep fighting the pain and adjust for the muscle weakness.

Yes. My social worker is great.

Hi Maggie and I can’t remember the last time I had a pain-free day. I am so tired and uncomfortable all the time. I just got a colostomy bag because my Crohn’s disease destroyed my intestines, rectum and anus. I applied for disability in 2019 and because of Covid I still haven’t heard if I am eligible or not. I try my best to have a positive attitude about everything but sometimes it is so hard.

Praying for you. God be with you. Do you have an attorney regarding the disability? I have heard it is hard to get without an attorney; a good attorney would take only a small percentage of your back-pay, I think.

My name is Smitty, and I am interested in this group since I suffer from chronic pain/discomfort from what doctors think is a damaged femoral nerve in my back or hip.

Hello @mamouson and welcome to Mayo Clinic Connect. How long have you been living with your pain and have you been diagnosed with a nerve condition/issue? What are you doing to deal with your pain?

Hello @amandajro in 2019 I was diagnosed with a pseudo tumor that had formed around a failed hip implant, causing metallosis. The surgeon replaced the metal implant with a nonmetal component, and removed most of the large pseudo tumor. The tumor may have impacted the femoral nerve which causes the pain and neuropathy in my legs. They aren’t really sure.

Hello

I have had migraines since I was 8 years old. The hormonal ones were the worst and I have tried every treatment imaginable. I’m older now and don’t have the classic migraine with the hammer inside your head and extreme sensitivity to light and sound. However, it feels like my head is in a vice-grip, 90% of the time. Has anyone experienced this and, if so, did you ever find a solution?
Thank you
Francine