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@sunnyflower

The pain specialist I've been seeing for several years isn't an opiophobe, but he is certainly an " opioids don't treat neuropathy pain" doctor. He doesn't try to make me stop taking them, though it's pretty clear to me that he doesn't like it. But then, nothing he's had me try has worked, and we've tried a LOT of medications.

Today, I put a coat of deck stain on the railing I built yesterday, and did some yard work preparatory to winter's arrival. With the adjustment of my scs, down one notch from where the rep set it, my pain level is down a notch as well. Of course, it takes a couple of days to know. Sitting with my feet on the ottoman, it's down to 7 - better than 9, for sure.

Looking online for a pain management doctor who isn't afraid to include opioids in the treatments he offers, I found one who was an anesthesiologist for a long time before changing direction to opening a pain clinic. He had a life changing accident that resulted in severe chronic pain, and decided to return to college to train for treating others who are living with the level of pain he lives with. I'm going to call his clinic tomorrow to see if they could help me more than my current doctors are. Their website doesn't mention pain pumps, but who knows. Maybe he would give me unbiased information, being a relative newcomer.

Jim

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The weather is still not cooperating. We haven’t had a nice clear day in 5 days. We’ve been at 95% or higher humidity and only 35-40 degree temperatures, much lower at night. It’s making my osteoarthritis in my knee, shoulders and hips flare as well as my CRPS. I’ve been spared a migraine so far. I’ll probably get nailed with one of those when the barometric pressure starts to rise and this crap moves out of here.
I’m trying to start a new book but I can’t concentrate on anything but the pain in my legs. Feels like they are being squeezed in a vice, at the same time someone is beating me with a baseball bat and I’m standing in a slushy, icy mountain lake.

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@sunnyflower

The pain specialist I've been seeing for several years isn't an opiophobe, but he is certainly an " opioids don't treat neuropathy pain" doctor. He doesn't try to make me stop taking them, though it's pretty clear to me that he doesn't like it. But then, nothing he's had me try has worked, and we've tried a LOT of medications.

Today, I put a coat of deck stain on the railing I built yesterday, and did some yard work preparatory to winter's arrival. With the adjustment of my scs, down one notch from where the rep set it, my pain level is down a notch as well. Of course, it takes a couple of days to know. Sitting with my feet on the ottoman, it's down to 7 - better than 9, for sure.

Looking online for a pain management doctor who isn't afraid to include opioids in the treatments he offers, I found one who was an anesthesiologist for a long time before changing direction to opening a pain clinic. He had a life changing accident that resulted in severe chronic pain, and decided to return to college to train for treating others who are living with the level of pain he lives with. I'm going to call his clinic tomorrow to see if they could help me more than my current doctors are. Their website doesn't mention pain pumps, but who knows. Maybe he would give me unbiased information, being a relative newcomer.

Jim

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@jimhd @faithwalker007 @lorirenee1 @sunnyflower

Please indulge me for a few random thoughts about the posts I have been reading here today:

Jim, I hope this new pain guy is located close to you, like in Bend. Let's hope he becomes the golden ticket you have been seeking, i.e. a normal good guy who will just prescribe what you need. Fingers crossed 🤞.

Renee, you have lived through hell with what you have faced. The fact that you have been so helpful to others on this site is a testament to how much you care for your fellow human beings. I find inhabiting this forum to be a very inspiring experience because of people like yourself.

Lori, you simply channel compassion. I think of all the huge and wonderful hearts I have come to know on Connect, yours might be the hugest. Such a sweet and loving compassion that you share with everybody who comes along here.

Sunny, I am glad you are here. When I saw your first post way back in May or so, I knew immediately that you were a very special person. For starters I had never, until that day, known someone who could have so many things wrong with them and still be functioanally literate. And yet, you are more than that. You are an articulate, highly intelligent, funny and warm lady. I love reading what you have to say, anywhere you say it. I'm sorry you are not appreciated enough by your family, but you are definitely appreciated here!

Sorry, I just wanted to tell each of you how much I appreciate knowing you all here. Best, Hank

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@sunnyflower It hurt you that your daughters alluded that, "they did not want to enable" you and caused resentment between the three of you.

You are carrying heavy emotional burdens that I imagine a therapist could help you sort through. I'm not sure where your daughters are coming from. For now I'll give them the benefit of the doubt and say that there may be a misunderstanding or that it is easier for them to blame you for your illness than deal with the grief of your diminished quality of life. A therapist may also be able to mediate between you and your daughters and help clear up any misunderstandings.

I'm wondering if you'd consider seeing a therapist virtually?

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@jimhd @faithwalker007 @lorirenee1 @sunnyflower

Please indulge me for a few random thoughts about the posts I have been reading here today:

Jim, I hope this new pain guy is located close to you, like in Bend. Let's hope he becomes the golden ticket you have been seeking, i.e. a normal good guy who will just prescribe what you need. Fingers crossed 🤞.

Renee, you have lived through hell with what you have faced. The fact that you have been so helpful to others on this site is a testament to how much you care for your fellow human beings. I find inhabiting this forum to be a very inspiring experience because of people like yourself.

Lori, you simply channel compassion. I think of all the huge and wonderful hearts I have come to know on Connect, yours might be the hugest. Such a sweet and loving compassion that you share with everybody who comes along here.

Sunny, I am glad you are here. When I saw your first post way back in May or so, I knew immediately that you were a very special person. For starters I had never, until that day, known someone who could have so many things wrong with them and still be functioanally literate. And yet, you are more than that. You are an articulate, highly intelligent, funny and warm lady. I love reading what you have to say, anywhere you say it. I'm sorry you are not appreciated enough by your family, but you are definitely appreciated here!

Sorry, I just wanted to tell each of you how much I appreciate knowing you all here. Best, Hank

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Oh Renee, this breaks my heart!!! Please know you are in my heart and prayers. Sunnyflower 🙏🌹

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Thx Lori. My heart aches so much about this. It keeps me awake at night. I have tissue by my bedside bc that's a common time for the tears to roll.
My kids tell me they love me and say incredible, meaningful things in cards but you're right, what will it take?
To be fair, they have huge hearts and servant hearts but are extremely busy with their large families. At the same time, they are always serving others. I think they rest on the fact that I have such a good husband. Plus, I do not like to ask for help. I do not want to be a burden.

My daughter who has adopted four of their foster children and is about to adopt a fifth, a year old baby that has been with us since birth, also works two jobs from home. A great mother. Overly busy. Same with my younger daughter. 5 kids, overcommitted life. My sons would help some, were I to ask but are so busy too.

I agree with you and realize that I am excusing them, probably because it hurts too much to admit the truth.

I appreciate your kind thoughts and words. Blessings, Sunny

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@faithwalker I am crying here. Your pain has made me so sad. I feel so for you. I just don't get this life of ours. I am just so sorry, Renee. Lori Renee

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