Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@philio66

Thanks Justin. I have reached the point that was predicted a few years ago, that eventually opiates lose their effectiveness the longer they are used. That is exactly where I am right now. I am going to do research for medical marijuana. Minnesota has approved it’s use but I am not sure who to contact. The article I read said that your doctor will not prescribe it and it seems that you must be an “extreme” case to be able to get it. Thank you for this site.

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I too went to Colorado to try medical Marijuana. I didn't realize that it put everything in violation of my pain contract, and I was lucky to be "allowed" to remain at the pain clinic. Make sure all your medical providers sign on for your experiment, or they may drop you as a patient. I feel sometimes like the medical profession is doing all it can to set up roadblocks to properly treat our chronic pain, as if we choose pain so that we can feed our habit of opiates. I am truly glad for you that your doctor is on board with you. I wish I could find similar support.Laurie Demit Rusin

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What do you mean by violating your contract? Fid you go through a pain rehabilitation program?

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Hi Everyone I’m Paul

Have posthepetic neurolgia for almost 3 yrs. Three months ago they implanted a spinal cord stimulator
in me which did take some pain away. I’m not being off fentanyl 75 mg down to 12 mg. Last
few weeks been getting night pain that drives me up a wall, usually goes away around 4 am.

Call my pain dr, he told me call the reps from Nevro well I need help now, he said no more meds for you.

I tried to change the program of the stimulator to no prevail ( I get More pain). Seems to me I’m a cash cow
for my pain dr, well I got another appt. with a new Dr this Saturday.

wish I didint have to take any meds but I need sleep, my family gave me something didnt work so Ill suffer till
Saturday.

This is my story I only hope they find a real cure for this and we all stop suffering.

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@paulbklyn

Hi Everyone I’m Paul

Have posthepetic neurolgia for almost 3 yrs. Three months ago they implanted a spinal cord stimulator
in me which did take some pain away. I’m not being off fentanyl 75 mg down to 12 mg. Last
few weeks been getting night pain that drives me up a wall, usually goes away around 4 am.

Call my pain dr, he told me call the reps from Nevro well I need help now, he said no more meds for you.

I tried to change the program of the stimulator to no prevail ( I get More pain). Seems to me I’m a cash cow
for my pain dr, well I got another appt. with a new Dr this Saturday.

wish I didint have to take any meds but I need sleep, my family gave me something didnt work so Ill suffer till
Saturday.

This is my story I only hope they find a real cure for this and we all stop suffering.

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Hello Paul, welcome to Connect. Thank you for taking the time to tell us a bit about yourself. I am sorry to hear you experiencing some frustrating issues regarding your posthereptic neuralgia.

You may find this discussion specifically about posthereptic neuralgia of interest, http://mayocl.in/2iiJEo7. In this discussion you can Connect with other members who can relate to what you are experiencing and provide support for one another.

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@lynettegable

What do you mean by violating your contract? Fid you go through a pain rehabilitation program?

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When I was accepted into the pain clinic about 5 years ago, I signed a standard pain contract that I would take pain meds only as prescribed. I did not realize that using medical Marijuana in a state where it is legal was prohibited by the contract. As far as the pain clinic was concerned, my indiscretion was treated as if I tested positive for heroin or another illicit street drug. At the pain clinic I receive therapeutic injections, botox, biofeedback, acupuncture, and other treatments. They work closely with my headache specialist, neurologist, and primary care physician. I take extremely small amounts of oxycodone on a weekly basis, far less than what would make me comfortable on most days. I am adamantly opposed to stopping the oxycodone without some other effective way to control my pain. After 15 years we are still looking for alternative treatments that work. I feel I have proven through my actions that I am not addicted to the medication, nor am I at risk of addiction, after 15 years of limited, low-dose usage.Laurie Demit Rusin

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@paulbklyn

Hi Everyone I’m Paul

Have posthepetic neurolgia for almost 3 yrs. Three months ago they implanted a spinal cord stimulator
in me which did take some pain away. I’m not being off fentanyl 75 mg down to 12 mg. Last
few weeks been getting night pain that drives me up a wall, usually goes away around 4 am.

Call my pain dr, he told me call the reps from Nevro well I need help now, he said no more meds for you.

I tried to change the program of the stimulator to no prevail ( I get More pain). Seems to me I’m a cash cow
for my pain dr, well I got another appt. with a new Dr this Saturday.

wish I didint have to take any meds but I need sleep, my family gave me something didnt work so Ill suffer till
Saturday.

This is my story I only hope they find a real cure for this and we all stop suffering.

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They tried to push the spinal stimulator on me as well. I didn’t like what I read in the disclaimer. My friend had one implanted and it took away about 50% of his back pain. He is “so so” on using it. I think Medtronic makes a good living on it as well as the doctor.

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Think the Drs getting kickbacks they’re to eager to use this machine, then hand you off to
the Reps. I have my Nevro almost 4 months

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@paulbklyn

Think the Drs getting kickbacks they’re to eager to use this machine, then hand you off to
the Reps. I have my Nevro almost 4 months

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I believe your statement. When I was referred by my doctor to the pain clinic in Fargo, there was no other discussion other than the implant. No conversation about medications or a morphine pump that the same company manufactured. They were eager to attach the “trial” run on me, but I declined. You take care sir.

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@paulbklyn

Think the Drs getting kickbacks they’re to eager to use this machine, then hand you off to
the Reps. I have my Nevro almost 4 months

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Feel Better

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My name is Gail, I’m 68 years old, and i have lived my entire adult life with chronic back pain. I just had a back surgery (12/22/16) to cut off and remove the part of my L5-S1 disc that was pressing on my spinal column causing acute pain on my left side. It’s good to have a forum for discussion.

Liked by jewel8888

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@lynettegable

What do you mean by violating your contract? Fid you go through a pain rehabilitation program?

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I see a pain doctor at St. Judes in Southern California, for my lumbar pain. I had used marijuana for my lumbar pain, previous to my diagnosis of disc issues that need surgery, so i told him. He told me that he could not treat my pain legally if i ever use marijuana again. Medical marijuana is legal in California, however since marijuana is illegal at the Federal level, doctors are precluded from prescribing pain drugs to patients who use illegal drugs. Of course I have not used marijuana since then. He said he will drug test me periodically and if marijuana use is detected, I will have violated the contract the clinic has with me, and he won’t treat my pain. I only want pain relief so i am following his instructions.

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Hi Gail, im glad you joined, it helps to talk to others having similar problems. I joined a month ago abd the support abd caring members has made a great imoact on me feeling better.

I had a fusion in 2001 on my L5-S1 abd a neck fusion in 2014. It takes time to heal and the physical therapy is worth it.

Sending my best wishes you arent in too much pain,
Julie

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@gailb

My name is Gail, I’m 68 years old, and i have lived my entire adult life with chronic back pain. I just had a back surgery (12/22/16) to cut off and remove the part of my L5-S1 disc that was pressing on my spinal column causing acute pain on my left side. It’s good to have a forum for discussion.

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Welcome to Connect @gailb I’m glad you reached out on this forum. I have had chronic neck pain for more nearly 25 years. My doctors say fusion on C3-C4 will mean a year or so of possible relief but then I would need C2 and C5 done also. Odds are 50/50 that it would help the pain, so I’m waiting a bit longer. Have you had relief from the surgery?

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@lynettegable

What do you mean by violating your contract? Fid you go through a pain rehabilitation program?

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Hi @gailb, thank you for jumping right in to conversations and sharing more about your struggles and management of back pain with other members on Connect. You may find the following discussion regarding pain medications vs. medical marijuana of interest. In this group, you will meet other members who are experiencing the same issues regarding a pain clinic contract and the use of medical marijuana.

– Chronic Pain and Medical Marijuana, http://mayocl.in/2c2i9Hx
– Dosage for medical marijuana vs. hydrocodone, http://mayocl.in/2kp0ZJx

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Actually, I’m new here and I’m not sure I signed up correctly. I also didn’t give a very complete description of all the issues I’m dealing with. The MRI they did showed a compression fracture at the C7 in my neck, a herniated disc at my L4, pressing on my right side sciatic nerve, the L5-S1 pressing on my sciatic nerve affecting my left side with acute pain several times over the years.

On December 22, 2016, I had outpatient surgery for the L5-S1 problem and have had immediate relief. I will start on Physical Therapy in February. I am very happy with the results of the surgery. However, I have had chronic pain from my sciatic nerve on the right side since March, 2016. It awakens me every night 1 to 3 times. Sometimes i want to cry or scream the pain is so bad. I can’t walk far or stand for any length of time, go up steps, etc. due to the pain. My doctor’s only been treating the pain, until the MRI was done for my left side acute episode. Now they said they need to do a major surgery to insert rods and pins to fix the problem on my L4, which is out of alignment 7.3 mm. Im good with this because the outpatient surgery was so successful. At my last appointment I saw a new PA in my surgeon’s office (My usual PA is on maternity leave.) who wants to give me steroids first and see how I do. I have had a year of constant pain, and I really don’t want to go through the shots in my spine. My regular PA had recommended the surgery. Both my older brothers have had the same problems–it’s a genetic issue–and they ended up with the surgery. Is it reasonable for me to ask them to just do the surgery that is inevitable? And, how long after my current surgery should I wait? How long does recovery from the major surgery take?

Last, I am very concerned that the new administration will cut Medicare coverage, without which I will be unable to pay for this surgery. Thanks for any information you can give me.

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