Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@lyssia

It's nice to know that other pain sufferers feel as I do. I do not want the insurance companies or government telling my doctor or me (a responsible drug user) what I can or can not use to help my situation. I have a really good pain management doctor for several years now and between the pain medication (use only occasionally right now) injections (upper back trigger point and cervical facet joint steroid) acupuncture, tens, exercise, supplements, meditation practice for me he also has other things as appropriate for the person. I find that this subject of not wanting the doctors to prescribe pain medications to anyone, the insurance companies wanting other medications to be used (that may or may not work or have more side effects) and the government looking at punishing the doctors for prescribing or limiting what amounts can be given to be on my mind a lot. I am at a place at this time where the combination of everything that I use is working pretty good for me and I don't want to go back to where I was in the beginning because of the drug abusers. I don't think that the responsible doctors should not be bunched in with those that are handing out pain meds indiscriminately for a profit. Thanks for letting me vent. : )

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Dear jlfisher---thanks for the vital information you posted. I gathered info about the OSHER Center, which I was happy to find located one block from my medical plan---Kaiser. I couldn't find info on Dr Andrew Gross. PLEASE POST CONTACT INFO for my follow-up endeavors.
I've been with Mayo "Chat" just a few months and learned so many remedies to try with Fibromyalgia. I'm astounded and bewildered that my Kaiser doctor has offered no concrete recommendations for treatment, care, or alleviation of my discomfort and pain. Several years ago during my "annual" visit, I told him I was barely coping with it all. He just looked at me and said nothing ---(my 40 minutes must have been up)............So, I guess I'm on my own to heal myself, my $1000/monthly membership fee notwithstanding.

Jeanne

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He l Kelsy ,I don't Think I introduced myself Lioness I have fibromyalgia for 30 yrs. Since 2005 chronic pain from fractured back.I'm LPN retired ,35,yrs.I have aloft knowledge I,d .like to share

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@virtuous69

Victorious69 Hello group. Not been on Mayo Connect for some time, but I want to start a discussion on this year's flu shot. Not sure which group I should pop into. I know that no one is to give medical advise as to whether or not to get this years flu shot. I never get a flu shot, because I have Fibromyalgia and my body would attempt to attack my body overkill. I'm just asking your personal experience and how you came by your decision OK?
The CDC and the media are making a massive plea to get flu shots while there is still time. Death tolls are rising, and this is a particularly dangerous strain. I research and this is what I know and why I;m asking your experience: My husband and I are flying sometime in February (peak season for the flu) a one hour flight with friends from San Jose to North Los Vegas. . I also know that some componets like mercury may stay in your body and some vaccines do not contain any mercury. The deaths of two healthy victims in California got the flu shot and died anyway. CDC says only vaccine is only 30 percent down to maybe 10 percent effective against the 3 strains H1N1 and others and may help to make the influenza less dangerous. Being on a plane load of people and virus germs that can live forever on the back of the plane seat cushions, leaves me feeling not very brave.
I am 70 years old this month, have Fibromyalgia, CSF( Epstein Barr) among other ailments. I choose not to get the flu shot as I have believed it would cause my overactive immune system to do just that: overreact. My doctor leaves the decision up to me.
Some neighbors and friends did get the flu shot and got very sick anyway. One couple flew by plane to India over Christmas vacation 16+ hours in not the best circulated air on plane.Husband got the flu shot and got very sick anyway going to India. And got it again flying back. The wife did not take the flu shot and did not get the flu from her husband, Normally I would not be concerned: I am prone to bronchitis every other year or so and take an inhaler for ashma during allergy season. Cough continues for 3 months. I only got two bad flus: in my life:, the Spanish Flu,and the swine flu. Thought I would never stop throwing up. CDC now says that breath molecules can travel through the air just by breathing:not even propelled by a cough or sneeze. Ain;t that encouraging. 🙁
So what has been your expererince so far and how you came by your decision.? I will probably wear a mask on the plane and at the casino where we'll go to have a special dinner .for my birthday. Sorry question is so long..........

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Be careful with all your conditions think hard about it.Mask of course.Maybe there's other preventions you can take .Your Dr.Will be able to help you.

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@lyssia

It's nice to know that other pain sufferers feel as I do. I do not want the insurance companies or government telling my doctor or me (a responsible drug user) what I can or can not use to help my situation. I have a really good pain management doctor for several years now and between the pain medication (use only occasionally right now) injections (upper back trigger point and cervical facet joint steroid) acupuncture, tens, exercise, supplements, meditation practice for me he also has other things as appropriate for the person. I find that this subject of not wanting the doctors to prescribe pain medications to anyone, the insurance companies wanting other medications to be used (that may or may not work or have more side effects) and the government looking at punishing the doctors for prescribing or limiting what amounts can be given to be on my mind a lot. I am at a place at this time where the combination of everything that I use is working pretty good for me and I don't want to go back to where I was in the beginning because of the drug abusers. I don't think that the responsible doctors should not be bunched in with those that are handing out pain meds indiscriminately for a profit. Thanks for letting me vent. : )

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Thanks for the information about this site I will look into it .Where in Pa.? I lived in the Pittsburgh area ,now in Calif.

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@lyssia

It's nice to know that other pain sufferers feel as I do. I do not want the insurance companies or government telling my doctor or me (a responsible drug user) what I can or can not use to help my situation. I have a really good pain management doctor for several years now and between the pain medication (use only occasionally right now) injections (upper back trigger point and cervical facet joint steroid) acupuncture, tens, exercise, supplements, meditation practice for me he also has other things as appropriate for the person. I find that this subject of not wanting the doctors to prescribe pain medications to anyone, the insurance companies wanting other medications to be used (that may or may not work or have more side effects) and the government looking at punishing the doctors for prescribing or limiting what amounts can be given to be on my mind a lot. I am at a place at this time where the combination of everything that I use is working pretty good for me and I don't want to go back to where I was in the beginning because of the drug abusers. I don't think that the responsible doctors should not be bunched in with those that are handing out pain meds indiscriminately for a profit. Thanks for letting me vent. : )

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Jeanne,Lioness here for the past 30 yrs I've been fighting this ,mines pretty well under control now but Dr.,s,think this is in our heads ,it's been just recently some Dr,s,believe us now Rheumatologist Dr,s do.

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@virtuous69

Victorious69 Hello group. Not been on Mayo Connect for some time, but I want to start a discussion on this year's flu shot. Not sure which group I should pop into. I know that no one is to give medical advise as to whether or not to get this years flu shot. I never get a flu shot, because I have Fibromyalgia and my body would attempt to attack my body overkill. I'm just asking your personal experience and how you came by your decision OK?
The CDC and the media are making a massive plea to get flu shots while there is still time. Death tolls are rising, and this is a particularly dangerous strain. I research and this is what I know and why I;m asking your experience: My husband and I are flying sometime in February (peak season for the flu) a one hour flight with friends from San Jose to North Los Vegas. . I also know that some componets like mercury may stay in your body and some vaccines do not contain any mercury. The deaths of two healthy victims in California got the flu shot and died anyway. CDC says only vaccine is only 30 percent down to maybe 10 percent effective against the 3 strains H1N1 and others and may help to make the influenza less dangerous. Being on a plane load of people and virus germs that can live forever on the back of the plane seat cushions, leaves me feeling not very brave.
I am 70 years old this month, have Fibromyalgia, CSF( Epstein Barr) among other ailments. I choose not to get the flu shot as I have believed it would cause my overactive immune system to do just that: overreact. My doctor leaves the decision up to me.
Some neighbors and friends did get the flu shot and got very sick anyway. One couple flew by plane to India over Christmas vacation 16+ hours in not the best circulated air on plane.Husband got the flu shot and got very sick anyway going to India. And got it again flying back. The wife did not take the flu shot and did not get the flu from her husband, Normally I would not be concerned: I am prone to bronchitis every other year or so and take an inhaler for ashma during allergy season. Cough continues for 3 months. I only got two bad flus: in my life:, the Spanish Flu,and the swine flu. Thought I would never stop throwing up. CDC now says that breath molecules can travel through the air just by breathing:not even propelled by a cough or sneeze. Ain;t that encouraging. 🙁
So what has been your expererince so far and how you came by your decision.? I will probably wear a mask on the plane and at the casino where we'll go to have a special dinner .for my birthday. Sorry question is so long..........

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Dear virtuous69---re. your post about FLU SHOTS and your evident anxiety over the issue of vaccination: I'm 78 and have heard all the alarm about this since the Swine Flu scare, et al. My experience? I've gotten vaccinated every year since the vaccine has been available and have yet to experience any harmful effects. I have Fibromyalgia, OA, Gall Bladder DX, Hernia, Depression, and much more. Flu shots have not had any effect on my numerous medical problems. Therefore, I'm pleased to have received protection with my yearly Flu Shot..................................I hope my experience gives you some peace and quietude.

Kind regards, Jeanne

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@lyssia

It's nice to know that other pain sufferers feel as I do. I do not want the insurance companies or government telling my doctor or me (a responsible drug user) what I can or can not use to help my situation. I have a really good pain management doctor for several years now and between the pain medication (use only occasionally right now) injections (upper back trigger point and cervical facet joint steroid) acupuncture, tens, exercise, supplements, meditation practice for me he also has other things as appropriate for the person. I find that this subject of not wanting the doctors to prescribe pain medications to anyone, the insurance companies wanting other medications to be used (that may or may not work or have more side effects) and the government looking at punishing the doctors for prescribing or limiting what amounts can be given to be on my mind a lot. I am at a place at this time where the combination of everything that I use is working pretty good for me and I don't want to go back to where I was in the beginning because of the drug abusers. I don't think that the responsible doctors should not be bunched in with those that are handing out pain meds indiscriminately for a profit. Thanks for letting me vent. : )

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ADDENDUM TO MY (jeans') POST ABOUT THE OSHER CENTER FOR INTEGRATIVE MEDICINE/SAN FRANCISCO, CA:

I want to add information about a repeat PBS program (CD & BooK) called "Forever Painless, End Chronic Pain and Reclaim Your Life In 30 Minutes A Day" by Miranda Esmonde-White. This is NOT just another excercise program. The philosophy she presents is comprehensive and common sense and based upon the latest research into chronic musculoskeletal pain. Yes, I'm a believer after watching the program and hearing what several participants had to say about their experience with the regimen. Please look into this program and see what you think.

Jeanne

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@virtuous69

Victorious69 Hello group. Not been on Mayo Connect for some time, but I want to start a discussion on this year's flu shot. Not sure which group I should pop into. I know that no one is to give medical advise as to whether or not to get this years flu shot. I never get a flu shot, because I have Fibromyalgia and my body would attempt to attack my body overkill. I'm just asking your personal experience and how you came by your decision OK?
The CDC and the media are making a massive plea to get flu shots while there is still time. Death tolls are rising, and this is a particularly dangerous strain. I research and this is what I know and why I;m asking your experience: My husband and I are flying sometime in February (peak season for the flu) a one hour flight with friends from San Jose to North Los Vegas. . I also know that some componets like mercury may stay in your body and some vaccines do not contain any mercury. The deaths of two healthy victims in California got the flu shot and died anyway. CDC says only vaccine is only 30 percent down to maybe 10 percent effective against the 3 strains H1N1 and others and may help to make the influenza less dangerous. Being on a plane load of people and virus germs that can live forever on the back of the plane seat cushions, leaves me feeling not very brave.
I am 70 years old this month, have Fibromyalgia, CSF( Epstein Barr) among other ailments. I choose not to get the flu shot as I have believed it would cause my overactive immune system to do just that: overreact. My doctor leaves the decision up to me.
Some neighbors and friends did get the flu shot and got very sick anyway. One couple flew by plane to India over Christmas vacation 16+ hours in not the best circulated air on plane.Husband got the flu shot and got very sick anyway going to India. And got it again flying back. The wife did not take the flu shot and did not get the flu from her husband, Normally I would not be concerned: I am prone to bronchitis every other year or so and take an inhaler for ashma during allergy season. Cough continues for 3 months. I only got two bad flus: in my life:, the Spanish Flu,and the swine flu. Thought I would never stop throwing up. CDC now says that breath molecules can travel through the air just by breathing:not even propelled by a cough or sneeze. Ain;t that encouraging. 🙁
So what has been your expererince so far and how you came by your decision.? I will probably wear a mask on the plane and at the casino where we'll go to have a special dinner .for my birthday. Sorry question is so long..........

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Hello @virtuous69 -- I ran across an old discussion on vaccines on the link below and it may be a great place to get more input. I had similar concerns and asked a few questions and received some good answers.

Vital Vaccines - Mayo Clinic:
-- https://connect.mayoclinic.org/discussion/vital-vaccinations-mayo-clinic/bookmark/?ajax_hook=action&_wpnonce=029bdcf6fa

John

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@lyssia

It's nice to know that other pain sufferers feel as I do. I do not want the insurance companies or government telling my doctor or me (a responsible drug user) what I can or can not use to help my situation. I have a really good pain management doctor for several years now and between the pain medication (use only occasionally right now) injections (upper back trigger point and cervical facet joint steroid) acupuncture, tens, exercise, supplements, meditation practice for me he also has other things as appropriate for the person. I find that this subject of not wanting the doctors to prescribe pain medications to anyone, the insurance companies wanting other medications to be used (that may or may not work or have more side effects) and the government looking at punishing the doctors for prescribing or limiting what amounts can be given to be on my mind a lot. I am at a place at this time where the combination of everything that I use is working pretty good for me and I don't want to go back to where I was in the beginning because of the drug abusers. I don't think that the responsible doctors should not be bunched in with those that are handing out pain meds indiscriminately for a profit. Thanks for letting me vent. : )

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I just finished listening to Dr. Gross interesting ,he brought some information I wasn't aware of Thanks I enjoyed his talk and now understand one more symptom I have is related, boy, this is a fun? Disease lol I'm goi fing to see if I can find what Jean said about the PBS program now .

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@lyssia

It's nice to know that other pain sufferers feel as I do. I do not want the insurance companies or government telling my doctor or me (a responsible drug user) what I can or can not use to help my situation. I have a really good pain management doctor for several years now and between the pain medication (use only occasionally right now) injections (upper back trigger point and cervical facet joint steroid) acupuncture, tens, exercise, supplements, meditation practice for me he also has other things as appropriate for the person. I find that this subject of not wanting the doctors to prescribe pain medications to anyone, the insurance companies wanting other medications to be used (that may or may not work or have more side effects) and the government looking at punishing the doctors for prescribing or limiting what amounts can be given to be on my mind a lot. I am at a place at this time where the combination of everything that I use is working pretty good for me and I don't want to go back to where I was in the beginning because of the drug abusers. I don't think that the responsible doctors should not be bunched in with those that are handing out pain meds indiscriminately for a profit. Thanks for letting me vent. : )

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Thanks for this info.I will see if I can find it.

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