Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@janet111

Hello….I’m Janine and feel extreamly greatful to be a member of this community. I have a story that began in 1997 and continues today, some good years and some not so good. This year has been the worst I have experienced, I don’t know if it’s my age (71) or the longer this thing has ahold of ones body the worse it gets. I have two questions I would appreciate input on. The first is does the disease get worse the longer it is in your body? And secondly I need to chat about meds with someone from AZ, we are selling our home and moving to that great dry climate. Currently I live in NC and my Dr works with a pain mgmt Dr to keep me comfortable and my Hugh fear is I will not have the same exceptional care in AZ as I do here. So glad to be here!!!

Jump to this post

Arizona is good medical. Mayo is there also. My Texas Medical is wonderful, but no curtailing the pain makes it very hard. I had two infustion in last month. They seem to help for about 3 to 4 days

REPLY
@oregongirl

I never had any problems in Arizona. Except extreme heat. You might have to curtail you outdoor time to shady days and evenings. But, do NOT move to Texas. The leaders of the government here seem to think they can control us by not having the meds we need available. Now that the Federal govt is getting involved, we are facing hard times.

Jump to this post

I'm 75 and moved to Calif for my grandson When he was younger we got really close I suffered but played with him now I can't but I have Cbd oil balm I use for trigger points really helps can you get it? I'm on Cymbalta helps me along with Tramadol.I use some homeopathic meds that help me

REPLY

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together…I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

REPLY
@parus

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together…I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

Jump to this post

Isn't it Grand when they make you feel like a criminal? I've taken one more than one doctor to task for this kind of behavior. I would not be shamed for wanting to be out of pain, I just wasn't having it. I didn't care how unpopular it made me with doctors. Those with a heart and a set of balls cared and took care of me. I don't know if they would do the same thing today with the changing situation around drugs. They can't control the attics so they beat up on the pain patients. That makes a lot of sense doesn't it?

REPLY
@parus

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together…I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

Jump to this post

@parus, so sorry you are treated like that. They just lump everyone together with the drug abusers, not right! I was laid off last year and have ended up on our Health Care market place which basically is not coverage unless I want to pay and so of course my pain doctor is not accepting the insurance. I have gone to him twice since laid off but that is not doable for the long term. I have been looking for someone new. When I signed up for the insurance there were several pain management docs on the insurance but of course now there is no one… go figure. I needed some refills on my meds, including my pain meds so I went to my primary care (have had her for 20 yrs.) and I was lucky she was able to refill them for me but she can't do the trigger point injections or my cervical facet joint injections so am suffering some and still looking to see if I can find a new pain doc. I am afraid that anyone new will not want to provide the medication though and that I will have to jump through hoops to get to even see the doc. Wish you better days ahead.

REPLY

One thing I forgot to mention about the pain pump. Drugs delivered into the spine by the pain pump, are 300 times more effective than drugs that you eat. That's what my doc says I'm not sure it's true but I would certainly buy into the idea that it's a hundred to 200 times more effective maybe three hundred times when you first start. Something to think about.

REPLY

If I ever get into pain mgt doctor, I will ask about this. The other day I had a rude lady say the doctor had to refer and more or less, don't bother us, just have the dr send us the referral. I checked with my Insurance and no referral is necessary. Maybe they are used to working with patients who do not have supplimental insurance.

REPLY
@parus

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together…I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

Jump to this post

@lyssia We do keep trying even when we may not feel like doing so. I have a couple of grand children that need a grandma that leave them with happy, positive memories. My children's father died before my son's wife was pregnant. I try to be both. I know how disappointing not having a father see his grand children.
Some days are better than others. Coming here I learn as well as feeling support and encouragement. Only place I have found that is healthy and well organized.
Yes, many times things do get lumped together. I am not adept at being assertive. Still learning. I hope things work out for you with finding another doctor.

REPLY

Hi new here. Started my journey with Fibromyalgia in 1998. Was lucky enough to get a medical retirement. Went through a bucket full of Meds and finally lost my patience and changed to a Mediterranean diet plus walking 3 miles a day, forced myself I was desperate to get my life back, I was 51. I did by some miracle get my life back that is until two years ago. My need is to find a member who lives in Az, we plan to move when the house sells. Is the anyone in the house who is from Az?

REPLY

I am on pain management and would like to know what I’m walking into. I know you all are in a painful way so I will say only that I thought it was impossible for a person to hurt so much, but I learned between fibro, arthritis and 3 back surgeries that it’s not impossible.

REPLY
@wsh66

I believe it for all over. A catheter runs up your spine and leaks out about 3 mg of Dilaudid every 24 hours. It has been about 80% affective on all my pain. It has not allowed me to walk without pain. It so much better than large doses of oral drugs. I rarely have any pain when seated or lying down. I used to have serious pain 24 hours a day. My guy is Dr. Park at MHealth in Mpls. 612-624-6666

Jump to this post

Thank you for texting and telling me about it.

REPLY

I have chronic pain in the right thigh, said to be due to, neurogenic claudication, with MRI showing DDD and no
specific therapy like, ESI is attempted, due to antiplatelet agents in the treatment of known CAD-LAD stent. I am not
able to walk for more than a minute or two, sit down for pain relief, and try to walk again. I need wheelchair for longer ambulation. This has been so. for nearly 2 years, spine surgery did not offer any help.(from India)

REPLY
Please sign in or register to post a reply.