Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@gailb

I want to draw everyone's attention to a CNN Special Report by Dr. Sanjay Gupta that was shown last night. It's his 4th report on the use of "Weed" or Marijuana/Cannabis. His reports have been tremendously helpful in understanding the scientific research that has shown Cannabis to be helpful and not harmful.

Last night I learned some things I didn't know about using Marijuana/Cannabis. I learned that CBD and THC are anti-inflammatory medications. Since inflammation is the culprit in many health issues, I found that a good thing. I know inflammation adds to pain, so NSAIDS are often recommended. But, for some of us, ibuprofen, aspirin and other NSAIDS have already done their damage to our stomachs. I cannot ever take them again. I also have had a gastric bypass (RnY) surgery, and cannot take NSAIDS because of that.

Another thing I learned is that there are no set amounts of Marijuana or CBD to use. Depending on the type of Marijuana you purchase, the dose will be different. It will also vary personally. As I have said, I am hyper sensitive to Marijuana when vaped. I can't use it that way. I can use about .30 ml dropper sublingual for pain relief with a light high. I don't like feeling high, and maybe I will adjust over time but since I don't need it very often anymore, I'm not worried about it.

A Very important learning was that Marijuana actually heals the brain over time from the addiction of opioids. I knew that it helped me to withdraw from the Tramadol I was taking. I have also realized that when I quit cigarette smoking on 2/2/82, and I smoked Marijuana (illegally then) for some relief when my withdrawal got terrible, it really DID help me quit smoking. The report said you cannot overdose on Marijuana and no one has ever died from Marijuana. Marijuana is NOT a "gateway drug" and is in fact the opposite of that because it actually helps people permanently withdraw from opioids without the terrible symptoms of withdrawal.

Apparently Marijuana also helps prevent Dementia and they think it MAY stop the progression of Alzheimers. It seems to destroy certain proteins in the brain. They're cautiously optimistic about that.

I highly recommend that if you have questions about "pot", "marijuana", "cannabis", "hemp", (all interchangeable names) or it's derivatives, CBD or THC, watch this CNN special report. You can probably purchase the video or can stream it on your computer.

Gail
Volunteer Mentor

Jump to this post

Well, I am fully aware of the benefits of marijuana. There. Are safeguards and clinics never bring in marijuana not grown in the high standards. I lived in Oregon and now Texas. I have no idea what is going on in Texas. They charge high and mean high taxes on homes. Their streets are in desperate need of repair. I love it here with all the beautiful trees and birds. However they need to wise up. Reduce home taxes and sell marijuanawhich brings in funds to state. I have a feeling the drug companies ste growing marijuana just waiting to break into market. No one will want narcotics again. I fear the pharmacies want in to the big bucks. Read Genisis in Bible. All herbs are for our use. I have a marijuana cookbook.

REPLY
@raina

Hello, my name is raina, a new member to the chronic pain group. I have fibromyalgia, chronic pain and fatigue. I hope to get and give tips on how to live with these diseases.

Jump to this post

Thanks @JustinMcClanahan for this info

REPLY
@gailb

I want to draw everyone's attention to a CNN Special Report by Dr. Sanjay Gupta that was shown last night. It's his 4th report on the use of "Weed" or Marijuana/Cannabis. His reports have been tremendously helpful in understanding the scientific research that has shown Cannabis to be helpful and not harmful.

Last night I learned some things I didn't know about using Marijuana/Cannabis. I learned that CBD and THC are anti-inflammatory medications. Since inflammation is the culprit in many health issues, I found that a good thing. I know inflammation adds to pain, so NSAIDS are often recommended. But, for some of us, ibuprofen, aspirin and other NSAIDS have already done their damage to our stomachs. I cannot ever take them again. I also have had a gastric bypass (RnY) surgery, and cannot take NSAIDS because of that.

Another thing I learned is that there are no set amounts of Marijuana or CBD to use. Depending on the type of Marijuana you purchase, the dose will be different. It will also vary personally. As I have said, I am hyper sensitive to Marijuana when vaped. I can't use it that way. I can use about .30 ml dropper sublingual for pain relief with a light high. I don't like feeling high, and maybe I will adjust over time but since I don't need it very often anymore, I'm not worried about it.

A Very important learning was that Marijuana actually heals the brain over time from the addiction of opioids. I knew that it helped me to withdraw from the Tramadol I was taking. I have also realized that when I quit cigarette smoking on 2/2/82, and I smoked Marijuana (illegally then) for some relief when my withdrawal got terrible, it really DID help me quit smoking. The report said you cannot overdose on Marijuana and no one has ever died from Marijuana. Marijuana is NOT a "gateway drug" and is in fact the opposite of that because it actually helps people permanently withdraw from opioids without the terrible symptoms of withdrawal.

Apparently Marijuana also helps prevent Dementia and they think it MAY stop the progression of Alzheimers. It seems to destroy certain proteins in the brain. They're cautiously optimistic about that.

I highly recommend that if you have questions about "pot", "marijuana", "cannabis", "hemp", (all interchangeable names) or it's derivatives, CBD or THC, watch this CNN special report. You can probably purchase the video or can stream it on your computer.

Gail
Volunteer Mentor

Jump to this post

Thank you so much for posting this encouraging message.

REPLY
@meknight

Meknight: chronic pain, fibermyalgia, sleep issues, arthritis, female, 50's. Pain keeps me up at night, and when I do sleep, I wake up stiff and in more pain. My fingers and toes are painfully swollen and turning. I see a pain specialist, but the meds barely make life bearable. Looking for another way to survive.

Jump to this post

Dear oregongirl, Re. "not finding out what was wrong" that is – what caused your falls: My doctor attributed my two uncontiousness caused falls to SYNCOPE when the body just "winks out" momentarily. One moment I was on the phone and the next I was flat on the floor clutching the phone in a "death grip" and the other, I was watering the garden and the next moment I saw the pavement inches from my face as It approached smack down (and what a bruised chin and eye I received). In the first fall I injured my lower back irreparably and rue the day the caller, who had nothing on their mind, made that call after a sensible late night hour. I hope this is helpful…….

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

Ladies even though Dr says it isn't meds just read all the side effects on meds read all the literature the pharmacy gives you they are the specialist in drugs I'm not saying Dr,s don't know ,they do but the pharmacist specialists know more ,I went of of it for this reason it effected my memory also Cymbalta I lost memory all togethe so listen to your body ,we know how we feel but Liz wean yourself of ,don t go cold turkey

REPLY
@wsh66

You might try going gluten free for a month. It helps with many skin conditions. I saw a new Post Cancer/Lymphedema doctor yesterday who prescribed heavy exercise, aerobic and weight training as a solution to the somnolence, (tiredness), that Chemo and Cancer leave you with. I also use Adderall. Once you get used to adderall you really don't notice your taking it and the crash goes away. She didn't think much of the Adderall. Celebrex is great for reducing swelling and a gluten free diet will also reduce swelling. Lyrica is good for Fibromyalgia and other forms of pain from over active nerves. Chronic pain is still best dealt with with Opiods if it's too serious for Tylenol. If your going to hurt for the rest of your life you might look into a pain pump. I have one and it's the best thing that ever happened to me. I used to eat 252 mg. of various narcotics per day. Now I get 2.75 mg. to 3.75 mg of dilaudid delivered directly to my spine. That is 300 times more effective than eating the same amount. Message me if you need more help.

Jump to this post

Great glad you,ve found exercise ,makes a big difference

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

Here's another option…..take the 3 capsules (900 mg) one hour before bedtime. Then the Gabapentin can do what is was designed to do…calm your nerves. I did experience foggy brain when I took it in the morning so my neurologist and I came to the conclusion that I should switch to nighttime. So far so good…..good nights sleep and no foggy brain.

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

That is certainly a possibility, but I believe you should not change meds in any way without first speaking with the doc who prescribed it.

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

@artscaping You mentioned taking 3 capsules one hour before bedtime – what types of capsules?

Teresa

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

@oregongirl and @wsh66wsh66

When I withdrew from Tramadol 50 mg, 4 times a day, I did it very slowly. Going cold turkey is not recommended. I took over 3 months to withdraw.
– I began by going down one pill a week every 2 weeks by increasing the number of hours between pills.
– Then I took 1pill in the morning and 1 pill at night for 2 or 3 weeks.
– Then I broke 1 pill in 1/2 and took it at night, with 1 whole pill during the day for 2 or 3 weeks.
– I finally broke 1 pill in half and took half in the morning and half at night.
– Eventually, I took only half a pill in the morning and 1/4 pill at night. When I was ready, I stopped taking any pills.

I did have anxiety and shakey thinking at first (for a couple of weeks) as well as muscle tightness, almost spasms at first. That's when I tried taking CBD, and it calmed my anxiety and muscles. I used 6 mg. of CBD every 4 – 6 hours as needed. The muscle tightness continued off and on as I withdrew, and I continued to use CBD throughout my withdrawal. I know it helped me to withdraw without many side affects. My withdrawal was relatively easy.

Oregongirl, why are you wanting to stop taking Tramadol? If you will be having pain for the remainder of your life, and you live in a state where you can't buy Cannabis, why don't you want to take Tramadol? It worked well for me, but now that I can legally buy Cannabis for pain, I don't need Tramadol. Actually, I have very little pain anymore since I began doing Active Release Technique with my chiropractor. When I do, I rely on Tylenol or CBD/THC.

Warm regards to both of you,
Gail
Volunteer Mentor

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

Each gabapentin capsule is 300 mg, so the total dosage is 900 mg.

REPLY
@gailb

I want to draw everyone's attention to a CNN Special Report by Dr. Sanjay Gupta that was shown last night. It's his 4th report on the use of "Weed" or Marijuana/Cannabis. His reports have been tremendously helpful in understanding the scientific research that has shown Cannabis to be helpful and not harmful.

Last night I learned some things I didn't know about using Marijuana/Cannabis. I learned that CBD and THC are anti-inflammatory medications. Since inflammation is the culprit in many health issues, I found that a good thing. I know inflammation adds to pain, so NSAIDS are often recommended. But, for some of us, ibuprofen, aspirin and other NSAIDS have already done their damage to our stomachs. I cannot ever take them again. I also have had a gastric bypass (RnY) surgery, and cannot take NSAIDS because of that.

Another thing I learned is that there are no set amounts of Marijuana or CBD to use. Depending on the type of Marijuana you purchase, the dose will be different. It will also vary personally. As I have said, I am hyper sensitive to Marijuana when vaped. I can't use it that way. I can use about .30 ml dropper sublingual for pain relief with a light high. I don't like feeling high, and maybe I will adjust over time but since I don't need it very often anymore, I'm not worried about it.

A Very important learning was that Marijuana actually heals the brain over time from the addiction of opioids. I knew that it helped me to withdraw from the Tramadol I was taking. I have also realized that when I quit cigarette smoking on 2/2/82, and I smoked Marijuana (illegally then) for some relief when my withdrawal got terrible, it really DID help me quit smoking. The report said you cannot overdose on Marijuana and no one has ever died from Marijuana. Marijuana is NOT a "gateway drug" and is in fact the opposite of that because it actually helps people permanently withdraw from opioids without the terrible symptoms of withdrawal.

Apparently Marijuana also helps prevent Dementia and they think it MAY stop the progression of Alzheimers. It seems to destroy certain proteins in the brain. They're cautiously optimistic about that.

I highly recommend that if you have questions about "pot", "marijuana", "cannabis", "hemp", (all interchangeable names) or it's derivatives, CBD or THC, watch this CNN special report. You can probably purchase the video or can stream it on your computer.

Gail
Volunteer Mentor

Jump to this post

@oregongirl You are so right about Texas. Where are you in Texas? I grew up in Dallas but have been in Austin for over 40 years. I paid off my house but now my property taxes are higher than my house payment ever was if you think of it monthly. The reason property taxes are so high in Texas is that there is no state income tax. On top of this, and because of this, cities and counties have to have higher taxes in order to perform all the functions of the city or county. In a place like Austin, so much of the property is not taxed due to it being state property (it is the capital) and because of a lot of environmental restrictions on land taking it for parkland. So that leaves the rest of us to pick up the slack. I wish they would legalize medical marijuana. I also wish pain doctors would continue to prescribe pain medications while you are taking CBD products. Most of them won't let you have your pain meds if CBD shows up in your urine tests. My pain doctor is wonderful and I will follow his wishes but I was taking CBD for quite a while and it finally built up enough to show up in small amounts in my test. I had to pick one or the other and so I stopped the CBD. The CBD was not helping the pain as much as it was minimizing stress and anxiety which indirectly does help the pain. I wonder if all the pain doctors do that. Most of them I know of make their patients drug test regularly and don't want their patients using opiates if anything else shows up. Texas is unlike any other place and I imagine very unlike Oregon in many respects, not the least of which is the politics and that will play a role in the issue of bringing in marijuana for medical use. I sure do wish they would. I told someone yesterday I might just move to Colorado.

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

Oh Gail…I would not dare come off of Tramadol before I could get my Marijuana I have been trying Aleve now and then. I will have been in Texas for nearly a year soon. I think I will find the group who is working to get the marijuana legal. I went to the group in Oregon. We worked so hard for two years until we got it on the ballot and it passed big time. When we would go to the meeting, some free lance growers would bring some samples with them. We called it a pot luck. And it was. 1/2 the table was ordinary food and the 1/2 had marijuana in it. Of course it was not under the control of the state yet so many farmers brought their samples for us to try. Now that it is sold in a clinic, you have Medical and Recreational. Would you believe, the clinics had to place all the tax money into the bank to sit there until it was legal for the State to receive it. Boy what a day that much have been for the State. It is mostly seniors who use the clinic. There is one on every block. They are under strict laws. The medical is compltely closed off from the Recreational. I always used the battery (i guess you would call them cigarettes) filled with oil. I did not like smoking. Before I could get Marijuana (Medical – It is stronger and in different tastes. My doctor had to authorize it. I could have used the doctor at the clinic, but I wanted my doctor to know What I was doing. He had me on Morphine. You talk about withdrawal….I went to the hospital I was so sick. THREE times. Two times the doctors wold me to go home, I had a bad case of the flu. Third tie, I found out that my Gall Bladder needed to come out NOW..
Turns out it was completely infected. The minor surgery turned into a big one. I know it was from coming off Morphine. I still cannot believe he gave me Morphine. I came off of it all by myself. Take my word,,,,never do that.

REPLY

Galig……Hi there. I live in San Antonio. I moved from the Coast of Oregon. My house overlooked the Ocean and the Boat Harbor. Yes, I must be out of my mind Gave up my Free and Clear House with a view, Friends that I knew, and my Marijuana. I wanted to move near by son. I stayed in their guest house as long as I could stand it and then got my own apartment. I am living in an apartment that used to be Military housing in WWII. The remodeld the entire Track inside leaving the beautiful 40's and 50's look with REAL wood floors and a beautiful kitchen. In Oregon, I lived nearly 2 hours from the REAL doctors. As my RA got worse, I knew I would need a better doctor. My doctor had MD behind his name but???? I miss the beautiful weather but I have to say, I do love San Antonio and all the trees. I turned 76 this month. I truly love it here, but I felt more alive in Oregon and my wonderful trails in the woods. My dogs certainly miss that. Try to find the group that is working on legalizing MJ.

REPLY
@gailb

I want to draw everyone's attention to a CNN Special Report by Dr. Sanjay Gupta that was shown last night. It's his 4th report on the use of "Weed" or Marijuana/Cannabis. His reports have been tremendously helpful in understanding the scientific research that has shown Cannabis to be helpful and not harmful.

Last night I learned some things I didn't know about using Marijuana/Cannabis. I learned that CBD and THC are anti-inflammatory medications. Since inflammation is the culprit in many health issues, I found that a good thing. I know inflammation adds to pain, so NSAIDS are often recommended. But, for some of us, ibuprofen, aspirin and other NSAIDS have already done their damage to our stomachs. I cannot ever take them again. I also have had a gastric bypass (RnY) surgery, and cannot take NSAIDS because of that.

Another thing I learned is that there are no set amounts of Marijuana or CBD to use. Depending on the type of Marijuana you purchase, the dose will be different. It will also vary personally. As I have said, I am hyper sensitive to Marijuana when vaped. I can't use it that way. I can use about .30 ml dropper sublingual for pain relief with a light high. I don't like feeling high, and maybe I will adjust over time but since I don't need it very often anymore, I'm not worried about it.

A Very important learning was that Marijuana actually heals the brain over time from the addiction of opioids. I knew that it helped me to withdraw from the Tramadol I was taking. I have also realized that when I quit cigarette smoking on 2/2/82, and I smoked Marijuana (illegally then) for some relief when my withdrawal got terrible, it really DID help me quit smoking. The report said you cannot overdose on Marijuana and no one has ever died from Marijuana. Marijuana is NOT a "gateway drug" and is in fact the opposite of that because it actually helps people permanently withdraw from opioids without the terrible symptoms of withdrawal.

Apparently Marijuana also helps prevent Dementia and they think it MAY stop the progression of Alzheimers. It seems to destroy certain proteins in the brain. They're cautiously optimistic about that.

I highly recommend that if you have questions about "pot", "marijuana", "cannabis", "hemp", (all interchangeable names) or it's derivatives, CBD or THC, watch this CNN special report. You can probably purchase the video or can stream it on your computer.

Gail
Volunteer Mentor

Jump to this post

Galig…I feel so silly, but what is CBO

REPLY
Please login or register to post a reply.