Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

I never did maybe at the time of fracture I was on Vicoden also tapering of was a process Vicoden went first then rest but our bodies are different but even Dr rheumatologist wasn't concerned he said 2weeks at a time .

REPLY

@susan1955 and @raina

Welcome to the Mayo Connect online community. I am a Volunteer Mentor and as such, I am not a medical professional and can only offer my own personal experience and support.

I recommend that you go back through the posts here to find out what has already been discussed. In these discussions you may already find answers to questions you have.

Please tell us more about your journey through chronic pain and anything that has given you some relief. And, keep in mind that what works for me or you, may not work for anyone else. I look forward to hearing more from you.

Gail
Volunteer Mentor

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

I am amazed at the side effects you had with Gabapentin. I had said earlier that I had no side effects, but I have the same things you speak of. I simply thought it was my "old age". I actually can't tell if it does any good, but it might be doing harm. My Neurologist seems to think it can do no harm. My husband's doctor says it is useless. So many different opinions. I am going to come off and see what happens. I sure would like to get some of my memory back.. I take three capsules each morning. Maybe cut back one at a time.

REPLY

I want to draw everyone's attention to a CNN Special Report by Dr. Sanjay Gupta that was shown last night. It's his 4th report on the use of "Weed" or Marijuana/Cannabis. His reports have been tremendously helpful in understanding the scientific research that has shown Cannabis to be helpful and not harmful.

Last night I learned some things I didn't know about using Marijuana/Cannabis. I learned that CBD and THC are anti-inflammatory medications. Since inflammation is the culprit in many health issues, I found that a good thing. I know inflammation adds to pain, so NSAIDS are often recommended. But, for some of us, ibuprofen, aspirin and other NSAIDS have already done their damage to our stomachs. I cannot ever take them again. I also have had a gastric bypass (RnY) surgery, and cannot take NSAIDS because of that.

Another thing I learned is that there are no set amounts of Marijuana or CBD to use. Depending on the type of Marijuana you purchase, the dose will be different. It will also vary personally. As I have said, I am hyper sensitive to Marijuana when vaped. I can't use it that way. I can use about .30 ml dropper sublingual for pain relief with a light high. I don't like feeling high, and maybe I will adjust over time but since I don't need it very often anymore, I'm not worried about it.

A Very important learning was that Marijuana actually heals the brain over time from the addiction of opioids. I knew that it helped me to withdraw from the Tramadol I was taking. I have also realized that when I quit cigarette smoking on 2/2/82, and I smoked Marijuana (illegally then) for some relief when my withdrawal got terrible, it really DID help me quit smoking. The report said you cannot overdose on Marijuana and no one has ever died from Marijuana. Marijuana is NOT a "gateway drug" and is in fact the opposite of that because it actually helps people permanently withdraw from opioids without the terrible symptoms of withdrawal.

Apparently Marijuana also helps prevent Dementia and they think it MAY stop the progression of Alzheimers. It seems to destroy certain proteins in the brain. They're cautiously optimistic about that.

I highly recommend that if you have questions about "pot", "marijuana", "cannabis", "hemp", (all interchangeable names) or it's derivatives, CBD or THC, watch this CNN special report. You can probably purchase the video or can stream it on your computer.

Gail
Volunteer Mentor

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

Liz. I am so sorry you have memory issues. I fell forward and did a great deal of damage to myself. I passed out and never felt a thing. I have no memory of fall. Since cutting back on drugs I have a clearer head. I spent 3 weeks in hospital and received every diagnosis known to man. In other words…doctors do not know what to do for us. They used to just prescribe pain pills. Now they shake their heads.

REPLY
@wsh66

You might try going gluten free for a month. It helps with many skin conditions. I saw a new Post Cancer/Lymphedema doctor yesterday who prescribed heavy exercise, aerobic and weight training as a solution to the somnolence, (tiredness), that Chemo and Cancer leave you with. I also use Adderall. Once you get used to adderall you really don't notice your taking it and the crash goes away. She didn't think much of the Adderall. Celebrex is great for reducing swelling and a gluten free diet will also reduce swelling. Lyrica is good for Fibromyalgia and other forms of pain from over active nerves. Chronic pain is still best dealt with with Opiods if it's too serious for Tylenol. If your going to hurt for the rest of your life you might look into a pain pump. I have one and it's the best thing that ever happened to me. I used to eat 252 mg. of various narcotics per day. Now I get 2.75 mg. to 3.75 mg of dilaudid delivered directly to my spine. That is 300 times more effective than eating the same amount. Message me if you need more help.

Jump to this post

Pain pump is on my list. Did you get pain pump from pain Dr or regular Dr.

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

I also have been on Gabapentin for 20 years, also Tramadol, my memory is awful. Instead of being 58 I feel so dumb ( so grateful to have a understanding husband), Recently I had a pain stimulater implanted now my butt crack goes all the way up between my shoulder blades! Still the pain is always with me, thinking of getting a pain pump when my disability goes through!
Good luck everyone

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

I am taking 1500 mg gabapentin 3 times daily with 50 mg tramadol and I am fine. I also do exercises . I really thought a Dr. would operate , but he said it was not possible.

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

I have neuropathy too. Mine was caused by Chemo treatments for cancer. I take 300 mg. of Lyrica twice a day. I also take 25 mg. of Amitriptyline daily. Don't give up on depression until you fix it. Get counseling, try different meds but don't give up. Depression will worsen your experience with pain and can even cause physical pain. There is a company, GeneSight testing that if you furnish a cheek swab, they can with great accuracy, predict which meds will work for you. I'll see if I can find a link.
https://genesight.com/
That was easy. They can test for 4 types of psychotropic meds and also what analgesics or narcotics will be best for you. Your Doc needs to register with them which they can do by phone and it's free. The testing is not. They will help you pay. If you have any sort of Government insurance it will be totally covered. It's new but it's getting good reviews.

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

Tramadol addiction is like no other. It doesn't make you crave more, it doesn't get you high. However, when I stopped taking it I went through a withdrawal which was awful. It was like the worst Flu you ever had and went on for about 96 hours. Bad drug!!!!!

REPLY
@gailb

@susan1955 and @raina

Welcome to the Mayo Connect online community. I am a Volunteer Mentor and as such, I am not a medical professional and can only offer my own personal experience and support.

I recommend that you go back through the posts here to find out what has already been discussed. In these discussions you may already find answers to questions you have.

Please tell us more about your journey through chronic pain and anything that has given you some relief. And, keep in mind that what works for me or you, may not work for anyone else. I look forward to hearing more from you.

Gail
Volunteer Mentor

Jump to this post

Hello Gail,
Thanks for your response. I have being dealing with chronic pain for more than a year now, my doctors at Mayo diagnosed my symptoms as fibromyalgia and chronic pain and fatigue. I have taken gabapentin for couple months with no success. I am currently taking Lyrica. What I found very helpful is some level of physical exercise, I know it's the last thing on our mind when dealing with daily pain, but when I work through the pain during the exercises, it pays off later on. For instance, mornings are one of my challenges. It's difficult to get out of bed due to pain all over my body., it's like an intense body aches with sudden sharp pain that occurs randomly. But after taking a 30 minutes to an hour walk, I feel tired right afterward but relieved and energised for the rest of the day. I also have to pace myself with all my activities. It is challenging to live with pain as sometimes the same things that used to help may not have the same effect on your body other times.

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

I have Fibromyalgia, Degenerative Disc Disease, Arthritis in all my joints, IBS, Diverticulitis, Diabetes, and some severe allergies.  Right now the only one giving me fits is the IBS.  Lying here with a heating pad on my gut.  It helps some.  Gut doctor  prescribed Bentyl, which actually helps.  But I have to call about a prescription, and they may want to see me. Ugh!

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired – I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

Oh no…I gave up pills against my wishes and was given tramadol. Great!!!!!!

REPLY
@gailb

@susan1955 and @raina

Welcome to the Mayo Connect online community. I am a Volunteer Mentor and as such, I am not a medical professional and can only offer my own personal experience and support.

I recommend that you go back through the posts here to find out what has already been discussed. In these discussions you may already find answers to questions you have.

Please tell us more about your journey through chronic pain and anything that has given you some relief. And, keep in mind that what works for me or you, may not work for anyone else. I look forward to hearing more from you.

Gail
Volunteer Mentor

Jump to this post

Rani…I agree. Some days my walk is easy. Others I cannot wait to get home. But I agree my walking helps bog time 90 percent of time.

REPLY
@raina

Hello, my name is raina, a new member to the chronic pain group. I have fibromyalgia, chronic pain and fatigue. I hope to get and give tips on how to live with these diseases.

Jump to this post

Hello @raina, here is a discussion you may find interesting in both reading through and participating in where you feel comfortable: Fibromyalgia pain, https://connect.mayoclinic.org/discussion/fibromyalgia-pain-28e002/.

REPLY
Please login or register to post a reply.