Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@gerryg

I am 72 years old and quite active usually walk 2-3 miles a day and do some exercise 15 minutes for back pain surgeon recently said i have arthritis and he can’t help,except to put a battery powered wire in my back .i’am not happy with that i can’t take pain pills because of other problems
I am looking at getting a second opnion.

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If your pain is in your back for getting the wires and the stimulators. Get yourself a pain pump installed in your belly with a catheter going up your spine. Less than 4 mg per day of Dilaudid will give you all the relief you're ever going to need. Yes the pump has to be replaced every five years which means another surgery and yes the pump has to be refilled with Dilaudid or any other narcotic your doctor chooses to use every 3 to 4 months which takes about 5 minutes once you're in the doctor's chair. You don't have to go in the hospital you don't have to stay overnight you don't have to be anesthetized.
You just get a needle. They pump out the old dope and they put in fresh dope. Yes I still have pain and yes my pain is manageable. It's so much better than it was before the pain pump. I traded 252 mg a day of Oxycontin Dilaudid and Valium for less than 4 mg a day of Dilaudid. The man to see is Dr Park, Michael Chank Won Park at M Health in Minneapolis Minnesota. Tell him t
Stephen, the poster boy for the pain pump sent you. He'll fix you up real good.

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@gerryg

I am 72 years old and quite active usually walk 2-3 miles a day and do some exercise 15 minutes for back pain surgeon recently said i have arthritis and he can’t help,except to put a battery powered wire in my back .i’am not happy with that i can’t take pain pills because of other problems
I am looking at getting a second opnion.

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So happy the pain pump works for you without the side affects. I was hoping you could answer a couple of questions for me:
1. When I take oral pain meds I feel loopy and I don't feel safe driving or "walking" around without someone with me. Did you feel that way with oral meds, too? If so, do you feel that way now?
2. Do the meds still have an addictive side affect like the oral ones do? I know many people do not care as long as they have relief, but I would still like to know.
Thanks for sharing!
ronnie

Liked by Parus

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@gerryg

I am 72 years old and quite active usually walk 2-3 miles a day and do some exercise 15 minutes for back pain surgeon recently said i have arthritis and he can’t help,except to put a battery powered wire in my back .i’am not happy with that i can’t take pain pills because of other problems
I am looking at getting a second opnion.

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wsh66: Is it Mayo health for MHealth( I will try to contact That Dr.Park, from India? Nice pain relief ,safe is welcome.

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@hopeful33250

Hello @gerryg

I see that this is your first post on Connect – I would like to welcome you. I appreciate your post regarding back pain. Have you already had back surgery?

I understand that you are now interested in having the battery powered device implanted to help with your pain. I am glad to hear that you are seeking a second opinion. This is always a wise choice. In considering a second opinion I would encourage you to look for a large medical/research facility such as a university medical center or a facility like a Mayo Clinic.

We have some members who have had the implant with good results. I would like to invite @jimhd who is a volunteer mentor to share his experiences with the implant. Here is the link to a discussion group where this implant is discussed, https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/?pg=3#comment-95485 Please read through these posts and see what others have experienced.

I look forward to hearing from you again.

Teresa

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@peach414144

Good Morning,
I have been living with back pain for over 10 years and had to retire early because of the impact on my ability to walk. At the time, I lived in New Jersey, just an hour outside of Atlantic City.
First, I have tried 3 times to get an appointment at the Mayo Clinic, in Florida, but I have been turned down. Apparently, they take just so many people with a certain ailment. However, I have been told that you have a better shot if you get a referral from your doctor. I don't know but it is worth a try.
I don't know to what extend you have been trying to get help and what has been done.
I am certainly no expert, nor am I in the medical field. I can only share my own experiences.
I started with an orthopedist because I didn't know what was wrong. I has used her before and trusted her. The doctor took extensive blood tests, an MRI and x-ray. We discovered that I had osteo-arthritis and spinal stenosis in the cervical and lumbar spine. She sent me to a pain doctor for treatment.
(NOTE: Many pain doctors were anesthesiologists before they became pain doctors)
The pain doctor gave me facet injection, epidurals and then did radio frequency ablation and one dose of oral steroids when then pain became too intense, while all along taking large doses of ibuprophen. Sadly, non worked and he felt he could no longer help me.
I did some research and found a spinal clinic at Johns Hopkins Hospital in Maryland. I was told that my cervical spine was worse than my lumbar and that I would need surgery. Funny thing, my cervical spine was not giving me any problems at the time, just my lumbar. At that point I was not ready to have surgery.
I saw 2 more pain docs after that, mostly because the first one left the practice and I needed to find another. Both did the same as the first and I got minimal relief, if any. After seeing pain doctor number 3, I agreed to do a trial for a spinal stimulator. The trial did not go well due to the way it was put in. However, I was desperate and willing to give it a try. However, during all this, we decided to move to Florida for the warmer climate. The cold was torture.
I asked the representative from the spinal stimulator company to suggest a doctor in Florida so that I could continue on with their stimulator. The doctor they suggested felt I was not ready for the stimulator and again, I went through the shots. You guessed it, they did not help.
Out of frustration, I did my own research and found another pain doctor. I did extensive research on him and pain doctor number 5 seemed to be the answer. I've been seeing him for approximately 3 years and he is the only one who has been able to give me any relief for my lumbar spine for anywhere from 6-12 weeks. He became my savior. Several months ago my cervical spine started to act up again after a few years of it being calm. My pain doctor was not able to help me with it. He tried a couple of procedures. I was having violent headaches each morning that woke me up and nothing, not even pain meds helped.
I began to do my research, again. Now, I was looking for a neuro-surgeon for an opinion. Of course, a surgeon wants to operate, and he did. He suggested I have 2 pairs of discs replaced with artificial ones (this, instead of fusions). I had the surgery 7 weeks ago. I've only had about 4 headaches. I'd say I've had about 85% improvement with things getting better each day!
Now, my last 2 lumbar injections did not work at all. I'm getting another MRI to see if the osteo-arthritis and stenosis has progressed. When I go for my 12 week check-up with the neuro-surgeon, we'll discuss what he thinks he can do for the lumbar.

There are other non-surgical things you can do. Of course, there is no guarantee any will help. Besides the shots you can try: a chiropractor, THERAPUTIC massage, acupuncture, cupping, aquatic and/or land physical therapy.

So, that is my tale. I am striving for a quality of life. Regardless of how any surgery goes, I realize I have to change my life-style. I will FOREVER have to be very aware of how I use my body as to not inflame it. No twists, jostling, sudden moves, carrying anything heavy, hyper-stretching or over-doing.

Don't give up. If one doctor tells you NO, look for someone else. Research. First, check the website of your medical plan to see which doctors are covered by your insurance. Then, there are multiple websites that rate doctors and have actual patient reviews you can read. Look at all the sites to get a broad view. Arthritis CAN be surgically cleaned up. I've had it done on both my knees on one shoulder.

Good luck and I hope this helps!
Ronnie (GRANDMAr)

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@parus

I see a pain specialist-once was an anesthesiologist (retired), now a neurologist and pain specialist. His directions are to walk. I get trigger point injections every 3 months which are a numbing agent (allergic to cortisone) that lasts for 3 days. I am in a terrible place and have no other options. Does not help having depression so pain is caused by depression (when I do not have a history of pain with depression) and talk to therapist who says there is nothing she can do for physical pain.
Feeling like a useless person who no longer deserves any quality of life because I am old and depressed. Or is it because of those abusing their medications have made it impossible for those of needing help cannot get help???
Sick world I find myself living in!!
YES, I AM FRUSTRATED!!

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Hi!
I am so sorry for what you are going through. I just wrote a rather lengthy response to @gerryg. Perhaps it might help you. I don't know how to share it with you. Maybe you can look up the name????? In the meanwhile, I will continue to try to copy it to you.

Liked by Parus

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@hopeful33250

Hello @gerryg

I see that this is your first post on Connect – I would like to welcome you. I appreciate your post regarding back pain. Have you already had back surgery?

I understand that you are now interested in having the battery powered device implanted to help with your pain. I am glad to hear that you are seeking a second opinion. This is always a wise choice. In considering a second opinion I would encourage you to look for a large medical/research facility such as a university medical center or a facility like a Mayo Clinic.

We have some members who have had the implant with good results. I would like to invite @jimhd who is a volunteer mentor to share his experiences with the implant. Here is the link to a discussion group where this implant is discussed, https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/?pg=3#comment-95485 Please read through these posts and see what others have experienced.

I look forward to hearing from you again.

Teresa

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Thanks for your info I will be working on my problem so far I can deal with my pain but want to be proactive .
Thanks again and good luck with your problems.
Gerryg

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@gerryg

I am 72 years old and quite active usually walk 2-3 miles a day and do some exercise 15 minutes for back pain surgeon recently said i have arthritis and he can’t help,except to put a battery powered wire in my back .i’am not happy with that i can’t take pain pills because of other problems
I am looking at getting a second opnion.

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Mhealth is part of the U of MN.I'll try to post hid phone number in Minnesota.

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@gerryg

I am 72 years old and quite active usually walk 2-3 miles a day and do some exercise 15 minutes for back pain surgeon recently said i have arthritis and he can’t help,except to put a battery powered wire in my back .i’am not happy with that i can’t take pain pills because of other problems
I am looking at getting a second opnion.

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Dr. Michael Park 612-624-6666. Tell him that Stephen Hodder sent you.

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when I stop taking oral meds people did tell me that I seemed . sharper than more like myself

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@stfnwtl89

I live in us too and have been going thru same thing with my mom. Keep calling until you find a dr who will listen to you. We are doing this exact same thing, go to the website for board certified pain specialists and find your state then do some interviewing. Not all pain Drs are specialists and I've found just because they are specialists does not mean they specialize in the pain from a specific disorder. I told my mom we are interviewing dr.'s they are not interviewing her.

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I can't say enough good things about the folks at the pain clinic at M Health in Minneapolis.

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@gerryg

I am 72 years old and quite active usually walk 2-3 miles a day and do some exercise 15 minutes for back pain surgeon recently said i have arthritis and he can’t help,except to put a battery powered wire in my back .i’am not happy with that i can’t take pain pills because of other problems
I am looking at getting a second opnion.

Jump to this post

Here's the website:

M Health – University of Minnesota
https://www.mhealth.org/

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@hopeful33250

Hello @gerryg

I see that this is your first post on Connect – I would like to welcome you. I appreciate your post regarding back pain. Have you already had back surgery?

I understand that you are now interested in having the battery powered device implanted to help with your pain. I am glad to hear that you are seeking a second opinion. This is always a wise choice. In considering a second opinion I would encourage you to look for a large medical/research facility such as a university medical center or a facility like a Mayo Clinic.

We have some members who have had the implant with good results. I would like to invite @jimhd who is a volunteer mentor to share his experiences with the implant. Here is the link to a discussion group where this implant is discussed, https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/?pg=3#comment-95485 Please read through these posts and see what others have experienced.

I look forward to hearing from you again.

Teresa

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Welcome Gerry.

I had a Burst DR spinal cord stimulator implant in June of last year and had 80% pain reduction. What a huge relief! I have burning pain in my feet from idiopathic peripheral neuropathy.

Rather than writing about it here, you can read what I've said about it in the group Teresa mentioned. My understanding is that stimulator implants were first developed for back pain.

Jim

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Maybe those who do not live with chronic (and severe) pain do not grasp the concept of hurting all the time. It is hard for me to understand how it is others can keep doing and going. I somehow have it in my mind that everyone hurts like I do, but can keep going-does this make sense? I see others having quality of life and tell myself I am weak because I cannot overcome the pain. Argh, talking in a circle.

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I am Liz, 86 years young, married 62 years and I'm glad to be a part of this group. I am more than fond of the Mayo Health Clinic even though I have never been a patient due to the distance from my home. However I have taken both my husband and my mother (while she was living).

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Pablo Luis Mainzer you are amazing!

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