Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@parus

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together…I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

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@jimhd I thought this was the case until I checked my online chart…I emailed PCP to clarify and yes all in that system can see. There is no such thing as confidentiality. Done…

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@lilgrizz

Hello Kelsey, thank you for this group. I don't know where to start describing my pain. My chronic pain runs about an 8 without meds. Don't know what I would do if I didn't have them to help me function. Yes I'm just a lil upset and Trump and the DEA about taking away our meds. I have degenerative scoliosis which I just have had my third surgery for. In April of last year I had two rods screwed into my spine starting at about the top of my shoulder blades down to my tailbone. A month later they went in from the front and fused the bottom part of my spine. Just a month ago I fell in the middle of the night and cracked both rods and had to have surgery again. I have dealt with the pain of scoliosis all my life. I started wearing a brace in the second grade until the 6th grade 24/7 except getting out each day long enough to take a bath. In 2012 I learned I also had multiple sclerosis, lupus and in 1999 I was diagnosed as Bipolar. But between the pain from my back, the lupus, and especially the MS I suffer tremendously. Don't know how I will survive trying to deal with the pain completely by will. I must say I'm very scared.

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bummer… maybe you could talk to him about recommending a pain management doctor?

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@ramakambhatla

I am taking already some medications, for CAD, don't like to take too many, for pain. I am not interested in any minor surgical procedures, MRI has been seen by 3-4 spine-doctors, and only conservative treatment is advised.
Pain-specialist, advised, Physical therapy, and pills are of no help. I am coping and accept the limited ambulation.

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I do my physical therapy exercise "routine" in a warm water therapy pool and it is one of the only times I don't feel pain – good luck to you.

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Hi.. Thanks.. I think that I should try "Warm water therapy" for better relief of pain and improve ambulation.

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@wsh I would rather not think about something I cannot have.. j stopped my injections today. Why take something that makes me worse. There is no cure for RA so why the shots. They are not pain meds. I had to disappoint my daughter in law and not go shopping v with her today. So sad

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@ramakambhatla

I have chronic pain in the right thigh, said to be due to, neurogenic claudication, with MRI showing DDD and no
specific therapy like, ESI is attempted, due to antiplatelet agents in the treatment of known CAD-LAD stent. I am not
able to walk for more than a minute or two, sit down for pain relief, and try to walk again. I need wheelchair for longer ambulation. This has been so. for nearly 2 years, spine surgery did not offer any help.(from India)

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Linda I too have an extra Vertabra. I had never heard of this.

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@thomasesmom

Hi, Debra here. I'm long overdue for a right hip replacement. Fear has kept me away,then in 2016 the basement stairs broke my right ankle.an operation was performed & I now have 2 metal plates which are SO TIGHT it's all unbearable,hip/ankle combo.i was told operation was necessary,but I doubt it.i regret it
The operation,that is. I must mention that I ride a Bicycle daily,weather permitting,it is MUCH EASIER THAN WALKING,which at times is Excruciating & impossible. I also have wide,triple E feet which are great for Balance, but add one constantly recurring
Corn between my right baby toe and sometimes it's hard to determine which pain is Greater,Hip,Ankle or
Toe??? I take naproxen,no prescription medication and when I hear about prevalent opiod issues,i am glad that isn't me,but there are times when i wish I had something just so I am able to walk.
Lastly,my past orthopedic surgeon ( top 10 in Milwaukee) he referred to medical school of Wisconsin for fibromyalgia. I never followed up,too much to digest

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Well I go to Texas university medical clinic and they made sure I knew it was a teaching school. Maybe they are studying the affects of keeping pain meds from people.

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@cleane1

Hi I am mike from Oregon 30 years logger broken back 20012 several surgery's latter chronic pain just went off veniflxene suffering horrindus withdraws glad to have found this sight

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Cleanie
.what is Veniflcene. I have never heard of it

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@ramakambhatla

I have noticed few having multiple surgeries. My pain is like 9, only when I walk and even with pain meds, in a minute or two, it is relieved by sitting. I am able to do routine activities and do not want, any further handicap than what I
already have.

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Hi I have this fibro for 30 years I found they are,no closer to a cure or what causes it now then back then but a support group said what helps is to do stretching exercises then ,chair exercises nothing strenuous ,warm water aerobics are great Regular pools are to cold for your muscles,Tapping ,tens unit ,ice,rest,heat just some suggestions

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@ramakambhatla

Hi.. Thanks.. I think that I should try "Warm water therapy" for better relief of pain and improve ambulation.

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It is great unfortunately for me it's not close

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So sorry I have had to disappoint my grandson ,felt bad for days

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@ramakambhatla

I have noticed few having multiple surgeries. My pain is like 9, only when I walk and even with pain meds, in a minute or two, it is relieved by sitting. I am able to do routine activities and do not want, any further handicap than what I
already have.

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Thanks John

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@cleane1

Hi I am mike from Oregon 30 years logger broken back 20012 several surgery's latter chronic pain just went off veniflxene suffering horrindus withdraws glad to have found this sight

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@oregongirl

Perhaps @cleane1 is referring to Be venlaxafine (not sure of spelling), which is Effexor.

Jim

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@parus

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together…I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

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@parus

That may be their practice, but it doesn't make it legal. For privacy, HIPPA is in place so that this very thing doesn't happen. They're practicing unethical and illegal protocol.

Jim

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@parus

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together…I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

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@parus

I would suggest that the doctors are in direct violation of HIPPA regulations.

Jim

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