Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@wsh66

One thing I forgot to mention about the pain pump. Drugs delivered into the spine by the pain pump, are 300 times more effective than drugs that you eat. That's what my doc says I'm not sure it's true but I would certainly buy into the idea that it's a hundred to 200 times more effective maybe three hundred times when you first start. Something to think about.

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If you had a bad reaction to a drug, will you get the same reaction with the pump with the same meds in it?

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@thomasesmom

Hi, Debra here. I'm long overdue for a right hip replacement. Fear has kept me away,then in 2016 the basement stairs broke my right ankle.an operation was performed & I now have 2 metal plates which are SO TIGHT it's all unbearable,hip/ankle combo.i was told operation was necessary,but I doubt it.i regret it
The operation,that is. I must mention that I ride a Bicycle daily,weather permitting,it is MUCH EASIER THAN WALKING,which at times is Excruciating & impossible. I also have wide,triple E feet which are great for Balance, but add one constantly recurring
Corn between my right baby toe and sometimes it's hard to determine which pain is Greater,Hip,Ankle or
Toe??? I take naproxen,no prescription medication and when I hear about prevalent opiod issues,i am glad that isn't me,but there are times when i wish I had something just so I am able to walk.
Lastly,my past orthopedic surgeon ( top 10 in Milwaukee) he referred to medical school of Wisconsin for fibromyalgia. I never followed up,too much to digest

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Hi Debra – I attended a 3 day fibromyalgia program at Mayo in Rochester. I was skeptical but it was actually very helpful – I received a lot of helpful information and tools to deal with the pain and other symptoms. My husband also attended and that was helpful in that he then had a better understanding of what I was going through. I hope you get some relief.

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@lilgrizz

Hello Kelsey, thank you for this group. I don't know where to start describing my pain. My chronic pain runs about an 8 without meds. Don't know what I would do if I didn't have them to help me function. Yes I'm just a lil upset and Trump and the DEA about taking away our meds. I have degenerative scoliosis which I just have had my third surgery for. In April of last year I had two rods screwed into my spine starting at about the top of my shoulder blades down to my tailbone. A month later they went in from the front and fused the bottom part of my spine. Just a month ago I fell in the middle of the night and cracked both rods and had to have surgery again. I have dealt with the pain of scoliosis all my life. I started wearing a brace in the second grade until the 6th grade 24/7 except getting out each day long enough to take a bath. In 2012 I learned I also had multiple sclerosis, lupus and in 1999 I was diagnosed as Bipolar. But between the pain from my back, the lupus, and especially the MS I suffer tremendously. Don't know how I will survive trying to deal with the pain completely by will. I must say I'm very scared.

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I agree 100%. Pain Management doctors have a totally different outlook than a primary care doctor.

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@ramakambhatla

I have chronic pain in the right thigh, said to be due to, neurogenic claudication, with MRI showing DDD and no
specific therapy like, ESI is attempted, due to antiplatelet agents in the treatment of known CAD-LAD stent. I am not
able to walk for more than a minute or two, sit down for pain relief, and try to walk again. I need wheelchair for longer ambulation. This has been so. for nearly 2 years, spine surgery did not offer any help.(from India)

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Hi I'm 75 and need the pain injection in back for me 3a hear does it .I have an extra vertabre in my power back I found the s chiropractor is the only one that can help me for this so I try to go monthly for this .Linda

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@wsh66

One thing I forgot to mention about the pain pump. Drugs delivered into the spine by the pain pump, are 300 times more effective than drugs that you eat. That's what my doc says I'm not sure it's true but I would certainly buy into the idea that it's a hundred to 200 times more effective maybe three hundred times when you first start. Something to think about.

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It,'ll be the same med right I would think you would the pump would,by make any difference

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@lilgrizz

Hello Kelsey, thank you for this group. I don't know where to start describing my pain. My chronic pain runs about an 8 without meds. Don't know what I would do if I didn't have them to help me function. Yes I'm just a lil upset and Trump and the DEA about taking away our meds. I have degenerative scoliosis which I just have had my third surgery for. In April of last year I had two rods screwed into my spine starting at about the top of my shoulder blades down to my tailbone. A month later they went in from the front and fused the bottom part of my spine. Just a month ago I fell in the middle of the night and cracked both rods and had to have surgery again. I have dealt with the pain of scoliosis all my life. I started wearing a brace in the second grade until the 6th grade 24/7 except getting out each day long enough to take a bath. In 2012 I learned I also had multiple sclerosis, lupus and in 1999 I was diagnosed as Bipolar. But between the pain from my back, the lupus, and especially the MS I suffer tremendously. Don't know how I will survive trying to deal with the pain completely by will. I must say I'm very scared.

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Absolutely right

Liked by momij

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I notice that few are taking multiple ESI procedures for relief of pain. I am not happy that the relief is for few weeks,
and with some risk of bleeding, I have not been encouraged to get the injections. I have seen a video about it, also.
I am managing with PT, and just trying to walk to a limited extent, and I am not advised by Cardiology also, due to lack of specific site of injection, and not happy with blind procedures. Just using, more topical pain relieving gels, than many pills ( take only, non-narcotic type, to avoid habit-forming problem),similar to Tylenol.

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I am taking already some medications, for CAD, don't like to take too many, for pain. I am not interested in any minor surgical procedures, MRI has been seen by 3-4 spine-doctors, and only conservative treatment is advised.
Pain-specialist, advised, Physical therapy, and pills are of no help. I am coping and accept the limited ambulation.

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I have noticed few having multiple surgeries. My pain is like 9, only when I walk and even with pain meds, in a minute or two, it is relieved by sitting. I am able to do routine activities and do not want, any further handicap than what I
already have.

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The problem of addiction comes up, with few pain medications. This is because of the narcotic with a simple pain med. like Tylenol. Unless the doctor is convinced of the severity of pain, on an evaluation to give such prescription,
there may be some misunderstanding for the patient.

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The problem that I had with spinal injections to relieve pain, is that, the consultant of spine surgery, did not talk about any fluoroscopy guidance, and I was not willing for a blind procedure. I had a chance to know about a well-
guided injection, and have the website : Mayfield Clinic.com and may try to contact Dr. Marc Orlando.

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Hardly I know, about ESI at a specific site for relief of pain, I am rather perplexed about using pain pump with 100-300 times the relief! Is this being done, at Mayo clinic? I have had an MRI, showing DDD with no information from the few spine surgeons, that I consulted, as to the procedure. Briefly,
a nerve block was mentioned. I am just trying to be happy with the routine
activities, that I am able to do. I would like to know as to how and who is
taking part in this procedure, like : Neurosurgeon, spine surgeon. Thanks for
a reply, in this reference.

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@lilgrizz

Hello Kelsey, thank you for this group. I don't know where to start describing my pain. My chronic pain runs about an 8 without meds. Don't know what I would do if I didn't have them to help me function. Yes I'm just a lil upset and Trump and the DEA about taking away our meds. I have degenerative scoliosis which I just have had my third surgery for. In April of last year I had two rods screwed into my spine starting at about the top of my shoulder blades down to my tailbone. A month later they went in from the front and fused the bottom part of my spine. Just a month ago I fell in the middle of the night and cracked both rods and had to have surgery again. I have dealt with the pain of scoliosis all my life. I started wearing a brace in the second grade until the 6th grade 24/7 except getting out each day long enough to take a bath. In 2012 I learned I also had multiple sclerosis, lupus and in 1999 I was diagnosed as Bipolar. But between the pain from my back, the lupus, and especially the MS I suffer tremendously. Don't know how I will survive trying to deal with the pain completely by will. I must say I'm very scared.

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@oregongirl Yes, because most of my pain now is from my multiple sclerosis and lupus. Most people are unaware of the pain these 2 illnesses bring to the table. I can tell a difference in the pain from my scoliosis and the ms causing pain in my back. After I had almost healed from the back surgery and before I fell I had found SOME relief from my scoliosis pain. I knew the surgery was more for keeping from becoming more deformed than I already was. I could not stand up straight, I had a hump on my back , quite a big one, my right rib cage overlapped my right hip bone, and the curve of my spine was also putting pressure on my lungs, and just beginning to affect my breathing. In two years, without surgery I would have ended , probably ended up in a wheelchair. But as I mentioned in the beginning my back was not the only cause of my pain.

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@lilgrizz

Hello Kelsey, thank you for this group. I don't know where to start describing my pain. My chronic pain runs about an 8 without meds. Don't know what I would do if I didn't have them to help me function. Yes I'm just a lil upset and Trump and the DEA about taking away our meds. I have degenerative scoliosis which I just have had my third surgery for. In April of last year I had two rods screwed into my spine starting at about the top of my shoulder blades down to my tailbone. A month later they went in from the front and fused the bottom part of my spine. Just a month ago I fell in the middle of the night and cracked both rods and had to have surgery again. I have dealt with the pain of scoliosis all my life. I started wearing a brace in the second grade until the 6th grade 24/7 except getting out each day long enough to take a bath. In 2012 I learned I also had multiple sclerosis, lupus and in 1999 I was diagnosed as Bipolar. But between the pain from my back, the lupus, and especially the MS I suffer tremendously. Don't know how I will survive trying to deal with the pain completely by will. I must say I'm very scared.

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@momij They haven't took my pain meds away yet but it seems inevitable. My neurologist who treats my multiple sclerosis and lupus treats my pain and I am on some very powerful meds. He said the other day that the DEA paid him a surprise visit and subpoenaed a bunch of patient records. Doesn't sound good to me. My doc who I love to death is a real Christian man and said something to the tune of if they come to get your meds….something else. I didn't hear the rest because my brain immediately shut down thinking they can have my meds when they pull them from my cold dead hands.

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@parus

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together…I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

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@jimhd I made the decision to try once again to get some help after bad experiences with therapists. This therapist had not a clue. The sharing is legal. Never occurred to me it would end up in the medical chart. Probably the reason she implied there was nothing more she could do. I can't work with her now. Had my fill with therapists and everything. It wasn't intentional and insurance has me limited. Ought not to tried to work on Mental health things again. I made the choice. I am old and useless…how I have been made to feel. I have art to get me through. I even printed it out for her as she did not believe me when I mentioned it. Doesn't matter. This is all set up to improve my health care. Seems like a HIPPA violation, but in reality it is not as I agreed to allow thus…had too. I am still just plain stupid. Unethical, but not illegal. Besides I have PTSD so do not see things realistically. a ver angry and confused person right now. i know i am powerless and likely over reacting. Lesson learned again.

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