Weight, dosage, activity and what happened to my lungs?
I am one year into the poly-nuisance. For the longest time I have relied upon our medical system that has served me well and I surely have no complaints. I am working with an interested and quite lovely Family Doctor and PMR specialist , however, time is ticking on and I'm still at 25 mgs a day of Prendnison plus now Methatrexate …. and trying to get off the stuff is proving difficult and disappointing. I am good at following directions, and I am not a complainer, but I have failed twice now. The forums and various groups on line have really helped in the past few days to understand that, although what's happening for me is not that common, there are thousands of people just like me across the world for whom reducing dosage is nigh on impossible. For me it has been a case of UP, UP, UP. I simply cannot take 30 mgs a day without a world wide hunt for help.
So … I've got the northern European method of decreasing dose with takes about 40 days for each step …. thank you. I understand that folks who can't reduce dosage easily have to step up and take more each time they fail … and I now know that to tell the difference between steroid withdrawal and PMR … regular over the counter pain killers will remove pain associated to steroid withdrawal, but not PMR.
So I have more questions if anyone can help. My lungs almost stopped working at the onset last November. The first CAT scan showed nodules, which have since gone away. It is not know (yet) if this is connected to the PMR, or if its a reaction to Covid vaccines or what? Also I am very active although Im now 72. I dont run marathons but I am on my feet all day every day … and also fasting intermittently to try to improve my condition of being just too heavy! Prendnisone delivered an extra 30 lbs to my otherwise tiny frame! Does one need more medication if one is busy? Does fasting affect dosage? Did anyone else loose their ability to breath at the onset of PMR. Thank you so much for any insights.