Weaning off of immunosuppressants w/ Liver Transplant

Posted by bosco17 @bosco17, Sep 11, 2020

Has anyone weened off their anti-rejection meds due to side effects — IF so-HOW?

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@bosco17

Are we being kept on immunosuppressants so big pharm can make billions?

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@bosco17 – There are strict laws in place in and outside the US with severe penalties that prevent drug companies from providing financial incentives to doctors. They have no reason to prescribe unnecessary medications. The studies I’ve seen so far indicate some can be weaned off, others can’t, and there isn’t data to determine who can without going into rejection. Basically it’s Russian roulette unless you are being closely monitored and they can (hopefully) reverse it before there’s permanent damage. I recommend you volunteer for a research study if you want to try. Otherwise there’s a good chance you will be denied a re-transplant due to noncompliance if it goes wrong.

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