1. < Polymyalgia Rheumatica (PMR)
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Weaning off of all medicine - prednisone and methotrexate

Posted by rl24 @rl24, Sep 26, 2024

I asked my Rheum about ending all medicine - what would happen from the inflammation. She expressed concern about the inflammation spreading to the cardio system causing problems with the vascular system. I have not been able to get past 7mgs of prednisone without a flare, so she has started me on methotrexate. I am so tired of taking medicines with such awful side effects. Frustrated. Any thoughts?

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baciobabe | @baciobabe | Sep 11 2:03pm
In reply to @sastrep "I have been with PMR for 5 years and we started tapering off the medications (Prednisone..." + (show)
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I have been with PMR for 5 years and we started tapering off the medications (Prednisone and Methotrexate) but it is not working. It looks like I have a flare up again. Any suggestions are well received.

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What’s the largest dosage of Methotrexate you e taken?

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Sep 12 10:40am
In reply to @sastrep "I have been with PMR for 5 years and we started tapering off the medications (Prednisone..." + (show)
Profile picture for sastrep @sastrep

I have been with PMR for 5 years and we started tapering off the medications (Prednisone and Methotrexate) but it is not working. It looks like I have a flare up again. Any suggestions are well received.

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Hello @sastrep,

I combined your discussion into an existing discussion on tapering off prednisone and methotrexate titled:

"Weaning off of all medicine - prednisone and methotrexate"
- https://connect.mayoclinic.org/discussion/weaning-off-of-all-medicine-prednisone-and-methotrexate/

@rl24 started this discussion and you have met @dadcue here as well. I'd like to also invite @rwerky and @ill back as well.

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naveiraps | @naveiraps | Sep 13 8:43am

I have been drinking DOSE for a week now and my inflammation is gone

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tweetypie13 | @tweetypie13 | Sep 13 1:13pm
In reply to @naveiraps "I have been drinking DOSE for a week now and my inflammation is gone" + (show)
Profile picture for naveiraps @naveiraps

I have been drinking DOSE for a week now and my inflammation is gone

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What is DOSE?

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naveiraps | @naveiraps | Sep 13 2:06pm

It is do your liver tastes like orange juice

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