Water after 6pm?
Hello.
I watched a patient of National Jewish Hospital give a short presentation about MAC.
She said no water after 6 pm
No reason why.
I have started my medicine and take the R&E about 9pm.
2R and 3E.
Just started last week.
Does anyone else take in evening?
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You said a mouthful...."anything can change in a minute."
I am so aware of that as I am sure most of us are and it keeps us, me, on pins and needles somewhat until I, we. get each sputum test result back.
Quietly in the back of my mind I am nearly constantly affirming to myself....you are doing fine it's going to be OK.....and yet there is also that tinge of "waiting for the next shoe to drop" ....how long can my 'luck' hold out with keeping the MAI at the low level without taking the antibiotics. Time will tell.
Barbara
I am the same way until I get back sputum results and CT scan report. Each little change in my sputum or something else and I am constantly having to reassure myself. Then I am on pins and needles waiting for test results. I often wish there a magic machine to hold up like a mirror and look in our lungs everyday to check and see what's going on.
Jill NJH gastroenterologist tests resulted in my not being diagnosed with GERD....however there is no doubt in my mind that I must cause acid to rise at night with my often finding myself having turned on my back and lower on the wedge pillow, nearly flat on my back. I wake up with a burning tongue that I believe is caused by stomach acid. I don't have that during the day. What NJH did find I have...... a small hiatal hernia and that can cause acid reflux problems. So to me, I may be wrong in my interpretation, it makes sense because the position we sleep in can affect what happens to our system at night.
You probably have heard that NJH strongly relates acid reflux as a possible, possible, precursor to Bronchiectasis. This nightly burning of my tongue was happening long before my BE problems surfaced when I was sleeping flat on my back for over 8 years. (How could I not let my little Yorkie sleep on my "lap" at night...😁 as I lay there flat on my back....which may have been another contributor to this entire BE/infection problem....who knows. She left me and crossed the rainbow bridge in 2020.😥) So much going on for all of us in 2020.
So glad you went to NJH to have the information you have for yourself.
To me all the tests were worth the trip to understand what was, is or was not going on with my system.
Barbara
Who knows maybe in time there might be "a mirror and look in our lungs everyday to check and see what's going on." 🤔 😁
So many things discovered through the years, sometimes sadly, too late for some people. Some things, not medically, would have made life for my Mom who was bed ridden with emphysema much easier and convenient for her and would have made her feel less helpless....ceiling fan, radio remotes etc. etc. She loved it when I had a garage door remote put on her detached garage so she could at least do the task she was use to doing, air out the garage......... that was when she was able to walk to the back area of the inside of the house and watch the door raise somewhat as she pressed the remote button. 😊
Barbara