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I am just curious. How many of you have been misdiagnosed by a radiologist. Was it on your mamo or an MRI…or something else? How many were told you did not have breast cancer when you did?
I was told I was too young to have it by the first doctor. Then 4 months later when there was a walnut sticking out, the radiologist said there was something but not important, his words were “round and lobular”. The a needle core biopsy, with many cores into this growing thing on my chest wall, yep you guessed it, negative. Then my wonderful doctor said “well you know it’s there, and I know it’s there and I don’t like it, let’s take it out and put it under a microscope” and my journey began. That was 17 years ago and thanks to that doctor, I am still here talking about it, and advocating for patients to keep looking for answers, whatever those answers may be.
4+ years before being diagnosed with BC, I had pain in the bottom of one breast. I had a mammogram and U/S that didn't show anything and also insisted on MRI at that time, which were negative or so they thought. After my BC diagnosis 4+ years later, I sought all my records and saw the radiology note stating "Recommend follow up with surgeon," which I had never been told to do. I questioned my gyne who said that that was standard CYA language for radiologists and that there was nothing for a surgeon to do as there was nothing found on the MRI. I am unsure of why the radiologist would have written that had they not seen something questionable which could have at least warranted a biopsy. (I had a mother and her two sisters who had BC so it was in my family and I was hypervigilant.) 4+ years later I found a tumor in the proximity of where this breast hurt me 4+ years prior. It was a tricky type of cancer that is harder to detect compounded by very dense breasts. Coincidence? I will never know, but we need to follow our guts. I guess this speaks volumes to breast self-exam, which even I got lax on depending more on the accuracy of mammo and U/S, but they are not foolproof. I am going for breast thermogram next month as it is heat sensitive and detects potential cancer hotspots without radiation, which you can then follow up on as needed.
Yes, I, too, had a misdiagnosis. Two years before I was diagnosed with Stage 3 (tumor in right breast and lymph node involvement), I found three lumps in my right breast in 2017. I went for a mammogram and ultrasound. They said they don't appear to be cancer and to monitor with 6-month check-ups. I did 6 months later. Then I moved. A year later I was diagnosed with Stage 3. I didn't have a biopsy until 2019. Why? I'll never know. Now I'm Stage 4 with liver mets. Not a great prognosis. Just going down the chemo train until the last stop when they tell me it doesn't work anymore and my liver can't take any more drugs. Luckily, I have very little pain or discomfort yet. Reading a book called "Being Mortal." It puts things in perspective for my next stage of getting ready to enter the little last stage of life. So scary. But I will pray. And I will hold my loved ones close and dear. I wish you the best and hope you have a better outcome. Yes, one needs to ask for things/procedures/screenings/biopsies even when doctors don't. I have learned that the hard way. Insist! Its your life.
@trivia – I am so sorry to hear what happened to you!
Your story is quite common- “ life happens “ – you moved- and time goes without anyone telling you what has to be done.
My diagnosis was” missed”- I would say the doctor forgot to report all mammo findings until a year and a half later after I had another mammogram. He then discussed the change in calcifications found earlier.
At this point the tumor was large enough to require a mastectomy, chemo etc.
I’m still here, but developed other ailments from the chemo.
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I’m so sorry to hear of your suffering and am amazed at your strength! There is always hope, regardless of what “Stage” diagnosis we are told. If you haven’t looked into alternative therapies as an adjunct to your chemotherapy, you might be interested to know many people fully recover or live long lives after Stage 4 cancer diagnosis. The Truth About Cancer.com has a wealth of information in that regard. Wishing you peace, happiness and love. 💕
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