Was there an uptick in autoimmune conditions after COVID vaccines?

Posted by blinken @blinken, Jul 23 7:20am

A few years ago I experienced intense vaginal itching. I tried various over the counter creams, none of which helped. In desperation I went to a walk-in clinic (I was unable to get in to my primary care doctor) and I was examined by a Medical Assistant who prescribed a steroid cream. She said that there was a stronger one that she hesitated to prescribe because it can cause thinning of the skin. The cream was not successful and eventually I was able to see my PCP who said this was Lichen Planus and prescribed Betamethasone cream. That, thankfully was effective. The following year when I had my yearly health check I complained that my legs were very itchy. My PCP looked at them and said that I could try an OTC steroid cream. This was shortly after I had a COVID booster. I then made an appointment with my dermatologist and asked if he thought I was having a reaction to a new medication that I was taking for blood pressure. He said "this isn't a drug reaction, I think this is Lichen Planus!" He prescribed Betamethasone and it was effective although I still get occasional red, itchy bumps. I have learned (from Mayo Clinic Connect) that this is an autoimmune condition and wonder now if an uptick in autoimmune conditions has been seen since the administration of COVID vaccines.

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Note from the Community Director

The vaccines that help protect against COVID-19 are safe and effective. Clinical trials tested the vaccines to make sure of those facts. Healthcare professionals, researchers and health agencies continue to watch for rare side effects, even after hundreds of millions of doses have been given in the United States.

Side effects that don't go away after a few days are thought of as long term. Vaccines rarely cause any long-term side effects.

If you're concerned about side effects, safety data on COVID-19 vaccines is reported to a national program called the Vaccine Adverse Event Reporting System in the U.S. This data is available to the public. The U.S. Centers for Disease Control and Protection (CDC) also has created v-safe, a smartphone-based tool that allows users to report COVID-19 vaccine side effects.

If you have other questions or concerns about your symptoms, talk to your healthcare professional.

From Mayo Clinic: COVID-19 vaccines: Get the facts

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

I had the same symptoms as the woman who posted this. I also had serious, painful leg ulcers that were never diagnosed. I had severe iron deficiency anemia and need iron infusions. My Hematologist, who is the Director is Stem Cell Research at a Teaching Hospital, asked me if I had the COVID Vaccines during my initial intake. I'm not convinced the vaccines were safe when they first came out. They were rushed.

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Profile picture for blinken @blinken

It was not my intent to cast aspersions on the COVID vaccine when I posed the question about an uptick in autoimmune conditions. It was an honest search for information since I had two 'events' following two vaccine doses. I want to be as informed as possible before making a decision about my health. I don't believe the vaccine actually caused my lichen outbreaks. I had done considerable research after my diagnoses and learned that lichen planus is considered to be related to autoimmune conditions under the heading Rheumatoid. I have had ridges in my fingernails for many years and I understand that it is also related. I have not gone to a Rheumatologist, nor had extensive testing done in that regard. What I have come to suspect is that COVID vaccines and perhaps getting COVID changes things in our systems which then might wake the sleeping dog. I am very surprised at the responses that my question has caused and because of those I will think harder and longer before getting another booster, but I probably will continue to get them. I have been able to avoid getting COVID so far but my daughters and husbands have all gotten it. Some got the vaccine, others not. Thank you all for contributing to my question and I hope you can find relief.

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@blinken == I've made the same surmise, that the vaccine (maybe any vaccine) can, as you say, "wake the sleeping dog." When I look back on my life, I remember how my gums became inflamed in my mid-20s and how dentists would denigrate me, assuming my hygiene was inadequate--even though I brushed, and flossed!, daily, and was having cleanings twice a year. Two hygienists over the years expressed dismay and one actually told me I had OLP (back in 1999). The dentist pooh-poohed the idea.

After my Covid shot, I developed lesions. I knew. Went to the dentist, told him I thought I had OLP, and he looked at me like I was a stupid woman enamored of Dr. Google. Then he examined me, pointed to just one lesion, and said yes, that might be OLP. So he sent me to an oral surgeon who took the confirming biopsy. Vindication!

So, yes, the autoimmune response spurred by the vax probably threw a condition on a low boil into a rolling boil. The same thing happened when I contracted Covid itself a year later, because disease itself causes an autoimmune response too. We've got an autoimmune disease and may have had autoimmune conditions in the past that weren't noticed. E.g., I've had autoimmune responses to spider bites in the past, with RH factor turning up in my blood work. I also never had problems with my gums until I got a couple of gold fillings back in the 1970s. They may have been the trigger.

It's hard to know for sure about these things. Recently I read an interesting article pointing out that people want to look for an ultimate cause of their conditions when, in fact, there may be multiple causes.

Good luck, everyone, and maybe try not to be tortured by what-ifs and whys. ❤️

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Profile picture for artemis1886 @artemis1886

@creondave I had no heart problems prior to the vaccine. The only thing I took was an occasional Tylenol. So no other meds could be attributed to my diagnosis of cardiac autonomic neuropathy. I was on no other meds. I am not in my 70’s. I am a lot younger than that. So out of the eight years I have two left. If what they say is true I will be leaving behind two kids for my husband to raise.

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@artemis1886
I am sad about your condition. Honestly I too think those so called vaccines did more harm than good.
It’s interesting that all my symptoms started right after the vaccines.
Heart was a major issue.with that vaccine.
I hope some miracle happens for you. ❤️

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Profile picture for artemis1886 @artemis1886

This is a fallacy! My cardiologist and electrophysiologist said before the Covid Vaccine was released in the journal of cardiology it talked about patients getting cardiac autonomic neuropathy as a side effect. Mine stated the day after my second injection. Cardiologist printed out the article for me to read. They knew the side effects that’s why they had us sign the piece of paper saying we could not take legal action. I was advised never to take the shot again. I was given eight years left to live. The arrhythmias have gotten worse along with my bp going up and down. This was documented before being released to the public as a known side effect. All these doctors are pro Covid shots but it has been documented that it changes your dna.
https://pmc.ncbi.nlm.nih.gov/articles/PMC9876036/
https://www.sciencedirect.com/science/article/pii/S0264410X25003196
https://pmc.ncbi.nlm.nih.gov/articles/PMC9876036/
https://www.ahajournals.org/doi/10.1161/CIR.0000000000001290

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@artemis1886 it is maddening when you know your body best. You know what happened to YOUR body after you got the vaccine. No one else knows and even when research validated your lived experience there will always be folks who deny deny deny and are happy to voice their denials without an ounce of effort to even google it 🤦‍♀️. You and I know what happened suddenly to our health. We just need to keep pushing for more research in order to get the best treatment possible for ourselves. It’s unbelievable how our media and healthcare professionals pushed this vaccine and then turn their backs when they saw the adverse events in real time. I think many people cannot bring themselves to believe anything opposite of what they were told. It’s pretty disappointing and eye opening. If media were honest they would be covering this story for many people. Instead we are dismissed as being anti vaxxers etc. lol which is pretty funny….if we were anti vaxxers we wouldn’t have got the so called vaccines in the first place 🤦‍♀️ so in my mind, if your going to lie to the public about making blanket statements that the vaccine is safe and effective for EVERYONE. For every human being getting it and then you find out that it is NOT safe and effective for EVERYONE. At least have the decency to help the injured and treat them as they/we deserve to be treated. I mean, how demeaning and demoralizing to think your doing the right thing and when you suddenly or even get sick over some time are then ignored, be treated like your crazy and not be validated or told the truth about your sudden onset serious debilitating illness is a crime. It is sickening when you are so sick in a daily basis and your dealing with a life limiting illness was and your on your own. Trust me, I believe you and there are many people who believe you and know the pain and suffering your enduring everyday. One day, there will be accountability and honesty but it will likely be I to the future. In the meantime keep posting your story and give yourself permission to be angry. We have every right to be angry. We need to keep advocating for ourselves and others who have been silenced or dismissed. Hang in there and keep sharing your experience because it helps others become aware and connect the dots for themselves and loved ones who had a serious adverse reaction, they might not feel so alone!!

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Profile picture for spondee @spondee

@blinken == I've made the same surmise, that the vaccine (maybe any vaccine) can, as you say, "wake the sleeping dog." When I look back on my life, I remember how my gums became inflamed in my mid-20s and how dentists would denigrate me, assuming my hygiene was inadequate--even though I brushed, and flossed!, daily, and was having cleanings twice a year. Two hygienists over the years expressed dismay and one actually told me I had OLP (back in 1999). The dentist pooh-poohed the idea.

After my Covid shot, I developed lesions. I knew. Went to the dentist, told him I thought I had OLP, and he looked at me like I was a stupid woman enamored of Dr. Google. Then he examined me, pointed to just one lesion, and said yes, that might be OLP. So he sent me to an oral surgeon who took the confirming biopsy. Vindication!

So, yes, the autoimmune response spurred by the vax probably threw a condition on a low boil into a rolling boil. The same thing happened when I contracted Covid itself a year later, because disease itself causes an autoimmune response too. We've got an autoimmune disease and may have had autoimmune conditions in the past that weren't noticed. E.g., I've had autoimmune responses to spider bites in the past, with RH factor turning up in my blood work. I also never had problems with my gums until I got a couple of gold fillings back in the 1970s. They may have been the trigger.

It's hard to know for sure about these things. Recently I read an interesting article pointing out that people want to look for an ultimate cause of their conditions when, in fact, there may be multiple causes.

Good luck, everyone, and maybe try not to be tortured by what-ifs and whys. ❤️

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@spondee, thanks for your post and the wisdom before the heart.
This thread has become poignant and edifying.

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I agree, wholeheartedly, after talking to my immunologist and my primary care. I developed a very rare syndrome, parsonage Turner syndrome, which has left my right arm with very limited mobility, accompanied by extreme pain. It took months to diagnose. The doctors had no idea and I did massive massive research and contacted the doctor at John Hopkins who told me which test to get in indeed I did have it… Many mistakes were made along the way that didn’t help with my recovery. Had an orthopedic surgeon operate, thinking it was a rotator tear when I kept telling him it was severe nerve pain., It was my mistake for forgetting The Surgery. My axillary nerve is severely damaged. All from two Covid vaccines. Even before we knew, I had this My immunologist said you should not have gotten any of them. Live and learn, I suppose but it’s a hard lesson for many of us isn’t it? I’m so sorry for everyone else’s troubles..

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Profile picture for spondee @spondee

@blinken == I've made the same surmise, that the vaccine (maybe any vaccine) can, as you say, "wake the sleeping dog." When I look back on my life, I remember how my gums became inflamed in my mid-20s and how dentists would denigrate me, assuming my hygiene was inadequate--even though I brushed, and flossed!, daily, and was having cleanings twice a year. Two hygienists over the years expressed dismay and one actually told me I had OLP (back in 1999). The dentist pooh-poohed the idea.

After my Covid shot, I developed lesions. I knew. Went to the dentist, told him I thought I had OLP, and he looked at me like I was a stupid woman enamored of Dr. Google. Then he examined me, pointed to just one lesion, and said yes, that might be OLP. So he sent me to an oral surgeon who took the confirming biopsy. Vindication!

So, yes, the autoimmune response spurred by the vax probably threw a condition on a low boil into a rolling boil. The same thing happened when I contracted Covid itself a year later, because disease itself causes an autoimmune response too. We've got an autoimmune disease and may have had autoimmune conditions in the past that weren't noticed. E.g., I've had autoimmune responses to spider bites in the past, with RH factor turning up in my blood work. I also never had problems with my gums until I got a couple of gold fillings back in the 1970s. They may have been the trigger.

It's hard to know for sure about these things. Recently I read an interesting article pointing out that people want to look for an ultimate cause of their conditions when, in fact, there may be multiple causes.

Good luck, everyone, and maybe try not to be tortured by what-ifs and whys. ❤️

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@spondee so here is something interesting I left my window open because the room was very hot well
The no see ums had a feast on the left side of my scalp the reaction was terrible swelling I could not even touch that side of my head
I took a powerful antihistamine but having Sjogrens everything is dry so I went even dryer it was terrible. I agree all my symptoms started right after my vaccines
And I have been suffering ever since so these forums help we get to help each other 😀

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Profile picture for leigh17 @leigh17

I agree, wholeheartedly, after talking to my immunologist and my primary care. I developed a very rare syndrome, parsonage Turner syndrome, which has left my right arm with very limited mobility, accompanied by extreme pain. It took months to diagnose. The doctors had no idea and I did massive massive research and contacted the doctor at John Hopkins who told me which test to get in indeed I did have it… Many mistakes were made along the way that didn’t help with my recovery. Had an orthopedic surgeon operate, thinking it was a rotator tear when I kept telling him it was severe nerve pain., It was my mistake for forgetting The Surgery. My axillary nerve is severely damaged. All from two Covid vaccines. Even before we knew, I had this My immunologist said you should not have gotten any of them. Live and learn, I suppose but it’s a hard lesson for many of us isn’t it? I’m so sorry for everyone else’s troubles..

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@leigh17 it is a hard lesson not enough research was done before sending out these vaccines.

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A very hard lesson, but do you think it has been learned.

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Profile picture for leigh17 @leigh17

I agree, wholeheartedly, after talking to my immunologist and my primary care. I developed a very rare syndrome, parsonage Turner syndrome, which has left my right arm with very limited mobility, accompanied by extreme pain. It took months to diagnose. The doctors had no idea and I did massive massive research and contacted the doctor at John Hopkins who told me which test to get in indeed I did have it… Many mistakes were made along the way that didn’t help with my recovery. Had an orthopedic surgeon operate, thinking it was a rotator tear when I kept telling him it was severe nerve pain., It was my mistake for forgetting The Surgery. My axillary nerve is severely damaged. All from two Covid vaccines. Even before we knew, I had this My immunologist said you should not have gotten any of them. Live and learn, I suppose but it’s a hard lesson for many of us isn’t it? I’m so sorry for everyone else’s troubles..

Jump to this post

@leigh17 We cannot always blame the specific vaccine for the damage. A pharmacist injected the Flu vaccine directly into my shoulder capsule several years (pre-2020) ago, which led to MANY months of agony. When he was preparing the site, I told him it was too high, and he dismissed my concern.

My orthopedist who finally diagnosed it said he sees this at least a few times per year.
Now I only get injections from a trained "shot nurse."

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