Kidney cancer patients: Let's connect and introduce yourself

Posted by koke @koke, May 2, 2023

I have stage 4 kidney cancer. Taking target and immunotherapy drugs. Would love to connect with anyone who is going through the same process or has kidney cancer!

Interested in more discussions like this? Go to the Kidney Cancer Support Group.

@ronspon59

Hi love my name is Ron the farmer I'm 64 years old super active person I was diagnosed with rcc two years ago.i went thru one year of complete pain issues almost died went from 185 to 130lbs in 6 weeks I just kept praying ,praying,praying God heard my crys gave me bad ass doctors I have a growth on my kidney that was half my kidney it was engulfed by this tumor it spread to both my lungs my humerus into the bone and my nuts that was 11 months ago.now it's out of my lungs and alittle on my humerus and out of my nuts. I have gained 32lbs back I can ride my rode bike 5 Miles in 28 min I was a avid boxer and been athletic all my life so I train like it's the the last day of my life.thankyou Jesus you are the only way.amen

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Keytruda and lenvi ma is my kimo

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@ronspon59

Sally my name is Ron the farmer I to have rcc I'm 64 years old I have trained all my life excercise will improve your quality of life start out doing little stuff like arm raises any movement will help u to combat anything that's trying to stop u

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Thank you Ron, I appreciate your reply. I haven't been very active as the Votrient pill makes me so nauseous but I will try very hard to start exercising again. I believe walking is excellent.

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@goibib

Thank you Ron, I appreciate your reply. I haven't been very active as the Votrient pill makes me so nauseous but I will try very hard to start exercising again. I believe walking is excellent.

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I'm so sorry honey I serve a mighty God I have cheated death more times than i can count I excepted Jesus in my heart when I was in juvenile hall at the age 15 I can honestly say He is true to his word the lion of Judah is my shield he gives mighty angels charge over me.i will pray for u love.

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I too serve a mighty God - Thank you for your prayers and I will pray for you too.

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@ronsale

I was diagnosed after biopsy a few weeks ago as having a lesion on my left kidney that has high grade carcinoma. Urologist said that I need to have the kidney removed. I am in the process of making a decision. Since I am 81 and was treated with radiation for prostate cancer a little over a year ago, I am very concerned about how long the recovery period will be and how difficult and painful and life changing it will be at my age. I have a chest CT scan scheduled in a week and have to have kidney stent removed in the next couple of months. As doctor said this is a treatment and not a cure; I already told him that I don't want any type of chemo. I am wondering that what I can expect if I go through with the procedure in the next couple of months.

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I have had 2 kidney cancers, with 2 partial nephrectomies , Clear cell on left, papillary on right. Surgery was 90 days apart. My recovery was complicated by multiple infections and took about 6 weeks before I could really function. My 86 yr old mother had bladder cancer with chemo and radiation at 83 , made her very exhausted for about 3 months after treatment. At 85 she had her kidney removed . I was her care provider. She had trouble eating, walking just made her very weak for about 3 weeks. She stayed in our home, I cared for her she had a nurse and rehab pt come every few days. She was in hospital 1 week... required my help with bathing, wound care, meals, a commode bedside and my care intensively for 2 weeks afterwards. Her mind was all little fuzzy for about 2 weeks after but then vleared. She was able to walk with her walker at 2 weeks for short steps and then by 3 weeks around the house, 4 weeks doing stairs unaided but slowly. Long distance
like doctor appts we used a wheel chair. By 8 weeks she was only using a cane and doing well. She returned to her home at about 90 days, with only her roommate making occasional meals and doing her shopping. It's been a year and she is doing well. Walking, swimming for exercise etc. Hope that helps .

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@lbrockme

I have had 2 kidney cancers, with 2 partial nephrectomies , Clear cell on left, papillary on right. Surgery was 90 days apart. My recovery was complicated by multiple infections and took about 6 weeks before I could really function. My 86 yr old mother had bladder cancer with chemo and radiation at 83 , made her very exhausted for about 3 months after treatment. At 85 she had her kidney removed . I was her care provider. She had trouble eating, walking just made her very weak for about 3 weeks. She stayed in our home, I cared for her she had a nurse and rehab pt come every few days. She was in hospital 1 week... required my help with bathing, wound care, meals, a commode bedside and my care intensively for 2 weeks afterwards. Her mind was all little fuzzy for about 2 weeks after but then vleared. She was able to walk with her walker at 2 weeks for short steps and then by 3 weeks around the house, 4 weeks doing stairs unaided but slowly. Long distance
like doctor appts we used a wheel chair. By 8 weeks she was only using a cane and doing well. She returned to her home at about 90 days, with only her roommate making occasional meals and doing her shopping. It's been a year and she is doing well. Walking, swimming for exercise etc. Hope that helps .

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The after effects of this radical surgery is why I am very hesitant to have it done. At this point I am able to do my daily hour walks easily and other routine things easily such as driving my new car and feel reasonably good for my age. Thanks for the information. I am still leaning towards just letting nature take its course and continue to enjoy my life; at 81 I value each day that I still feel well.

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@ronsale

The after effects of this radical surgery is why I am very hesitant to have it done. At this point I am able to do my daily hour walks easily and other routine things easily such as driving my new car and feel reasonably good for my age. Thanks for the information. I am still leaning towards just letting nature take its course and continue to enjoy my life; at 81 I value each day that I still feel well.

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We talked intensely about that as well, given her age. But for her, it was partially because she was reasonably healthy that she opted to try the surgery. She decided that 2 or 3 months of difficulty was worth it in her case. She had just had chemo and radiation so she was a little run down after that. She feels much better and the weight of not having the cancer looming helped her as well. She has testing each 6 months and moving to yearly soon. It's all about balance and knowing yourself ... and not letting fear make decisions for you I guess. Hoping you are doing well .

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@lbrockme

We talked intensely about that as well, given her age. But for her, it was partially because she was reasonably healthy that she opted to try the surgery. She decided that 2 or 3 months of difficulty was worth it in her case. She had just had chemo and radiation so she was a little run down after that. She feels much better and the weight of not having the cancer looming helped her as well. She has testing each 6 months and moving to yearly soon. It's all about balance and knowing yourself ... and not letting fear make decisions for you I guess. Hoping you are doing well .

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Thanks.

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I am just starting my journey. I am 68 years old. I had ultrasound two weeks ago, MRI scheduled this week. Now what? Could they tell what type of cancer or growth without surgery? Was biopsy helpful? Or do you fly by seat of your pants? Did you have surgery and then find out if it was cancerous? How many surgeons did you go to, before you picked one? WOW!! I could ask a hundred more. Any help would be great. Crazy world.

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My last comment did not mention what was affected. I am being treated for possible kidney cancer.

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