1. < Blood Cancers & Disorders

Waldenstrom Macroglobulinemia with MYD88-wild type

Posted by BillBarker @pices, Jun 29, 2022

Have recently been diagnosed with above cancer and currently receiving Rituximab, Dexamethasone, Bortezomib. Still early in treatment cycle but no response yet. IgM continues to rise after 3 sessions of plasmapheresis (currently 4,500 mg/dL). The MYD88-wild type complicates treatment options. What are the treatment options for this unmutated WM?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | May 30, 2023
In reply to @psue4 "Just an update on my Dr's last visit. I think I sounded off about the Dr's..." + (show)
@psue4

Just an update on my Dr's last visit. I think I sounded off about the Dr's to fast, and I want to say I am sorry. As a mother you want the results to come in quick and sooner then later. As of 5.17 her last visit, the Dr's said he felt good about her progress. Kidney Dr, felt somewhat the same and adjusted her meds. 3 chemo drugs will continue. WM so far hasn't broke my daughter. She continues to eat healthy and exercises. I will always be here doing research and she is reaching out to support grps. Bless you all. Never give up!

Jump to this post

Ah, yes, Sue. Sometimes the mother bear roars too soon. We're programmed to protect. 🙂

I really appreciate your returning with this update. I hope with continue medical progress, your daughter's will and determination will persist and flourish. She is lucky to have you as her support, researcher, and momma bear.

REPLY
View MoreView Less
Please sign in or register to post a reply.