Waiting for scan results. Is this part of scanxiety?

Posted by azkidney57 @azkidney57, Oct 27, 2019

So I am waiting to know the results of my recent scans. Is this part of scanxiety? Or is it results anxiety or post testing angst? Whatever one could call it I don’t like it! I wish I could know right away! The results of my own scans have to go through my doctors first! I realize that is how it’s done but it makes me more anxious. I don’t like having to wait. How does anyone else handle the waiting game? I have been trying to be relaxed about it. The underlying dread of “what if”! My arm still hurts from where I received the contrast for my MRI. I had a dream about being inside the “tube”. The clicking and clacking of machine the voice that told me to hold my breath and breathe. I wonder if I could get a gin and tonic to take the edge off. Then I was cold and hot at the same time! It was a bit like torture. The tube is like a coffin, confining and restricting. It was uncomfortable in the machine and then my nose started to itch and I couldn’t move my arms!

@eileen61

My first post-treatment MRI is scheduled for 11-25-2019. My 30 proton beam radiation treatments and 42 oral chemo doses ended on 10-28-2019 for grade 3 anaplastic astrocytoma glioma. I'm feeling well, except for fatigue, feeling colder than normal and still not much taste. I've returned back to work, albeit part-time and am hoping to get cleared for full time at the time of my MRI and oncology visits. I'm still on anti-seizure meds and well get a prescription for 5 more doses of Temodar (chemo). I've been trying to stay busy, but the closer my scan date gets, I'm starting to really dread having to go. Any tips to combat the fear and anxiety?

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@eileen61
So what are youl nervous about? Are you claustrophobic? If so you can ask to have an open MRI. You could ask to be put to sleep. They have short acting sleep medications available or you might ask your doctor for a tranquilizer. There are certain medical health conditions where an MRI may not be recommend, Epilepsy, which is my nemesis, being one but I’ve had at least 4 with no problems. I’d rather have. You could ask if a CT would be appropriate in your condition although CT’s use radiation. There are about 40 million MRI’s done every year.
Jake

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@eileen61

My first post-treatment MRI is scheduled for 11-25-2019. My 30 proton beam radiation treatments and 42 oral chemo doses ended on 10-28-2019 for grade 3 anaplastic astrocytoma glioma. I'm feeling well, except for fatigue, feeling colder than normal and still not much taste. I've returned back to work, albeit part-time and am hoping to get cleared for full time at the time of my MRI and oncology visits. I'm still on anti-seizure meds and well get a prescription for 5 more doses of Temodar (chemo). I've been trying to stay busy, but the closer my scan date gets, I'm starting to really dread having to go. Any tips to combat the fear and anxiety?

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@eileen61 Good morning! Are you worried about the MRI scan or the results? If you’re worried about the outcome, please think positive! You’re feeling better and you’re back to work so the radiation and chemo must have had an effect. If you’re worried about having the MRI, there are lots of helpful hints on this discussion thread. I was SO nervous last month before my MRI, but I followed advice, took a Valium, kept my eyes closed, and thought of other things. It was so much better than all the other ones. A friend followed all the advice and told me that she had no problem! You’ll be OK, I have faith in you. Please let me know how everything goes.

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So True!
Sundance(RB)

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@eileen61– Good afternoon. I had Proton Beam radiation and photon as well for lung cancer. I also have taken Valium before an MRI. There are some open MRI machines but not every place has one. Have you had your MRI as yet? The results?

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@eileen61

My first post-treatment MRI is scheduled for 11-25-2019. My 30 proton beam radiation treatments and 42 oral chemo doses ended on 10-28-2019 for grade 3 anaplastic astrocytoma glioma. I'm feeling well, except for fatigue, feeling colder than normal and still not much taste. I've returned back to work, albeit part-time and am hoping to get cleared for full time at the time of my MRI and oncology visits. I'm still on anti-seizure meds and well get a prescription for 5 more doses of Temodar (chemo). I've been trying to stay busy, but the closer my scan date gets, I'm starting to really dread having to go. Any tips to combat the fear and anxiety?

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Hi @eileen61, I'll be thinking of you as you prepare for Monday.

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Not worried about the actual MRI, just the results.

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I have had tons of MRI's & when i ask the doctor they will have them give me some valium which does help during the MRI. As for after the test the waiting is the worst and I try to keep as busy as possible and get as much sleep as I can. Hope this helps.
Denny

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@eileen61

Not worried about the actual MRI, just the results.

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@eileen61 – I know that a lot of people have trouble being inside an enclosed space. I for one, hate it. MRI machines aren't made for comfort at all. That being said you are very lucky not to be one. Test results, no matter which ones, always elicits anxiety. I think that the reason for this is because when we are ill, we lose control. We depend on the medical profession to cure us or at least make us feel better. We turn over our physical selves and that gives us a sense of losing control. Plus humans seem to like tormenting ourselves, lol. We anticipate which makes us feel even worse. Humans can come up with the worst scenarios that might occur. When you find yourself doing this try and see if it's a possible scenario. Maybe think of ways that you have dealt with "bad news" before and implement those. Keep busy too. We can't change the future but we can prepare for it. How have you dealt with your anticipations?

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@eileen61

My first post-treatment MRI is scheduled for 11-25-2019. My 30 proton beam radiation treatments and 42 oral chemo doses ended on 10-28-2019 for grade 3 anaplastic astrocytoma glioma. I'm feeling well, except for fatigue, feeling colder than normal and still not much taste. I've returned back to work, albeit part-time and am hoping to get cleared for full time at the time of my MRI and oncology visits. I'm still on anti-seizure meds and well get a prescription for 5 more doses of Temodar (chemo). I've been trying to stay busy, but the closer my scan date gets, I'm starting to really dread having to go. Any tips to combat the fear and anxiety?

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@eileen61 We will all be thinking about you tomorrow and hoping that the results will be good. Try to be positive about it. I have yearly MRIs to check to see if cancer is recurring and I just tell myself that it is not! So far, so good.
JK

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Sundance is sending you Hope and Blessings! Think of a very Special time in your Life or a Special place in your Life and you'll come through it!
Sundance(RB)

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@sundance6

Sundance is sending you Hope and Blessings! Think of a very Special time in your Life or a Special place in your Life and you'll come through it!
Sundance(RB)

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Thank you. This experience has been full of blessings and we are again reminded of a wonderful life.

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@azkidney57 I think we all go through this–waiting for scans be they CT, PET scan, or whatever. It is normal. One thing that helps, but doesn't quite take away the anxiety for me is to lose myself in a great novel–something of historical fiction, or find a series on TV and binge watch it, or several. I also play my piano. I guess the point is anything that will, even for a little while, get your mind of the upcoming tests and results. Also acknowledging the anxiety and not working to push it down helps. It is absolutely normal to have worries about these tests and their results. So let it happen, but tell yourself you cannot, or would not want to be in a position where you don't have access to these medical tests.
Also, if you are a praying person, pray, pray, pray. If you are not, mindful meditation–there were some good comments on Mayo Clinic Connect–helps a number of people. I know what you are going through and it is not easy. "Talking" about your feelings here is a great help and no one will judge you for your anxiety. You can get a lot of tips from others here. Know I am thinking of you and praying for you. Please, please, keep us posted. We care here!

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