Vocal cord paralysis

Posted by A.Jane @ajane, Nov 4, 2012

I have left vocal cord paralysis . Had injection surgery twice with no benefit. I’m a active professional and need to talk. anyone out there found success with treatment at Mayo clinic ?

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My daughter, who just turned 18, has bilateral vocal cord paralysis that required her to get a tracheostomy to beath. It is a complication from having her thyroid removed a year ago. She is having a nerve reinervation surgery on Nov 9. Hopefully this will allow her to have her trach removed. The surgeon said we would know if it worked within a year. I am an ondology and hospice nurse, and am terrified of making the wrong desicion of which surgery to have done. Thier is a new procedure where they implant a pacemaker into the vocal cords but it won’t be approved by the FDA until the first of the year. Anyone out there have any experience with the nerve surgery? Or help on how to deal with an angry, scared girl who people stare at constantly?

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@jennybell

My daughter, who just turned 18, has bilateral vocal cord paralysis that required her to get a tracheostomy to beath. It is a complication from having her thyroid removed a year ago. She is having a nerve reinervation surgery on Nov 9. Hopefully this will allow her to have her trach removed. The surgeon said we would know if it worked within a year. I am an ondology and hospice nurse, and am terrified of making the wrong desicion of which surgery to have done. Thier is a new procedure where they implant a pacemaker into the vocal cords but it won’t be approved by the FDA until the first of the year. Anyone out there have any experience with the nerve surgery? Or help on how to deal with an angry, scared girl who people stare at constantly?

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Wish you and your daughter all the very best. My son has Bilateral vocal cord palsy at time of his birth. He is 2.5 years old now. I can completely understand your situation. Hope all things work out fine for you.
Kevin

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I have vocal cord paralysis on both of my cords. I am now recovering from surgery #6. I do go to NY to a wonderful doctor but I would be interested if anyone out there has had these problems also and have gont to Mayo Clinic.

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@jennybell

My daughter, who just turned 18, has bilateral vocal cord paralysis that required her to get a tracheostomy to beath. It is a complication from having her thyroid removed a year ago. She is having a nerve reinervation surgery on Nov 9. Hopefully this will allow her to have her trach removed. The surgeon said we would know if it worked within a year. I am an ondology and hospice nurse, and am terrified of making the wrong desicion of which surgery to have done. Thier is a new procedure where they implant a pacemaker into the vocal cords but it won’t be approved by the FDA until the first of the year. Anyone out there have any experience with the nerve surgery? Or help on how to deal with an angry, scared girl who people stare at constantly?

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I have bilateral cord paralysis also and I did have a trach for 3 years. I have had 6 surgerys so far. The last one being the reinervation one. That was the first time I tried that. I am wondering if your daughter had it done. I had mine Sept.24 and I also got told it could take months before they know if it works. Since this last one my breathing is not good. I am now having a problem with another nerve that is working in reverse. Please tell your daughter I understand everything she is going through, I also had my thyroid removed because of cancer. Please let me know how she is and please tell her I understand she is scared because I am also. But one thing we need to do is take one day at a time and enjoy it. We will get better but it takes a very long time. I would love to talk to her.

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I had right vocal cord paralysis with left bowing and atrophy. Raspy voice for 13 months. Injection medialization improved voice for 4 weeks, but as predicted it reverted to raspy. Very hard to communicate. I had a Gore-Tex thyroplasty on Jun 1, 2012 and have had normal voice from about August until now. Voice quality and volume near normal. The recovery from the thyroplasty is moderately difficult as the swallowing mechanism is way off due to localized edema. Once that resolves, then speaking is as normal as it can be.

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Hi, I do not know what a Gore-Tex thyroplasty is. Could you explain a little?

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@jennybell

My daughter, who just turned 18, has bilateral vocal cord paralysis that required her to get a tracheostomy to beath. It is a complication from having her thyroid removed a year ago. She is having a nerve reinervation surgery on Nov 9. Hopefully this will allow her to have her trach removed. The surgeon said we would know if it worked within a year. I am an ondology and hospice nurse, and am terrified of making the wrong desicion of which surgery to have done. Thier is a new procedure where they implant a pacemaker into the vocal cords but it won’t be approved by the FDA until the first of the year. Anyone out there have any experience with the nerve surgery? Or help on how to deal with an angry, scared girl who people stare at constantly?

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My heart goes out to your daughter. I have bilateral vocal cord paralysis due to an unknown cause. I was diagnosed with a rare form of non-hodgkins lymphoma in February. The cancer occurred in my nose and sinuses.i received radiation and chemotherapy treatment, and the good news is I’ve been in remission since September. However, the VC issues keep getting worse. Every doctor i see first makes the assumption that it was caused by the radiation; however, the problem started before I ever received any cancer treatment, so that cannot be the cause. I’ve had a tracheoatomy since January due to the problem.it has gotten progressively worse, and my voice is now gone completely.there is no airflow at all through my airway (i.e. when I cover up the trach, I cannot breathe at all). I am beginning to have trouble swallowing as well, and we have discussed the possibility of having to have a feeding tube. All of the doctor’s I see have no clue why this is happening. I suggested nerve damage, since that is the cause you always read about on the Internet, but they say that the likelihood of both the right and left nerves being affected simultaneously is unlikely. Please help,if you have any ideas I would really appreciate your time in replying. Thank you

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@dand

My heart goes out to your daughter. I have bilateral vocal cord paralysis due to an unknown cause. I was diagnosed with a rare form of non-hodgkins lymphoma in February. The cancer occurred in my nose and sinuses.i received radiation and chemotherapy treatment, and the good news is I’ve been in remission since September. However, the VC issues keep getting worse. Every doctor i see first makes the assumption that it was caused by the radiation; however, the problem started before I ever received any cancer treatment, so that cannot be the cause. I’ve had a tracheoatomy since January due to the problem.it has gotten progressively worse, and my voice is now gone completely.there is no airflow at all through my airway (i.e. when I cover up the trach, I cannot breathe at all). I am beginning to have trouble swallowing as well, and we have discussed the possibility of having to have a feeding tube. All of the doctor’s I see have no clue why this is happening. I suggested nerve damage, since that is the cause you always read about on the Internet, but they say that the likelihood of both the right and left nerves being affected simultaneously is unlikely. Please help,if you have any ideas I would really appreciate your time in replying. Thank you

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Hi @dand, welcome to Mayo Clinic Connect. Thanks for sharing your experience – I’m sorry to hear what you’re going through. From what I understand, it’s fairly common for doctors not to be able to identify the cause of vocal cord paralysis, and I can imagine how frustrating it must be to not have an answer.

Some of the known causes are included in the link below. Did you experience any kind of neck or chest injury before the symptoms began?
http://www.mayoclinic.org/diseases-conditions/vocal-cord-paralysis/basics/causes/con-20026357

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@jimjudym4

I have vocal cord paralysis on both of my cords. I am now recovering from surgery #6. I do go to NY to a wonderful doctor but I would be interested if anyone out there has had these problems also and have gont to Mayo Clinic.

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I have bilateral paralysis and I totally understand what you are going through. Every treatment option is a guessing game as we suffer everyday and have few options. Because I’m off to work now I cannot expound but I am so happy to finally find a GROUP. I will be more specific in my answer later but just know you are not alone in this.

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@jimjudym4

I have vocal cord paralysis on both of my cords. I am now recovering from surgery #6. I do go to NY to a wonderful doctor but I would be interested if anyone out there has had these problems also and have gont to Mayo Clinic.

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Hi @marydwyer51! Welcome to Mayo Clinic Connect! I’m glad you found the community and were able to offer support to past and future readers. It’s really what the community is about…..so welcome! 🙂

I’m sorry to hear about your struggle with vocal cord paralysis but happy you have found some people here that you can connect with. I would like to introduce you to members @dand,@jimjudym4,@jennybell, @ksparekh, @romorrill and @seaside162– All people here discussing the same topic

@marydwyer51, what questions do you have for the group regarding bilateral paralysis? If you feel comfortable answering, how long have you had it? What kind of treatment regimens have you been placed on? Has anyone had great benefit from therapy?

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@jimjudym4

I have vocal cord paralysis on both of my cords. I am now recovering from surgery #6. I do go to NY to a wonderful doctor but I would be interested if anyone out there has had these problems also and have gont to Mayo Clinic.

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I appreciate your joining our discussion, @marydwyer51, and welcome to Mayo Connect. I also have had surgery for a paralyzed vocal cord and I am grateful for the surgical treatment that I received. We look forward to hearing more about your journey,

Teresa

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@jimjudym4

I have vocal cord paralysis on both of my cords. I am now recovering from surgery #6. I do go to NY to a wonderful doctor but I would be interested if anyone out there has had these problems also and have gont to Mayo Clinic.

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I have left vocal cord paralysis. I have a vocal cord implant, and have had it filled once, and now they want to put in body fat and I am interested if anyone has had that and what they do and if there are any cons with this. Its wonderful to find this group, thank you!

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