Visual Snow: Anyone experience this?

Thank you so much for your post. It is comforting to hear that there may be hope for her. Ironically she was diagnosed with a bulging disk a couple of years ago after an MRI. Maybe they can try the same thing with her. Good luck with the Botox injections, please let me know if it helps you as well.

Hello @peterpan226 -- I ran across an interesting Mayo Clinic article on a new device to prevent migraine attacks.

Mayo Clinic Minute: New device can prevent migraine attacks
— https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-new-device-can-prevent-migraine-attacks/

John

With my vestibular migraines I periodically get a total white out of vision, I don't know if that is what you are talking about or not.

Good luck getting in to Mayo. Everyone I know with debilitating illnesses has been denied an appointment.

@eyeonvision @agraffia
Hello ...
I know that this post is from a while .. but I found It while I was searching a solution for my case..
I am suffering from snow vision since I was in the early 20s .. I can't remember when.. but when I was telling my doctors about what they say it is just " a floating objects in the eye fluid" ... I didn't believe in that ..
I am suffering too from myopia.. though I am 35 years now .. my eye vision became weaker and weaker .. I wear -10 lenses now..
this snow vision never disappear .. I see it in the morning .. in the night.. while sleeping.. it becomes clearer in dim light.
I feel the last 2 years that it became worse .. I was seeing fine granules .. now they are coarse which is annoying me .. and I have bad thoughts about my eye vision in the future..
I am a young mother and my kids need me with my full power.
I thank god that I put my hand by myself on the problem,, I hope I can find a cure for this situation and get well soon.

@manalabbass I have the floaters in my vision as well. Mine are sometimes like tin pieces of glass, sometimes red like blood, sometimes black like oil, sometimes rather long and stringy. In some of the material on various mutations of Amyloidosis, like mine, Gelsolin, many people mention it. Because the floaters move around sometimes, and seem to drift around when I shift my vision to a different direction, I think they are actual floaters in the optical fluid. I have had them for many years, maybe 65-70. At one time I thought they were nerve issues because no ophthalmologist ever claimed to see them, but I doubt that now. The Amyloid fibrils can invade nerves and make that happen. The floaters are very small individually, but when 50-60 of them crowd together, they fog the vision pretty much. In my youth they came heavier after a concussion. Then they would be there for a few weeks, then suddenly gone. https://bit.Ly/1w7j4j8

Hello @manalabbass -- Welcome to Connect. I sometimes have floaters but have not experienced the visual snow syndrome. I'm sure it's not easy to get any relief, especially when you are a young mother. I'm not sure if this is helpful but I did see an article that may provide some new information.

National Institutes of Health - Visual Snow: a Potential Cortical Hyperexcitability Syndrome.
-- https://www.ncbi.nlm.nih.gov/pubmed/28349350

Thanks oldkar for sharing your experience .. I have those floaters too beside the snow vision .. they are annoying me too .. I have I can find a cure for this too

Thanks John for your help .. I will read the article hoping to learn more about this syndrome.

Hello. I was recently diagnosed with visual snow after several weeks of symptoms and doctors appointments to find the answer of what was going on. My symptoms were: visual snow (like tiny pixels), visual vertigo and nausea from that, flashes of light when I blink (like a camera flash), a glare on objects, light sensitivity, a feeling of being “inside my head” but not 100% present (like walking around in a shell of my body), pixels/movement/light when my eyes are closed, a jittery feeling at bedtime and hard to relax to fall asleep, etc. My eye exams were normal. I saw my primary care doctor, ENT, opthomologist, and I finally got my diagnosis with a neuro-opthomologist. I was so thankful for that. Although there is no timeline of when/if it will go away, I am more relaxed now to know what I am dealing with (since stress can make it worse). I have found I need to avoid caffeine and chocolate, as those things make it worse. I am meeting with a neurology chiropractor, having acupuncture and doing visual exercises, as well as using the “Headspace” App to learn to meditate. I am hopeful my symptoms go away, but in the meantime, I am learning to cope and most days are better. I appreciate the information found on this chat!

Hi @tnmom75, welcome to Mayo Clinic Connect. Thank you for sharing what helps you cope with the visual snow. Do you have any questions you are trying to get answered? There are a lot of members here with experience and this is a great place to ask questions to find out what helps other members.