Virtual support for Breast Cancer: Starting radiation soon

Posted by michelles74 @michelles74, Apr 24 3:19pm

I am a breast cancer patient looking for a virtual group. I was diagnosed on 7/14/20 with Triple Negative Breast Cancer. I’ve finished 6 months of chemo. Had my DMX on Feb 15. Had to have emergency surgery to remove right expander due to infection. Will be starting radiation in a week. With COVID-19 it’s hard to find groups that do virtual visits.

Hi Michelle,
You've come to the right place! I can suggest several virtual support options to connect you with other women who have breast cancer.

1. Right here! The Breast Cancer group on Mayo Clinic is a welcoming and supportive forum, where you can ask anything any time and get a response. We're here 24/7. Allow me to link you to a few discussion specifically dedicated to triple negative breast cancer:
– Newbie https://connect.mayoclinic.org/discussion/newbie-1
– Triple negative breast cancer and immunotherapy https://connect.mayoclinic.org/discussion/breast-cancer-2
– Triple Negative Breast Cancer https://connect.mayoclinic.org/discussion/triple-negative-breast-cancer-1/

2. Monthly facilitated virtual support groups from Mayo Clinic.
Breast Cancer Support Group https://connect.mayoclinic.org/event/breast-cancer-support-group-rochester-mn-100/
The breast cancer support group meets the first Wednesday every month on Zoom. Meet people with breast cancer and share experiences and emotions. And you'll meet some of the women who also post here in the Breast Cancer group. All welcome.

3. Webinar: Revitalize Your Wellbeing: Breast Cancer Survivorship Care Planning https://connect.mayoclinic.org/event/revitalize-your-wellbeing-breast-cancer-survivorship-care-planning-wellness-webinar-1/
This is a two-hour free webinar happening next week on April 28. Again – all welcome.

I love your pictures. Will you upload one of them to be your profile picture? Any questions about starting radiation?

REPLY
@colleenyoung

Hi Michelle,
You've come to the right place! I can suggest several virtual support options to connect you with other women who have breast cancer.

1. Right here! The Breast Cancer group on Mayo Clinic is a welcoming and supportive forum, where you can ask anything any time and get a response. We're here 24/7. Allow me to link you to a few discussion specifically dedicated to triple negative breast cancer:
– Newbie https://connect.mayoclinic.org/discussion/newbie-1
– Triple negative breast cancer and immunotherapy https://connect.mayoclinic.org/discussion/breast-cancer-2
– Triple Negative Breast Cancer https://connect.mayoclinic.org/discussion/triple-negative-breast-cancer-1/

2. Monthly facilitated virtual support groups from Mayo Clinic.
Breast Cancer Support Group https://connect.mayoclinic.org/event/breast-cancer-support-group-rochester-mn-100/
The breast cancer support group meets the first Wednesday every month on Zoom. Meet people with breast cancer and share experiences and emotions. And you'll meet some of the women who also post here in the Breast Cancer group. All welcome.

3. Webinar: Revitalize Your Wellbeing: Breast Cancer Survivorship Care Planning https://connect.mayoclinic.org/event/revitalize-your-wellbeing-breast-cancer-survivorship-care-planning-wellness-webinar-1/
This is a two-hour free webinar happening next week on April 28. Again – all welcome.

I love your pictures. Will you upload one of them to be your profile picture? Any questions about starting radiation?

Jump to this post

Thank you so much

REPLY
@colleenyoung

Hi Michelle,
You've come to the right place! I can suggest several virtual support options to connect you with other women who have breast cancer.

1. Right here! The Breast Cancer group on Mayo Clinic is a welcoming and supportive forum, where you can ask anything any time and get a response. We're here 24/7. Allow me to link you to a few discussion specifically dedicated to triple negative breast cancer:
– Newbie https://connect.mayoclinic.org/discussion/newbie-1
– Triple negative breast cancer and immunotherapy https://connect.mayoclinic.org/discussion/breast-cancer-2
– Triple Negative Breast Cancer https://connect.mayoclinic.org/discussion/triple-negative-breast-cancer-1/

2. Monthly facilitated virtual support groups from Mayo Clinic.
Breast Cancer Support Group https://connect.mayoclinic.org/event/breast-cancer-support-group-rochester-mn-100/
The breast cancer support group meets the first Wednesday every month on Zoom. Meet people with breast cancer and share experiences and emotions. And you'll meet some of the women who also post here in the Breast Cancer group. All welcome.

3. Webinar: Revitalize Your Wellbeing: Breast Cancer Survivorship Care Planning https://connect.mayoclinic.org/event/revitalize-your-wellbeing-breast-cancer-survivorship-care-planning-wellness-webinar-1/
This is a two-hour free webinar happening next week on April 28. Again – all welcome.

I love your pictures. Will you upload one of them to be your profile picture? Any questions about starting radiation?

Jump to this post

I’m just worried about the side effects specifically the exhaustion cause I’m still trying to recover from chemo. also afraid of skin burning

REPLY
In reply to @michelles74 "Thank you so much" + (show)
@michelles74

Thank you so much

Jump to this post

I’d take that information. Thank you

REPLY
@michelles74

I’m just worried about the side effects specifically the exhaustion cause I’m still trying to recover from chemo. also afraid of skin burning

Jump to this post

What type of radiation will you have? Let me know and I'll connect you with others who have had the same.

REPLY

The fatigue / exhaustion can be so frustrating part of cancer, along with other symptoms.

Mayo has site to help deal with symptoms, including fatigue.
https://cancersymptoms.mayoclinic.org/index.html
Good luck
Laurie

REPLY
@colleenyoung

What type of radiation will you have? Let me know and I'll connect you with others who have had the same.

Jump to this post

I don’t know what you mean? It’s for breast cancer

REPLY
@michelles74

I don’t know what you mean? It’s for breast cancer

Jump to this post

Michelle,
There are different kinds of radiation for breast cancer. Most common is external beam radiation, but sometimes people have internal radiation (also called brachytherapy) or proton beam radiation.

REPLY

I am having external radiation I believe

REPLY
@michelles74

I am having external radiation I believe

Jump to this post

Michelle, you might be interested in the VideoQ&A that was added to the website today.
– Breast cancer radiotherapy and treatment innovations https://connect.mayoclinic.org/blog/podcasts/newsfeed-post/draft/

Do you start radiation on Monday?

REPLY

Hi Michelle, I am 2 yrs finished with chemo and radiation, I can give you a couple things that happened to me. Stage 3 w nodes removed…
First, You look terrific with no hair – much more confident than I was. I wore a cap all the time – my head got cold at night too. I finally understood that Night before Christmas….and I in my cap… story.

My radiation nurse gave me some terrific cream. It's called Udderly Smooth. It's water based not petroleum based and is very light-slippery and goes on easily without being heavy or cakey. This felt terrific afterwards and for any skin that tries to get red or itchy. I still use it. That helped me a lot.

As for being tired. I expected to be flattened in bed. But it wasn't like that. It just comes on gradually. And look, Michelle, there's nothing wrong with rest. If ever in your life – now is the time to take it and not feel guilty! In fact, God knows what's what – he decided it's your time to take some long needed rest, so do it! Let yourself be pampered in any way. If friends or relatives want to help cook, clean or run you to the doctor, let them. I ate some great food – lots of hummus wraps with lettuce veggies. Great soups. Keep your energy up by eating, but don't think you need to do anything. You have ONE MISSION NOW – get through radiation.
I did six or eight weeks everyday except Sunday – I think? And it's only a minute-you are in and out of there. Mine had music, I could choose which kind. But the darn machine was a bit loud too.

My prayers are with you. Please post updates here and accept all our online love.

REPLY
Please sign in or register to post a reply.
  Request Appointment