1. < Post-COVID Recovery & COVID-19

Virtual or other Long COVID support group meetings

Posted by diverdown1 @diverdown1, Mar 13 8:10am

I have been on this page for awhile now. Does anyone know of any virtual Long COVID support meetings? I found one through HeyPeers, but it only meets once a month. Hang in there everyone!

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

diverdown1 | @diverdown1 | Mar 16 8:14am
In reply to @ericy210 "I have observed groups are listed under “support” https://www.longcovidawareness.life/ but haven’t explored any of them Disclaimer-..." + (show)
@ericy210

I have observed groups are listed under “support”
https://www.longcovidawareness.life/
but haven’t explored any of them

Disclaimer- Whenever I see anything in any group or message or article, I follow up with my primary care physician because I have zero medical training or authority to make sense of it. I don’t recommend nor suggest anyone recommends anything. I’m just observing. See your doctor.

Jump to this post

I looked at the support groups link. There are groups and they seem to be on social media, like Facebook. I am not on Facebook anymore as it is too depressing and chaotic. I am looking for a group on a platform like Zoom. Although some of you may be on Facebook and that would be a place where I think there would be more support. I will keep looking. Thank you for the link as they do have some resources.

REPLY
1 reply
bigj | @bigj | Mar 16 12:46pm

Hi looking for support groups in the San Francisco for LC

REPLY
bigj | @bigj | Mar 16 1:01pm

Hi during long covid I have lost my memory for the past 8-10 years my wife lets me know what we did an it feels like I never did it but It is getting better some what but VERY slowly.
Example what I did 1 month ago feels live a year ago anybody having this symptoms ?

REPLY
bigj | @bigj | Mar 16 1:05pm
In reply to @diverdown1 "I looked at the support groups link. There are groups and they seem to be on..." + (show)
@diverdown1

I looked at the support groups link. There are groups and they seem to be on social media, like Facebook. I am not on Facebook anymore as it is too depressing and chaotic. I am looking for a group on a platform like Zoom. Although some of you may be on Facebook and that would be a place where I think there would be more support. I will keep looking. Thank you for the link as they do have some resources.

Jump to this post

YES Zoom would better I don't go on facebook
I agree it is too depressing and chaotic

REPLY
janeaddams | @janeaddams | Mar 16 2:04pm

I’ve found online long Covid support and info at the Mayo Clinic Connect site, They host a variety of groups for many conditions, all under the watchful eye of coordinators. There are now over 7000 longhaulers checking in. Go to connect.mayoclinic.org and scroll down to post Covid…I’ve been connected since 2023, shortly before I got the diagnosis, and knew far more than my doctor within a few weeks. Information and understanding, along with some useful life hacks, have been a lifeline for me🙏

REPLY
janeaddams | @janeaddams | Mar 16 3:37pm

Whoops… this was intended for another site… those of us on connect already know about this resource😉

REPLY
dtj217 | @dtj217 | Mar 18 11:03am

I found the Bateman Horne Center has support groups for Long Covid that meet twice a month on Zoom. I just signed up so I don’t have any experience with them yet. Here is the link to their calendar and registration: https://batemanhornecenter.org/events/
There’s a lot of resources on their website for ME/CFS and Long Covid

REPLY
1 reply
diverdown1 | @diverdown1 | Mar 18 11:58am
In reply to @dtj217 "I found the Bateman Horne Center has support groups for Long Covid that meet twice a..." + (show)
@dtj217

I found the Bateman Horne Center has support groups for Long Covid that meet twice a month on Zoom. I just signed up so I don’t have any experience with them yet. Here is the link to their calendar and registration: https://batemanhornecenter.org/events/
There’s a lot of resources on their website for ME/CFS and Long Covid

Jump to this post

Thank you. I will check it out!

REPLY
1 reply
diverdown1 | @diverdown1 | Mar 18 1:21pm

I found this a couple of weeks ago. I have not read too many of the op eds, but some of you may find it helpful.
https://thesicktimes.org/

REPLY
dtj217 | @dtj217 | Mar 18 3:40pm
In reply to @diverdown1 "Thank you. I will check it out!" + (show)
@diverdown1

Thank you. I will check it out!

Jump to this post

I just was on my first support group with Bateman Horne Center. There were around 190 on Zoom. It was led by a professional. The focus of today’s discussion was about dealing with depression. There were 4 questions posed to the group that they could use as a guide if they wanted to participate, but it was not required that they only discuss those questions. I found it to be very helpful and will definitely join again! It lasted one hour. I appreciated that they allowed that many to join, where HeyPeers limits the number that can join to a small group. Hope you can join next month - they meet on the 2nd and 3rd Tuesdays.

REPLY
View MoreView Less
Please sign in or register to post a reply.