Vestibular Migraines: How was your treatment managed?

Yes. No treatments have been suggested by neuro or ENT. Mine last a day. Would be interested to hear what is suggested for you.

Hey There! I do not have vestibular migraines, but, I have had migraines since the 3rd grade. They went undiagnosed for years. Mama called them "sick headaches".

I just came out of a 4 day jag of migraines. The only thing that will break the cycle for me is a low dose prednisone taper. I get relief within an 1-2 hours and I Praise the Lord for that.

Our spring has been strange with the heaviest pollen and the weather is hot one day and cold the next. Allergies, sinus pressure and barametric pressure definitely affects migraines for me.

I started taking B2 last year and it has helped me to have less migraines.

Praying for you for relief and I empathize. Migraines are awful.

I feel a slight heaviness on my head or a feeling of gravity pulling on my head and ears no pain I have estashian tube disorder it happens with barometric pressure need help ent or nuro can’t help

I have been extremely disappointed in the responses that I have received from the ENT "people." And these have been physicians who have trained at House Institute, Mayo and Harvard. and they had training in Nero-Otolaryngology! Scary! Simply a lack of interest, very poor bedside manners, cavalier and rude! Time to search out of town. in the meantime, I have daily Auras with and without Headaches, dizziness and ataxia. Treatment for my COPD has been a complete success but quality of life is marred by the migraines or whatever!

I have had the same experience with ENT's, neuros and neuro-otolaryngology- many of them Harvard trained.

I have about decided that the problem is 1. I'm on Medicare (but have a strong supplemental, plus I could pay for it mysel, 2. I have a terminal illness (COPD) 3. Carry a diagnosis of anxiety 4. I'm old! 75! And my pathology is not interesting enough to make it a challenge.

I have dealt with these for 5 years now. After trying various drug and injection treatments my neurologist suggested Botox . It is a year and half now and it has made a wonderful difference for me. It takes several courses to start working well. Speak with your neurologist 🙏♥️

Thank you! I have seen that as a treatment option in my research. After 7 months have an appt with a Neuro Dr., have been seeing a NP. Put myself on a treatment course based on the literature I read and started neutricuticals of Magnesium, CoQ10 & riboflavin. Also, in treatment algorithms recommends an SSRI/SNRI with the addition of a daily low dose of alprazolam. Since my appointments are 2-3 months apart decided since I have most of the medication available to me I would start taking them. Surprisingly, the appt with the NP this week she was not opposed but felt that Effexor was a better option than Sertraline. So of course, she is out of the office today, after a Memorial 3-day w/e? It no wonder its impossible to get prompt care....so now have to wait until Monday to initiated SSRI/SNRI treatment. YYou are more patient than me....I'm not willing to put up with almost daily events or up to 3-4 per week for resolution. Thank you for your input and hope you are doing well!

Hi, I was diagnosed with vestibular migraines and BPPV after seeing a neurotologist.
For me the vertigo, dizziness, nausea, and foggy head are more debilitating than the headache itself. Many times, I don't even get a headache.
It seems I have been having dizziness more frequently over the past year. I have done the epley maneuver for vertigo over the years and sometimes that helps.
I tried to take the recommended supplements (magnesium and riboflavin) but I'm having trouble finding a magnesium form that I can tolerate as I can't swallow very large pills and the powder tastes horrible. Plus I'm skeptical that they even help.
I tried Venlafaxine recently at the lowest dose and had such a terrible reaction to it I couldn't make myself keep taking it.
I am currently taking Escitalopram for anxiety and hoping it might help with prevention of VM.
I would love to hear some positive treatment outcomes from others experiencing VM and BPPV.

@jackieann59
Escitalopram side effects are dizzinesss and weakness.
For Magnesium take in the form of pills, break it into two pieces and then swallow one by one.
Yes it helps, keep taking it with faith, its just a suppliment.
90% of body diseases are the results of our lifestyle.
Sleep 8 hours, for better deep sleep, take lukewarm almond oil and put 2-3 drops in each nostrils right before you sleep with your nose pointing towards the roof and not your chest, sleep straight on your back, reduce screen time, don't watch tv or scroll the smart phone unnecessarily. The disease results in foggy head and the screen time adds further fogginess.
Eat more fibre like cucumber and leafy greens in salads and less refined floor food items like burger, breads, and pizzas. Always ensure the bowels are clear and empty on the due time.
Early morning go in an open area with oxygen and take deep breaths 4-8-10, inhale with a count of 4, hold to a count of 8, exhale to a count of 10. Always visualize yourself as a heathy individual right before you sleep, and express gratitude what good you have. God will help