I have a very high calcium score. What next?

Posted by dpframing @dpframing, Aug 24, 2018

Just joined the site and I'm looking to share with others who have had a high calcium score. I found out today that mine is 2996 and I am scared by this. I am 61 and I am totally asymptomatic. Now I feel like a walking time bomb. I am thinking of requesting an angiogram to see if there's any narrowing anywhere and if it can be corrected with a stent. After a second heart doctor told me that the plaque buildup might be uniform over the course of years with no big problem areas, I am encouraged. But the score still freaks me out, specifically my LAD at 1333. I don't smoke or drink but I have to lose 40 lbs.

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

Could some of the folks who posted on this thread provide updates on their condition - and, especially if anyone has new info re CAC?

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@drrawat

Hello

Yes sometimes diagnosis itself can be another disease! Calcium score would just mean be more watchful in your life style. It shouldn’t drive you with fear and hence over treatment.
I as a cardiologist was supposed to give a talk on calcium score to the drs of my city, when I casually checked mine : 746!
No symptoms no risk factors. Nuclear test was done and was fine. That was 4 years ago. Now I am 57.
I take rosuvastatin 20 a day and I jog about 60 miles a month. ( one half marathon every month, in around 2 hrs 15 min)

I did have butterflies for few months and slowly I have reduced thinking about it.

Best wishes to all🌱🌱👍

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What was the nuclear test and what is a 'fine' rating? I'm at 700 CAC at 64. I gained about 30 pounds during covid and hurt my knee running. Been slowly jog/walking to get back into shape but worried if I would have an event. Sounds like I can push myself. Highest beats/minutes on my apple watch was 177. Any concern about pushing that higher? I only breath harder but not dizzy.
Plan to lose 20 more pounds after dropping 30. Otherwise good health. Lipitor increased to 40mg from 20. My goal was to go to 10mg and doctor agreed but said get a CAC. I was casual too thinking I would ace it.
Good to hear these stories..thanks. On 10/23 is my first cardiologist appt (long wait). I hope to get in better shape by then so if I do a stress test they don't rush me to ER.

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@questionofbalance

Are you exercising now and how much and how strenuous? Are you on statins?

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Thank you for asking. I will post full details of my lifelong cardio, yoga, & meditation routines in couple of weeks. Yes, I have done had cardio 3x / week for 50+ years. I was just put on 5 mg / day Crestor by my primary care doc. I'm scheduled for this noninvasive CT Angio Hrt W/Cont W/3D W/FFRCT. Fractional Flow Rate CT measures flow rates of arteries with a 3D simulation. What I was told is that FFR will be done if they see a partial blockage to measure flow rate on both sides of that area Only two hospitals in Phoenix, AZ does this test.

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@cianci

Interesting. Have you asked your cardiologist about Dr Lown?
Wonder what Mayo Clinic would say

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I thank you for pointing us to Dr Lown's musings # 28 & 31. Yes I did read them. It gave me so much hope and comfort because of his qualifications. I would recommend these writings to anyone dealing with Cardio issues.

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@pumaguy79

Everyone with interest or concern about high calcium scores should read the blogs of noted Harvard Cardiologist, Doctor Bernard Lown, founder of the Lown Institute ( deceased in his 90's in 2021) especially Essays #28 and #31.
Dr. Lown was considered a renegade who challenged the "industry" of over treating folks such as us who
are handed high calcium scores, are invited into heart cath labs, given grave prognoses, and ultimately( irresistibly) subjected to Coronary Artery Bypass Graft surgery(CABG).

He rails against the modern practice of some cardiologists to use fear tactics over logic sometimes out of conviction, but always with economic consequences for the patient and the doctor(s).

Please read Doctor Lown's own words.

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Interesting. Have you asked your cardiologist about Dr Lown?
Wonder what Mayo Clinic would say

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Are you exercising now and how much and how strenuous? Are you on statins?

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This is the first time I join a group like this. I'm a 75 YO male, otherwise in excellent health, except that I recently received a high Coronary Artery Calcium Score (CACS). (See below) I joined this group to post my complete story of the recent journey. I'm scheduled for this this CT Angio Hrt W/Cont W/3D W/FFRCT prn in couple of days. I'm very grateful to this group for giving me comfort in knowing that high CACS score is not the end of my life any day now as defined on the test results. I wanted to join now so that I would be able to post some links in couple of weeks.
My CACS Score on Aug-31-2023
Left Main Coronary = 0
Right Coronary = 301
Left Anterior Descending = 801
Left Circumflex = 114
Posterior Descending = 0

I had a CACS done in 2006 because my brother who is 2 years older than me had 4 way bypass.
My 2006 CACS Scores Defined on the Test Results as: Volume130 & AJ-r30 (in a two column table).
Left Main Artery (LMA) 0 0
Left Anterior Descending (LAD) 92 & 115
Left Circumflex (GCX) 0 0
Right Coronary Artery (GCA) 0 0
Posterior Descending Artery (PDA) 0 0
Total 92 & 115

I will post further details of my recent CACS score and what followed. I'm very grateful to this group. Thanks

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@dpframing

Exaclty what I had- check out my post today2 hours ago · Coronary artery Ectasia (CAE) in Heart & Blood Health

I got a 2996 score on the Agatston test. I got scared, and I successfully pleaded to my doctor to authorize an Angiogram.
Before the test, I met with the procedure doctor and he said possibly the majority of the calcium was in the walls of my arteries, and
not in the arteries themselves, which would cause a blockage or narrowing. That turned out to be the case, and he said a stent was not needed.
However, the angiogram did show a significant amount of ectasia in the top sections of the 4 main arteries. A serious and rare condition,
affecting 5% of heart patients,it's the enlargement of the arteries to at least 1.5 times their regular size which can create a slowdown of bloodflow, and most seriously, clots. It is best managed by diet, exercise and medication, especially aspirin and Plavix. I'm on BP meds and a statin too. And I have to lose 35 pounds.

I would be grateful to hear from others who have this condition, and how they are dealing with it.

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What exactly does an angiogram tell you? Is it the test where they stick those cords on your chest and read something that looks like the results of lie detector test?

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@drrawat

Obviously you are doing good. You are an inspiration.
Best wishes!

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Everyone with interest or concern about high calcium scores should read the blogs of noted Harvard Cardiologist, Doctor Bernard Lown, founder of the Lown Institute ( deceased in his 90's in 2021) especially Essays #28 and #31.
Dr. Lown was considered a renegade who challenged the "industry" of over treating folks such as us who
are handed high calcium scores, are invited into heart cath labs, given grave prognoses, and ultimately( irresistibly) subjected to Coronary Artery Bypass Graft surgery(CABG).

He rails against the modern practice of some cardiologists to use fear tactics over logic sometimes out of conviction, but always with economic consequences for the patient and the doctor(s).

Please read Doctor Lown's own words.

REPLY

Update on effects of taking Praluent/Repatha for a year.
When I came out with a calcium score of 642, I was worried but my cardiologist was not after giving me a nuclear stress test and echocardiogram. He did put me on a PKS9 inhibitor ....Praluent which became Repatha when my insurance company would no longer pay for Praluent. BTW, Repatha is very consumer friendly. I make a pretty decent salary in the three figures, have private health insurance and still qualified for the $5 co pay each month. I believe it will go on for a year, we'll see. But anyone interested should sign up at the Repatha website. When I told my GP this, he said: "Wow that was a $5,000 a month drug when it started." I've read A LOT about heart health my friends and learned that the best you can do is to take a statin combined with a PKS9 inhibitor like Repatha. Okay so after a year, my new blood test showed an overall cholesteral score of 77 and an LDL score of 5!!! i was pretty astonished by that. It was about 80 a year ago and the docs said they wanted to get it below that. Well, it's below that all right. Now my GP tells me it's too low and it should be about 25. My cardiologist says not really but he cut my statin in half from 10 mg to 5. I have another blood test coming up and I'll keep you posted. Wow!!

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