I have a very high calcium score. What next?

Posted by dpframing @dpframing, Aug 24, 2018

Just joined the site and I'm looking to share with others who have had a high calcium score. I found out today that mine is 2996 and I am scared by this. I am 61 and I am totally asymptomatic. Now I feel like a walking time bomb. I am thinking of requesting an angiogram to see if there's any narrowing anywhere and if it can be corrected with a stent. After a second heart doctor told me that the plaque buildup might be uniform over the course of years with no big problem areas, I am encouraged. But the score still freaks me out, specifically my LAD at 1333. I don't smoke or drink but I have to lose 40 lbs.

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Profile picture for writer418 @writer418

Okay so here's the book I read/listened to where the doctor insisted that what you eat has no relationship to the cholesterol your body produces. His name is Dr. Peter Attia: "Outlive, the science and art of longevity" He seems legit to me. Of course, he's selling stuff like his podcast, books etc. but he is a well-respected doctor with testimonials from well-known people. I have not vetted him like a seasoned journalist. See for yourself. He's all over the internet.

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My research, and what I follow, is that your environment is 75% of the risk, and genes the last 25% (I've seen numbers as high as 90/10, but I'll go with the most common numbers). Meaning, what you eat, how you exercise, sleep quality, etc., matters a great deal. And since I'm beating my family history with my lifestyle, I'm a believer.

That means near daily cardio exercise, a mostly plant based diet, no red meat, no tropical oil, no fried foods, etc. It's working for me (yes, also with drugs), so consider all the options and choose what works for you

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Profile picture for jasper1072 @jasper1072

Anyone take Niacin? I saw a recent publication that Niacin may actually be worse for CV disease.
"How excess niacin may promote cardiovascular disease"
https://www.nih.gov/news-events/nih-research-matters/how-excess-niacin-may-promote-cardiovascular-disease#:~:text=A%20metabolite%20of%20niacin%20(vitamin,effects%20of%20too%20much%20niacin.

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Thanks for sharing this. I did the initial patient study on Niacin where we got up to 3000 mg/day. It did lower LDL and raise HDL, and I was on this (at 2000) until a few years ago when word started getting out that the high Niacin intake had a negative effect. The world is still learning what works and what doesn't

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Got it, thanks.

Here's his Wiki - not sure it sounds favorable. Didn't complete residency? Not board certified? No fellowship training?
https://en.wikipedia.org/wiki/Peter_Attia

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Okay so here's the book I read/listened to where the doctor insisted that what you eat has no relationship to the cholesterol your body produces. His name is Dr. Peter Attia: "Outlive, the science and art of longevity" He seems legit to me. Of course, he's selling stuff like his podcast, books etc. but he is a well-respected doctor with testimonials from well-known people. I have not vetted him like a seasoned journalist. See for yourself. He's all over the internet.

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Profile picture for writer418 @writer418

I’ll look up the book where it comes from but it was written by a doc and he was absolute in his statement that what you eat has nothing to do with cholesterol. Sorry if I don’t have that at my breakfast table but I promise to send.

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I agree, my diet is pretty much pristine and I know my body produces the cholesterol. For me I have a high VLDL level and Lp(a). But my doc doesn't want me to eat eggs so I am more comfortable following her advice. I figure she knows more than I do about all of this.

Donna

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Anyone take Niacin? I saw a recent publication that Niacin may actually be worse for CV disease.
"How excess niacin may promote cardiovascular disease"
https://www.nih.gov/news-events/nih-research-matters/how-excess-niacin-may-promote-cardiovascular-disease#:~:text=A%20metabolite%20of%20niacin%20(vitamin,effects%20of%20too%20much%20niacin.

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Hi Missy,

My 2235 CAC was shortly after the stents were put in place so you are a long way from that level. I hope you are on a statin or similar cholesterol lowering drug. I couldn't tolerate statins and this was before the injectable non-statins were developed so my body was continuing to produce plaque and it was being deposited in my arteries.

It sounds like you have a good cardio. I have the nuclear stress test about once every three years. I have echocardiograms every 6 months which keeps an eye on things. For me, for a few months I experienced left arm pain while walking up hills. I thought it was because I was pinching something in my neck because of my posture. On the day that I went to the ER, I found the most minimal amount of effort was causing left arm pain that took a half hour to ease. For me, the left arm pain was not like a muscle ache -- it was totally different and I was quite aware it was cardio related. On that day I called my cardio and she sent me to the ER and the catheterization and stents were done the next day.

I wish you good health and a long life.

Donna

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Profile picture for degarden_girl @degarden_girl

I'm age 79. My calcium score was about 535 in 2007 and is 2235 now. I had two stents in 2022. Apparently there is a third area that may eventually need a stent. The rest of the plaque is spread through out my body. Having a stent before you have a near blockage is probably not something a cardio would encourage or do. Stents tend to accumulate plaque and I now take Plavix to discourage the blood from clotting around those stents. From what I understand, with medication and diet to control cholesterol, the stent will be good for hopefully, 10 years. If the stents get clogged, the next step would be bypass surgery which is very invasive.

I suggest you try to lose any excess weight. When I was first diagnosed with heart disease, I too had to lose 40 lbs. I lost the weight by a strict low cholesterol, low sugar diet. I wish you good health.

Donna

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Donna I am 54 CAC 900 asymptomatic . I had stress test with exco on treadmill. How often did you get checked for blockage and what tests . I heard nuclear stress is more accurate ? I know the cath is too invasive for an asymptomatic person . Also any words of wisdom because every time I feel a twinge I think now I am having a heart attack when before I knew I was fine . I am on several medications and good weight

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Profile picture for mayoconnectuser1 @mayoconnectuser1

degarden, what are your actual cholesterol numbers (lipids) - HDL, LDL, triglycerides? (sorry if I missed them). The increase you note from 2007 until now would be consider pretty normal - especially if you started taking statins.

writer418, if you note "credible source" it is usually reasonable for you to cite that source, or even provide a link. Your explanation appears to be rather rudimentary. It seems reasonable that there is a lot more behind the science of understanding cholesterols.

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I’ll look up the book where it comes from but it was written by a doc and he was absolute in his statement that what you eat has nothing to do with cholesterol. Sorry if I don’t have that at my breakfast table but I promise to send.

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Just a word on cholesterol. I was tested for and found to have lipoprotein a , which apparently only 15 to 20% of the population possess. This is almost like a super cholesterol which attaches itself to your arteries and cannot be treated with statins. It is not tested for as standard because there is nothing specific to be done to treat it. However, my preventative cardiologist believes, and I agree, that this information allows you to make better informed decisions about my own health care. I only attended him because there was a family history of early cardiac issues. So he found that I had a higher than expected calcium score for my age of 66.....he doubled my statin meds from 10 to 20 and I have improved my diet, ensured better sleep and take more exercise. My HDL cholesterol has dropped to 1.3 and that will hopefully help to counter the sinister effects of the lipoprotein a. Lipoprotein a runs in families and is characterised by early cardiac events. I was advised to inform my children and siblings so they can also get tested. So this might be a test worth getting for someone who has concerns about cardiac health. I live in Ireland and had to go to a specialist clinic to get the test done.

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