I have a very high calcium score. What next?

Posted by dpframing @dpframing, Aug 24, 2018

Just joined the site and I'm looking to share with others who have had a high calcium score. I found out today that mine is 2996 and I am scared by this. I am 61 and I am totally asymptomatic. Now I feel like a walking time bomb. I am thinking of requesting an angiogram to see if there's any narrowing anywhere and if it can be corrected with a stent. After a second heart doctor told me that the plaque buildup might be uniform over the course of years with no big problem areas, I am encouraged. But the score still freaks me out, specifically my LAD at 1333. I don't smoke or drink but I have to lose 40 lbs.

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Dear drrawat,

In America we are often over tested , over diagnosed and over treated IMHO.

When it comes to vascular disease, the angiogram can definitely lead down a slippery slope. Do you agree that angiogenesis often keeps individuals with narrowed, and even blocked, arteries strong and active ?

We almost hear nothing about the body's ability to compensate through redundancy( eg the Circle of Willis feeding the brain through "work around"
circuits.)

Please tell us more about your experience and views.

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@pumaguy79

Hello hikerguy62...I wish someone would study my case. I feel great(for an almost 79 year old male). I walk 7 days a week sometimes twice per day. My apartment is second floor with 14 steps which I traverse 10-12 times per day. I do have plaque presumably throughout my system but it has been there long enough to be dispersed and hard. Also time has allowed for "angiogenesis" of my heart. Look it up . It's a very well known phenomenon where the body develops alternate circulation. Sometimes good, sometimes troublesome.
I will save stents and other procedures for the day(s) when angina interferes with my life or when fatigue sets in.
That's my story and I'm sticking' with it.

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Obviously you are doing good. You are an inspiration.
Best wishes!

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@pumaguy79

Hello hikerguy62...I wish someone would study my case. I feel great(for an almost 79 year old male). I walk 7 days a week sometimes twice per day. My apartment is second floor with 14 steps which I traverse 10-12 times per day. I do have plaque presumably throughout my system but it has been there long enough to be dispersed and hard. Also time has allowed for "angiogenesis" of my heart. Look it up . It's a very well known phenomenon where the body develops alternate circulation. Sometimes good, sometimes troublesome.
I will save stents and other procedures for the day(s) when angina interferes with my life or when fatigue sets in.
That's my story and I'm sticking' with it.

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Exercise stimulates angiogenesis while no exercise causes capillary regression. No one needs stents for a high CAC score unless there is significant blockage (I think over 70% or something) and symptoms including shortness of breath and chest pain with exertion.

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@hikerguy62

@pumaguy79 At a CAC score of 8000, did you ever need a stent? Have you ever felt any chest pain? That's quite a score! My score this past March was 2534 (at 61 years of age). Absolutely asymptomatic at this point. I consider myself pretty fit for my age. I walk about a mile 5-6x a week, exercise every other day (sandbag training), mostly vegetarian, no alcohol, no smoking. I was put on 20mg Crestor/Rosuvastatin shortly after receiving my score and started taking D3, K2 and CoQ10 shortly after receiving my score. I chose NOT to go on a baby aspirin though due to the risk of stroke, brain hemorrhage and stomach ulcers.

Just curious how you feel with a score that high.

Thanks,

Andy

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Hello hikerguy62...I wish someone would study my case. I feel great(for an almost 79 year old male). I walk 7 days a week sometimes twice per day. My apartment is second floor with 14 steps which I traverse 10-12 times per day. I do have plaque presumably throughout my system but it has been there long enough to be dispersed and hard. Also time has allowed for "angiogenesis" of my heart. Look it up . It's a very well known phenomenon where the body develops alternate circulation. Sometimes good, sometimes troublesome.
I will save stents and other procedures for the day(s) when angina interferes with my life or when fatigue sets in.
That's my story and I'm sticking' with it.

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@cianci

In some ways I too wish I had not gotten the test. No one can adequately explain what it means.
My cardiologist says my score didn't go to 3500 overnight, I figure I was over 400 (very high risk) for over 10 years. So I am overdue for a heart event. What a way to live.
My health has deteriorated since because I can't tolerate rosuvastatin, now down to 5mg but still have aches in the buttocks and legs.
On the other hand, I don't want to dismiss conventional medical thinking.

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Hello

Yes sometimes diagnosis itself can be another disease! Calcium score would just mean be more watchful in your life style. It shouldn’t drive you with fear and hence over treatment.
I as a cardiologist was supposed to give a talk on calcium score to the drs of my city, when I casually checked mine : 746!
No symptoms no risk factors. Nuclear test was done and was fine. That was 4 years ago. Now I am 57.
I take rosuvastatin 20 a day and I jog about 60 miles a month. ( one half marathon every month, in around 2 hrs 15 min)

I did have butterflies for few months and slowly I have reduced thinking about it.

Best wishes to all🌱🌱👍

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@pumaguy79 At a CAC score of 8000, did you ever need a stent? Have you ever felt any chest pain? That's quite a score! My score this past March was 2534 (at 61 years of age). Absolutely asymptomatic at this point. I consider myself pretty fit for my age. I walk about a mile 5-6x a week, exercise every other day (sandbag training), mostly vegetarian, no alcohol, no smoking. I was put on 20mg Crestor/Rosuvastatin shortly after receiving my score and started taking D3, K2 and CoQ10 shortly after receiving my score. I chose NOT to go on a baby aspirin though due to the risk of stroke, brain hemorrhage and stomach ulcers.

Just curious how you feel with a score that high.

Thanks,

Andy

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I have been setting calcium score records for decades now. 5400 when I was your age...8000 now at 78. The key is profusion or dispersion over many years and the hardness of the plaque. Don't fret about narrowing . Just listen to your own opinion of well-being. For people like us with a lot of calcium deposits, the calcium score is a big distraction and worrier. Too much data, not much information or guidance. I'm not saying we're not candidates for issues down the road, but that road can be pretty long and pretty enjoyable. Of course, consider your diet and exercise routines.
Finally, I've found intermittent fasting to be a miracle worker. Lost weight, no joint pain, etc. etc.
Again, be guided by how you feel.

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@writer418

I tried Prluent and my LDL plunged as did overall cholesterol numbers. of course then my insurance stopped paying so I’ve switched to Repatha which is I’m told similar. Whatever you do, I’ve listened and read a lot of info about this including this board which I too enjoy. From what I’ve discovered, the best treatment is a combo of statins and a PSK9 inhibitor like Praluent or Repatha and I believe Leqvio is in that category. I’m a journalist and am soon going to write an article about the stress caused by people having this test. I wish I had never taken it. It’s changed my outlook about my own health and I’m not really sure it means anything. Statins, which I’ve taken for years, are designed to calcify plaque so it’s not dangerous. So does the fact that my score is 642 (my wife’s is 0 and she has not taken statins) mean I’m somehow at risk? I’m not convinved.

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If/when you write your article could you please share link to it. The added daily stress form this test cannot be a good thing overall...and yet impossible to 'unknow' the results.
Thank you

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@debwellmadebeh

I am in the same boat, 60 yr. Old female, have always been healthy, CAC of 585, (472 in my LAD) of my total score, statins have not agreed with me at all, I am doing red yeast rice 600 mg/day, my chol. numbers have decreased in 6 weeks, cholesterol is 201 down from 238, LDL 126, down from 151, I walk 36 miles a week and quit smoking 8 weeks ago, and cut out diary. I wish I had never taken the test, I live in fear of a cardiac event daily (certainly no way to live). I asked my cardiologists if we should do a cath or stent, he said no, Cath’s are too dangerous and no symptoms to indicate needing a stent, sadly when you have symptoms it might be too late. There seems to be a big void in testing AFTER the calcium test to know if you are actually okay. They don’t want you to repeat the test, but they say the score can only get worse, it cannot decrease no matter what medications you take. The scary thing is that you can hopefully keep it from progressing but if you are already at a “high risk” level you just feel like a walking time bomb, there has to be a better way to test patients at high risk levels on a monthly basis so that we don’t live in fear. Does improving your numbers really help? I have seen where people have normal Chol. numbers but have high CAC scores, and no real explanation. Also, testing for hard plaque versus soft plaque would be helpful after you get a high CAC score. I really enjoy this forum as I find it very informative hearing from others that are enduring the same health issues. Has anyone had good results from the red yeast rice?

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Sorry you're living in daily fear. I cannot say I am but it seeps into my mind every few days. I'm a fatalist. I do all I can to help my heart....swim, take the right drugs, try to lose weight etc....and if it's not enough, well, then it's not enough. I try to put it out of my mind. But obviously I'm still here and find this forum helpful as well so it's not totally out of my mind 🙂

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@tylindy

Well put @christianzane! I'm still struggling to mentally get past the original diagnosis from June, but I've dropped from 250 to 228lbs, I jog/walk 2 miles a day, take a statin and aspirin (with some muscle spasms during long drives) and eating a med. based diet. I'm still needing guidance from a nutritionist as there are many perspectives on how we should be eating, but so far low carb and low fat is getting the weight off and I'm starting to come off blood pressure meds too. I think it isn't stated enough that your risk is greatly reduced if you follow the 7 things you state in your post. Really, your risk is very close to that of the general population if not better because you will be in such great physical shape and other causes of disease and death will also be greatly reduced.

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Thank you and don't stress, in people aged 30–70 years old, 25% have vascular calcification.

In people aged over 70 years old, 90% of men and 67% of women have coronary artery calcification.

This is just like HPV. 90% of the population will get HPV. Get a test for it and panic? Of course not. CAC score is different obviously as HPV eventually resolves itself. But you can stabilize the existing plaque, greatly slow the progression of new plaque and go on with your life with dietary and lifestyle modifications.

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