Anyone got first vaccine shot while experiencing long COVID symptoms?

Posted by aae @aae, Mar 4, 2022

Has anyone received their first shot of vaccine post infection while experiencing Long Covid symptoms? Did it improve your symptoms? This subject is all over the news lately, but I am interested in learning about personal experiences of this.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Here's some information from Mayo Clinic about getting vaccinated after being infected with COVID
"Getting COVID-19 offers some natural protection or immunity from reinfection with the virus that causes COVID-19. It's estimated that getting COVID-19 and COVID-19 vaccination both result in a low risk of another infection with a similar variant for at least six months.

But because reinfection is possible and COVID-19 can cause severe medical complications, it's recommended that people who have already had COVID-19 get a COVID-19 vaccine. In addition, COVID-19 vaccination might offer better protection than getting sick with COVID-19. A recent study showed that unvaccinated people who already had COVID-19 are more than twice as likely as fully vaccinated people to be reinfected with COVID-19.

Recent research also suggests that people who got COVID-19 in 2020 and then received mRNA vaccines produce very high levels of antibodies that are likely effective against current and, possibly, future variants. Some scientists call this hybrid immunity. Further research is needed."
Read more https://www.mayoclinic.org/coronavirus-covid-19/vaccine-if-already-had-covid

An informal survey of 450 people by Survivor Corps, a patient advocacy group for people with long COVID, found that 171 people said their condition improved after vaccination. But additional research is needed to understand what’s really going on here. Read more here:
- Can a COVID-19 Vaccine Improve Symptoms for People with Long COVID? https://www.healthline.com/health-news/can-a-covid-19-vaccine-improve-symptoms-for-people-with-long-covid#Anecdotal-evidence-suggests-vaccine-relieves-long-COVID

Are you considering vaccination, @aae? Or have you already been vaccinated?

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@colleenyoung

Here's some information from Mayo Clinic about getting vaccinated after being infected with COVID
"Getting COVID-19 offers some natural protection or immunity from reinfection with the virus that causes COVID-19. It's estimated that getting COVID-19 and COVID-19 vaccination both result in a low risk of another infection with a similar variant for at least six months.

But because reinfection is possible and COVID-19 can cause severe medical complications, it's recommended that people who have already had COVID-19 get a COVID-19 vaccine. In addition, COVID-19 vaccination might offer better protection than getting sick with COVID-19. A recent study showed that unvaccinated people who already had COVID-19 are more than twice as likely as fully vaccinated people to be reinfected with COVID-19.

Recent research also suggests that people who got COVID-19 in 2020 and then received mRNA vaccines produce very high levels of antibodies that are likely effective against current and, possibly, future variants. Some scientists call this hybrid immunity. Further research is needed."
Read more https://www.mayoclinic.org/coronavirus-covid-19/vaccine-if-already-had-covid

An informal survey of 450 people by Survivor Corps, a patient advocacy group for people with long COVID, found that 171 people said their condition improved after vaccination. But additional research is needed to understand what’s really going on here. Read more here:
- Can a COVID-19 Vaccine Improve Symptoms for People with Long COVID? https://www.healthline.com/health-news/can-a-covid-19-vaccine-improve-symptoms-for-people-with-long-covid#Anecdotal-evidence-suggests-vaccine-relieves-long-COVID

Are you considering vaccination, @aae? Or have you already been vaccinated?

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Thank you for all of this relevant information!
I have a couple questions:
-So of the Survivor Corps survey, 171 people had their condition improve after vaccination, but what happened with the other 279 people?
-With the constant mutation of the virus, is the vaccine still effective against the S-type proteins?

I have been considering vaccination for 2 years now. There is just not enough cited and peer reviewed medical evidence to convince me on it just yet. Like my grandma said - If it is not a heck yes, then it is a heck no.

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@aae

Thank you for all of this relevant information!
I have a couple questions:
-So of the Survivor Corps survey, 171 people had their condition improve after vaccination, but what happened with the other 279 people?
-With the constant mutation of the virus, is the vaccine still effective against the S-type proteins?

I have been considering vaccination for 2 years now. There is just not enough cited and peer reviewed medical evidence to convince me on it just yet. Like my grandma said - If it is not a heck yes, then it is a heck no.

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Hi Colleen
I contracted Covid at the beginning of the epidemic, late Feb 2020 and I still have some long covid symptoms. After both my 2nd Pfizer vaccine and the booster, some of my old covid symptoms came back with a vengeance. Headaches, burning tingling neurological problems, fatigue, weakness and body aches. They lasted for a few months. Some people may get better but not me and I feel gaslighted because of all the positive studies outcome. I’m not trying to scare you but it happened to me. A friend of mine who caught covid around the same time as me had zero problems so go figure. It’s got to be your immune systems reaction. I’ve gotten bad reactions to other vaccines so go figure

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@jazzygirl5

Hi Colleen
I contracted Covid at the beginning of the epidemic, late Feb 2020 and I still have some long covid symptoms. After both my 2nd Pfizer vaccine and the booster, some of my old covid symptoms came back with a vengeance. Headaches, burning tingling neurological problems, fatigue, weakness and body aches. They lasted for a few months. Some people may get better but not me and I feel gaslighted because of all the positive studies outcome. I’m not trying to scare you but it happened to me. A friend of mine who caught covid around the same time as me had zero problems so go figure. It’s got to be your immune systems reaction. I’ve gotten bad reactions to other vaccines so go figure

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@jazzygirl5, COVID is a wiley virus and researchers are still learning why it affects people so differently.
You mention that you have a history of immune responses and side effects with many vaccines. Do you have an autoimmune condition by any chance?

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@colleenyoung

@jazzygirl5, COVID is a wiley virus and researchers are still learning why it affects people so differently.
You mention that you have a history of immune responses and side effects with many vaccines. Do you have an autoimmune condition by any chance?

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Hi Colleen
I don’t as far as I know. I did have a pretty bad case of covid though and ended up with pneumonia 6 mo after I first was ill. My general lingering long covid symptoms are quite impacting so who knows. You’re so right, viruses are pretty strange and fascinating, don’t you wish you weren’t a freakin guinea pig?!

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@colleenyoung

Here's some information from Mayo Clinic about getting vaccinated after being infected with COVID
"Getting COVID-19 offers some natural protection or immunity from reinfection with the virus that causes COVID-19. It's estimated that getting COVID-19 and COVID-19 vaccination both result in a low risk of another infection with a similar variant for at least six months.

But because reinfection is possible and COVID-19 can cause severe medical complications, it's recommended that people who have already had COVID-19 get a COVID-19 vaccine. In addition, COVID-19 vaccination might offer better protection than getting sick with COVID-19. A recent study showed that unvaccinated people who already had COVID-19 are more than twice as likely as fully vaccinated people to be reinfected with COVID-19.

Recent research also suggests that people who got COVID-19 in 2020 and then received mRNA vaccines produce very high levels of antibodies that are likely effective against current and, possibly, future variants. Some scientists call this hybrid immunity. Further research is needed."
Read more https://www.mayoclinic.org/coronavirus-covid-19/vaccine-if-already-had-covid

An informal survey of 450 people by Survivor Corps, a patient advocacy group for people with long COVID, found that 171 people said their condition improved after vaccination. But additional research is needed to understand what’s really going on here. Read more here:
- Can a COVID-19 Vaccine Improve Symptoms for People with Long COVID? https://www.healthline.com/health-news/can-a-covid-19-vaccine-improve-symptoms-for-people-with-long-covid#Anecdotal-evidence-suggests-vaccine-relieves-long-COVID

Are you considering vaccination, @aae? Or have you already been vaccinated?

Jump to this post

About a week after my COVID booster I began symptoms that started with being extremely cold and shivering, only relieved by a hot bath. I felt full and couldn't eat because my stomach felt full. And I was winded and couldn't breathe just after walking across the room. These lasted in varying degrees for about 3 months, after many tests and scans, which were all normal. At 3 months all were gone! Although I had all shots and never tested positive to COVID the doctors believe I must have had a mild case while traveling and never knew.

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I've had no reoccurance of those symptoms but am losing hair now., and taking biotin daily. I'm a little worried I might have similar rx if I take a second booster, as I am 75 now. What do you think??

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@claudiajdavis

About a week after my COVID booster I began symptoms that started with being extremely cold and shivering, only relieved by a hot bath. I felt full and couldn't eat because my stomach felt full. And I was winded and couldn't breathe just after walking across the room. These lasted in varying degrees for about 3 months, after many tests and scans, which were all normal. At 3 months all were gone! Although I had all shots and never tested positive to COVID the doctors believe I must have had a mild case while traveling and never knew.

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It can happen, @claudiajdavis. I know I've said it before, but I think it bears repeating. This virus is cunning.

Claudia, have all symptoms now been resolved?

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Happily yes! I'd lost 20 lbs. but am enjoying food and activity again as normal!

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Do not get the shot if you have had a problem with long cov19. I have had severe complications after doing so. I have been in the long haul clinic. Your best bet is to ride it out unless otherwise instructed by a suitable covid clinical physician.
Best Regards

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