Uterine Papillary Serous Carcinoma: What treatments did you have?

Posted by goldengirl2 @goldengirl2, Oct 25, 2018

Is there anyone out there who has gone through the treatments for this? I have had surgery , and chemo taxes/carboplatin. Radiation is suggested but no one seems to have any data to refer to as we are such a small group I’m guessing. Very nervous moving forward as to what to do.

@embeth99

Hello Brave Lady Friends, Just seeing the Facebook messages of current posts reminded me that I hadn't let you know that I participated in the Nov. 3 Walk to End Women's Cancer in Washington, D.C. in honor of GoldenGirl and PolkaGal. The post-it in the center of the second photo shows your names. I'm celebrating NED since a 3/20/17 dx of stage 3a UPSC. My last CA-125 was 9 (after a high of 76). Sorry to interrupt your ongoing conversation but I wanted you to know that I was thinking of you.

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This made my day as well, made me cry & put a huge smile on my face at the same time!!! I am so honored, thank you so much embeth99, very thoughtful of you to remember us this way & to share this picture with us. Thank you for representing us & for making us proud 🙂 I think of you & goldengirl12 all the time & keep you both in my prayers, as well as our new friends here ❤️

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Lost a good friend today to Myelodysplastic syndrome. She and I both became ill at the same time, went through our journeys together, and leaned on each other through the highs and lows. Unfortunately, while I made it to the other side, she did not. She was such an inspiration!!! She fought so hard, had such a positive attitude, and never wavered in her faith even once, to the very end. Now I know survivors' guilt is a real thing, because it is weighing heavily on me at the moment. I share this here, because I know all of you will understand more than anyone else I know….Rest well my friend, you have earned it ❤️

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Polkagal, I am so very, very sorry for your loss. I think that it's a double loss when you lose a traveling companion on a healing journey because you are bonded in a special way. One thing I try to do when I lose someone I love is to take a personal characteristic of that person that I truly admire and make it a part of myself. It sounds like she had so many inspiring qualities. You are in my prayers especially for the grieving process that you have just entered as well as your own personal healing. "The heart hath its own memory, like the mind, And in it are enshrined the precious keepsakes." –Longfellow

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@polkagal

Lost a good friend today to Myelodysplastic syndrome. She and I both became ill at the same time, went through our journeys together, and leaned on each other through the highs and lows. Unfortunately, while I made it to the other side, she did not. She was such an inspiration!!! She fought so hard, had such a positive attitude, and never wavered in her faith even once, to the very end. Now I know survivors' guilt is a real thing, because it is weighing heavily on me at the moment. I share this here, because I know all of you will understand more than anyone else I know….Rest well my friend, you have earned it ❤️

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Polkagal my heart goes out to you. Cherish the journey she was on with you and smile when you say think of her.

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Just had a hysterectomy a week ago. Wating to see DR. For next treatment.

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@sofia74

Just had a hysterectomy a week ago. Wating to see DR. For next treatment.

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Hello @sofia74. Hoping your recovery is as quick and comfortable as possible! Sending prayers and hugs. Please keep us posted, you will find good, caring listeners here 🙂

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No treatments yet. To see oncologist the 13.

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@sofia74

No treatments yet. To see oncologist the 13.

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Hi @sofia74, just checking in. I hope your appointment with the oncologist went well. Did you get a treatment plan? What's next for you?

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@sofia74

No treatments yet. To see oncologist the 13.

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@sofia74 I have been thinking of you as well and hope you are ok!

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@polkagal

@sofia74 I have been thinking of you as well and hope you are ok!

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And polkagal Ive been thinking of you as its time for our next check ups coming up I believe. Mine is March 20.

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@sofia74

No treatments yet. To see oncologist the 13.

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It’s all a bit overwhelming but there is light at the end of it all! We are a great group on here to support you in any way we can.

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@sofia74

No treatments yet. To see oncologist the 13.

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Sofia74, I had 10 weeks of chemo with carboplatin taxol and then 3 weekly brachytherapy treatments. I hope you have a plan in the works with your oncologist. My oncologist was so great. She worked the treatments around my youngest daughter’s wedding, which I will always be grateful about. Everyone in this thread is in my prayers.

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@goldengirl2

And polkagal Ive been thinking of you as its time for our next check ups coming up I believe. Mine is March 20.

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@goldengirl2 you are so kind! 😊 Mine was mid-Feb & all is well! CA125 holding steady at 7 and everything else good. Feeling very blessed and grateful. Praying the same will be true for you on March 20, I will be thinking of you especially on that day. Sending hugs!

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@goldengirl Friend, thinking of you as I have another CT scan & 3-month check-up next week. I know we are on similar schedules, so praying for you and hoping you are well!

@embeth99 Thinking of you, too, Friend, and hoping all is well with you!

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@polkagal

@goldengirl Friend, thinking of you as I have another CT scan & 3-month check-up next week. I know we are on similar schedules, so praying for you and hoping you are well!

@embeth99 Thinking of you, too, Friend, and hoping all is well with you!

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Hello there ladies! you remembered, how kind. Mine is 2 weeks away and he’s only ever done blood work no CT scan since March 2019..hmm. No reason to believe all is not well so here’s to my almost last 3 month check up..After October I should be able to move to 6 month ones.. sending good vibes to you and nice to be roaming fee outside again :0

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