Uterine Papillary Serous Carcinoma: What treatments did you have?

Posted by goldengirl2 @goldengirl2, Oct 25, 2018

Is there anyone out there who has gone through the treatments for this? I have had surgery , and chemo taxes/carboplatin. Radiation is suggested but no one seems to have any data to refer to as we are such a small group I’m guessing. Very nervous moving forward as to what to do.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

I too was denied the sandwiched chemo - radiation - chemo cycle and in the end did 6 cycles of chemo. My chemo was 6 weeks after surgery. It was the lymph node involvement that worried them. No pelvic lymph nodes were positive just 2 paraortic nodes which they removed. I could have done radiation at the end but on further discussion oncologists said all it does is stop it form returning to the pelvic area not anywhere else and they didn’t think because of no positive action anywhere in my pelvic are that it would be helpful. Also once you have it there you can’t have it again so Ive kept. It for alter treatment which god willing Ill never need... We are all doing amazing well and the biggest struggle I find is. I’m constantly doing research to see whats out there and just arming myself to be my own advocate. Reading the posts here about drugs used is help. Each place has a different protocol it seems. I just wish they’d get together and compare what they are all finding!! Canada doesn't offer post surgery chemo drugs it seems. This forum certainly helps. Yes please check out the Grandondo. Vancouver to Whistler. Sept, 12

REPLY
@goldengirl2

I too was denied the sandwiched chemo - radiation - chemo cycle and in the end did 6 cycles of chemo. My chemo was 6 weeks after surgery. It was the lymph node involvement that worried them. No pelvic lymph nodes were positive just 2 paraortic nodes which they removed. I could have done radiation at the end but on further discussion oncologists said all it does is stop it form returning to the pelvic area not anywhere else and they didn’t think because of no positive action anywhere in my pelvic are that it would be helpful. Also once you have it there you can’t have it again so Ive kept. It for alter treatment which god willing Ill never need... We are all doing amazing well and the biggest struggle I find is. I’m constantly doing research to see whats out there and just arming myself to be my own advocate. Reading the posts here about drugs used is help. Each place has a different protocol it seems. I just wish they’d get together and compare what they are all finding!! Canada doesn't offer post surgery chemo drugs it seems. This forum certainly helps. Yes please check out the Grandondo. Vancouver to Whistler. Sept, 12

Jump to this post

My CA125 holds steady at 10. It was never higher than 18 ever though even before the surgery and chemo..

REPLY

Prayer, dear brave lady, and leaning on the Everlasting Arms. It had to be all His doing, Dear. My life is in His hands. Much love, Judy

REPLY
@miraclegirl

Prayer, dear brave lady, and leaning on the Everlasting Arms. It had to be all His doing, Dear. My life is in His hands. Much love, Judy

Jump to this post

Hello Brave Lady Friends, Just seeing the Facebook messages of current posts reminded me that I hadn't let you know that I participated in the Nov. 3 Walk to End Women's Cancer in Washington, D.C. in honor of GoldenGirl and PolkaGal. The post-it in the center of the second photo shows your names. I'm celebrating NED since a 3/20/17 dx of stage 3a UPSC. My last CA-125 was 9 (after a high of 76). Sorry to interrupt your ongoing conversation but I wanted you to know that I was thinking of you.

REPLY
@embeth99

Hello Brave Lady Friends, Just seeing the Facebook messages of current posts reminded me that I hadn't let you know that I participated in the Nov. 3 Walk to End Women's Cancer in Washington, D.C. in honor of GoldenGirl and PolkaGal. The post-it in the center of the second photo shows your names. I'm celebrating NED since a 3/20/17 dx of stage 3a UPSC. My last CA-125 was 9 (after a high of 76). Sorry to interrupt your ongoing conversation but I wanted you to know that I was thinking of you.

Jump to this post

Wow! that is just the best! Forever grateful and this made my day... i think of you too so yes all of you keep up the good wishes for each ither💕💕👍

REPLY
@embeth99

Hello Brave Lady Friends, Just seeing the Facebook messages of current posts reminded me that I hadn't let you know that I participated in the Nov. 3 Walk to End Women's Cancer in Washington, D.C. in honor of GoldenGirl and PolkaGal. The post-it in the center of the second photo shows your names. I'm celebrating NED since a 3/20/17 dx of stage 3a UPSC. My last CA-125 was 9 (after a high of 76). Sorry to interrupt your ongoing conversation but I wanted you to know that I was thinking of you.

Jump to this post

This made my day as well, made me cry & put a huge smile on my face at the same time!!! I am so honored, thank you so much embeth99, very thoughtful of you to remember us this way & to share this picture with us. Thank you for representing us & for making us proud 🙂 I think of you & goldengirl12 all the time & keep you both in my prayers, as well as our new friends here ❤️

REPLY

Lost a good friend today to Myelodysplastic syndrome. She and I both became ill at the same time, went through our journeys together, and leaned on each other through the highs and lows. Unfortunately, while I made it to the other side, she did not. She was such an inspiration!!! She fought so hard, had such a positive attitude, and never wavered in her faith even once, to the very end. Now I know survivors' guilt is a real thing, because it is weighing heavily on me at the moment. I share this here, because I know all of you will understand more than anyone else I know....Rest well my friend, you have earned it ❤️

REPLY

Polkagal, I am so very, very sorry for your loss. I think that it's a double loss when you lose a traveling companion on a healing journey because you are bonded in a special way. One thing I try to do when I lose someone I love is to take a personal characteristic of that person that I truly admire and make it a part of myself. It sounds like she had so many inspiring qualities. You are in my prayers especially for the grieving process that you have just entered as well as your own personal healing. "The heart hath its own memory, like the mind, And in it are enshrined the precious keepsakes." --Longfellow

REPLY
@polkagal

Lost a good friend today to Myelodysplastic syndrome. She and I both became ill at the same time, went through our journeys together, and leaned on each other through the highs and lows. Unfortunately, while I made it to the other side, she did not. She was such an inspiration!!! She fought so hard, had such a positive attitude, and never wavered in her faith even once, to the very end. Now I know survivors' guilt is a real thing, because it is weighing heavily on me at the moment. I share this here, because I know all of you will understand more than anyone else I know....Rest well my friend, you have earned it ❤️

Jump to this post

Polkagal my heart goes out to you. Cherish the journey she was on with you and smile when you say think of her.

REPLY

Just had a hysterectomy a week ago. Wating to see DR. For next treatment.

REPLY
Please sign in or register to post a reply.