I am a fifteen year old girl and I have been struggling with numerous chronic health issues for about 4 years now but everything has gotten even more severe in the past year. I have struggled with migraines, widespread chronic pain, chronic fatigue, over active bladder, suspected fibromyalgia, swollen lymph nodes, continuous throwing up, hair loss, Gilbert’s syndrome, elevated bilirubin causing jaundice, atypical seizures, stroke-like symptoms twice without the prescience of a known blood clot, easily bruising, vitamin D deficiency, depression, low focus levels, trouble swallowing, weak immune system, swelling, sun sensitivity, low blood pressure, high pulse, memory problems, and so much more. I have been in and out of the hospital and it has been difficult on me. Two particular cases hospitalized me for a long period of time. I began to seize, but I was conscious and it lasted for 45 minutes the first time before they injected muscle relaxers that stopped the seizure. After this happened I couldn’t talk or understand who people were or what was going on. I was really scared and I couldn’t walk. The pain was absolutely unbearable. I was on vacation when this happened the first time, but it happened a second time when I got home about a week later. No one could explain this, but they finally came up with an atypical migraine diagnosis due to my past with migraines. The doctors are still unsure of a diagnosis of that situation. I also had two occurrences when my under arms turned dark blue and it felt like a bruise. My rheumatologist, general practitioner, and neuroapthamalogist could not explain this either. We have done many different blood tests, MRIs, CT Scan, EKGs, EEGs, and so much more. I have had chest pains, acid reflux, and left side pain. None of which can be explained. I have been out of school for 8 weeks due to my health issues and can barely do anything without feeling very ill. If I’m around anyone who is sick I become sick. It is horrible and we have an appointment at Riley Children’s Hospital in Indianapolis for June 7 with a pediatric rheumatologist. I also have a positive ANA but no other signs of Lupus in my blood work. I have had troubles sleeeping and waking up multiple times in the middle of the night to use the restroom. I was just wondering if anybody has any insight as to what could be going on? Thank You!
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