Unknown Body Odor

Posted by Deprest @deprest, Jan 4, 2012

I need help! I’ve got a bad odor coming from my body, that I can’t smell. Yes it’s hard to explain. Doctors think I’m making it up. In public people avoid closeness, coughing, holding their noses, avoiding me at all cost. I’m a prisoner in my home. Don’t venture out unless low on food and pick times to do it. I’m constantly shamed.im healthy, clean. Homes clean, I can’t explain. Have spent last two yrs going to every type doctor to no avail. My family can’t smell it either. Has anyone heard of this?

I’m not a doctor, but a member of my family is diabetic and learned of it when he went to see his physician about an unknown body odor. The order turned out to be a condition known as “Diabetic Ketoacidosis”.

According to the Wikipedia page for Ketoacidosis:

“Ketoacidosis is a metabolic state associated with high concentrations of ketone bodies, formed by the breakdown of fatty acids and the deamination of amino acids. Ketoacidosis is a pathological metabolic state marked by extreme and uncontrolled ketosis. In ketoacidosis, the body fails to adequately regulate ketone production causing such a severe accumulation of keto acids that the pH of the blood is substantially decreased. In extreme cases ketoacidosis can be fatal.

Ketoacidosis can be smelled on a person’s breath. This is due to acetone, a direct byproduct of the spontaneous decomposition of acetoacetic acid. It is often described as smelling like fruit or nail polish remover. Ketosis may also smell, but the odor is usually more subtle due to lower concentrations of acetone.” [Wikipedia]

There is also a page on the U.S. National Library of Medicine’s website about Diabetic Ketoacidosis: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001363/.

The bottom line is that if I were you, I’d have some blood tests run to determine if I had diabetes, metabolic syndrome or insulin resistance. If none of the aforementioned conditions were present, I’d continue to investigate the cause of the odor until its source had been determined.

Liked by PeterE, PamEganNP

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Thanks PeterE, I’ll check this out, never heard of Ketoacidosis.

Liked by PeterE

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@deprest

Hey guys you sound like all the doctors I’ve seen. It is a real issue. It’s there, not making this up. If you’ve never heard of this don’t answer, I’m depressed as it is. Do you think I’d lose two yrs of my life for nothing?

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Greetings. This is my experience: when I was a girl growing up in Los Angeles I had a girlfriend who was 2 years younger. Let’s call her “Rose.” This was more than 40 years ago.

She was very petite and took baths on a regular basis as all the girls in our group did. We were all just normal kids back in the day when the streets of LA were still pretty safe. Rose was different. No matter how much she bathed she had a distinct and embarrassing body odor. It was very painful for her. I was the oldest and very protective of the younger girls eventhough I was only a few years older. I wanted to help her our entire childhood but I was but a child myself. Nobody knew what to do so she suffered great shame.

Years later her adolescent daughter experienced the same affliction. Again I was heartbroken but this time I was an adult determined to find answers and help so that history would not repeat itself.

LONG STORY SHORT: I asked everyone I knew if they knew what might help. Right under my nose at work was a friend with a Daughter who had once experienced the same heavy burden. This is what worked like magic for both my Friend’s Daughters and finally for my now adult childhood friend: This is possibly a GLAND problem involving 5 major Glands. 2 underarm, 2 in creases
of groin ( upper points of triangle) and 1 between breasts. Simply make a paste of baking soda and water. Apply a clunk of paste on all 5 gland point locations and wait 30 minutes before bathing. Do this for 30 days straight. Afterwards the problem should vanish. To maintain you need to repeat the process only once a month. My friend’s Son has same problem so it Must be heredity. The baking soda seems to draw something from these glands that are at the root of this problem. I am a sympathetic witness to how this simple solution can absolutely change lives in a big way. I HOPE AND PRAY IT WORKS FOR YOU. BEST WISHES!

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Dear Deprest,
I have the same horrendous condition you have. Others can smell or detect the sickening, foul smell but I cant! However, sometimes I get a wiff of how I smell and I can under why people are staying away or avoiding me. The condition you, I and other suffers have is called: TRIMETHYLAMINURIA, TMAU for short. Slang terms for this life altering condition are: Poop breath (Your body and breath smell like a bad case of poop and rotten onions). Fish odor syndrome (Your body smells like rotting fish), and other undesirable terms are attached to our condition….Deprest, I try to watch my diet and do the necessary things to keep myself healthy. Its not easy keeping a positive disposition with this embarrassing condition we have but there are things that can be done to minimize the odors coming fro
m our body.
BLACK TEA ALONE is well known and documented for destroying bad breath and body odors. BLACK TEA also kills foot ordor. There are many sites and forums dealing with our condition. Simply type in TMAU or TRIMETHYLAMINURIA and all kinds of info will come up. Dairy products are a no no, yet dont completely deprive myself of them. Beans, cabbage, colas, sugar, and just about everything we like will be off limits with this condition. However, BALANCE IS NEEDED.

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Hi Deprest this is Jackie again, I also agree with you about keeping yourself clean and fresh. Ive had this embarrassing condition all my life and just recently found out I have TMAU.You can take a “hundred” showers a day and be squeaky clean….and you will at times smell like high heaven. We are missing a vital component in our bodies. This component, which I forgot the name of is listed when you look up the site concerning TMAU. Anyway, this vital component is what stops the strong odors from coming thru our breath and skin or pores….Sometimes the odor can be so strong that others can smell you from across a room!….the typical hand over the nose, a glaring look, the backing away from you or cutting the conversation short as well as other dead giveaways let you know that people can smell you. Deprest what gives me peace and contentment with myself is a close relationship with God and a lot of prayer. I learned from an examination from the Bible that terrible chronic conditions like ours will a things of past one day soon……Isaiah 33:24…..that verse keeps me focused on the real important things in life. It gives me a hope for the future. Until then I keep myself busy with doing volunteer work that helps other deal with the “critical times” we are living in. Remember Deprest GOD promises to be there for those of us who are crushed at heart and bowed low because of this terrible condition call TRIMETHYLAMINURIA. Isaiah 41:10,13…

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@jjackson101952jjgmailcom

Hi Deprest this is Jackie again, I also agree with you about keeping yourself clean and fresh. Ive had this embarrassing condition all my life and just recently found out I have TMAU.You can take a “hundred” showers a day and be squeaky clean….and you will at times smell like high heaven. We are missing a vital component in our bodies. This component, which I forgot the name of is listed when you look up the site concerning TMAU. Anyway, this vital component is what stops the strong odors from coming thru our breath and skin or pores….Sometimes the odor can be so strong that others can smell you from across a room!….the typical hand over the nose, a glaring look, the backing away from you or cutting the conversation short as well as other dead giveaways let you know that people can smell you. Deprest what gives me peace and contentment with myself is a close relationship with God and a lot of prayer. I learned from an examination from the Bible that terrible chronic conditions like ours will a things of past one day soon……Isaiah 33:24…..that verse keeps me focused on the real important things in life. It gives me a hope for the future. Until then I keep myself busy with doing volunteer work that helps other deal with the “critical times” we are living in. Remember Deprest GOD promises to be there for those of us who are crushed at heart and bowed low because of this terrible condition call TRIMETHYLAMINURIA. Isaiah 41:10,13…

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Hi, Jjackson. I’ve been tested for TMAU, and it was negative. Still looking. Thanks.

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@jjackson101952jjgmailcom

Hi Deprest this is Jackie again, I also agree with you about keeping yourself clean and fresh. Ive had this embarrassing condition all my life and just recently found out I have TMAU.You can take a “hundred” showers a day and be squeaky clean….and you will at times smell like high heaven. We are missing a vital component in our bodies. This component, which I forgot the name of is listed when you look up the site concerning TMAU. Anyway, this vital component is what stops the strong odors from coming thru our breath and skin or pores….Sometimes the odor can be so strong that others can smell you from across a room!….the typical hand over the nose, a glaring look, the backing away from you or cutting the conversation short as well as other dead giveaways let you know that people can smell you. Deprest what gives me peace and contentment with myself is a close relationship with God and a lot of prayer. I learned from an examination from the Bible that terrible chronic conditions like ours will a things of past one day soon……Isaiah 33:24…..that verse keeps me focused on the real important things in life. It gives me a hope for the future. Until then I keep myself busy with doing volunteer work that helps other deal with the “critical times” we are living in. Remember Deprest GOD promises to be there for those of us who are crushed at heart and bowed low because of this terrible condition call TRIMETHYLAMINURIA. Isaiah 41:10,13…

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Good for you Deprest, im happy that you do not have TMAU. This thing is a terrible condition to have. Keep on looking and doing research on your situation to find out the problem, the answer is out there somewhere and someone has information and answers that will be able to help you. I hope and pray you have success. Also, thank you for answering my reply.

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Sorry to hear about your condition. I am so glad you are talking about this. I read somewhere that some foods we eat cause odors. Also heard that diabetes sometimes cause odors. Somebody I worked with had problems with sinus and tonsils and had bad breath as a result. This person was totally into hygiene but had horrible breath. It took a lot of doctor visits (dentists also) to find out what was going on. People need to be more compassionate and try to help people find a solution. Eventually and hopefully you will find a reason for this. Take care.

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same exact situation, tested for tmau, negative, been to countless doctors, nada…I am now looking into going to Mayo Clinic any suggestions on doctors??

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Thanks you lord. I’m not the only person. This is happening to. I really want to just die cause of it. But I have a little not that’s the only reason I’m still breathing.

Liked by Uggbug

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Has anyone figured out a cure for this?! Because I’m going through this as well and it just started happening out of no where a year ago. It is completely ruining my life.

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@deprest. Hi, hope you are doing well. Have you found out yet what is the root of the problem?

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You are absolutely not crazy I’m having the same kind of trouble very clean shower and bathe all the time our family notices there just to scared to tell us this is very depressing it’s no need to talk to people that don’t have the same problem because they just think your dirty and have not showered in a long time this problem has slowed my life down as well I’m in the process of finding my miracle doctor if I do I’ll let you no for the time being try chlorophyll for a lot of others it works!

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In reply to @anon89880224 "Have a bath" + (show)
@anon89880224

Have a bath

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Wow really have a bath is what you have to say why comment at all if you have no advice or anything nice to say you are truly a worthless devil walking on earth!!!

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@uggbug24

You are absolutely not crazy I’m having the same kind of trouble very clean shower and bathe all the time our family notices there just to scared to tell us this is very depressing it’s no need to talk to people that don’t have the same problem because they just think your dirty and have not showered in a long time this problem has slowed my life down as well I’m in the process of finding my miracle doctor if I do I’ll let you no for the time being try chlorophyll for a lot of others it works!

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Hi, Uggbug, I’m still dealing with this issue. Have read all the Post to date. Thank All Of You. There were days I prayed for death. I have a wonderful, supportive family. I’m still experimenting, if I find something, I’ll shout it out. LOUD!!!!

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