Unknown Body Odor

Posted by Deprest @deprest, Jan 4, 2012

I need help! I've got a bad odor coming from my body, that I can't smell. Yes it's hard to explain. Doctors think I'm making it up. In public people avoid closeness, coughing, holding their noses, avoiding me at all cost. I'm a prisoner in my home. Don't venture out unless low on food and pick times to do it. I'm constantly shamed.im healthy, clean. Homes clean, I can't explain. Have spent last two yrs going to every type doctor to no avail. My family can't smell it either. Has anyone heard of this?

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Profile picture for becomingopeless @becomingopeless

Thank you for all your posts. I thought I was the only one with this going on. Ive been in deep depression for the last 5 months because of the smell and the nastiest taste in my mouth 24/7. Im losing my mind and ready to quit. Ive been to several doctors and all my labs come back normal. Cat scan, normal now theyre doing endoscopy and colonoscopy. This has affected every aspect of my life and its just getting worse. I dont ever want to be around anybody. Im seeing people post they cant smell it themselves but I do and so can everyone else. Ive tried so many things as far as diet and somedays its not as bad as others but than it comes back out of nowhere. Im to the point if yhey cant find out what it is I dont want to live anymore. This is no way to live for anyone.

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Are you still having problems with the odor??? I have it too and sometimes o can get it under control

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Yes i have experienced the same thing we need to talk. I struggled with this condition most of my life! I've narrowed it down to dietary things and using aluminum free deodorant. But i cannot drink any caffeine or drink alcohol...if i do i will stink for 24 to 48 hours. And this is with showering...the bo will go past the soaps and deodorants!! It is a nightmare. Please let me know how you are doing.. My name is Sean

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Profile picture for rogerchoice @rogerchoice

Yes i have experienced the same thing we need to talk. I struggled with this condition most of my life! I've narrowed it down to dietary things and using aluminum free deodorant. But i cannot drink any caffeine or drink alcohol...if i do i will stink for 24 to 48 hours. And this is with showering...the bo will go past the soaps and deodorants!! It is a nightmare. Please let me know how you are doing.. My name is Sean

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Hello @rogerchoice, Welcome to Mayo Clinic Connect. Thank you for sharing what helps you!

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@deprest i have this too any updates?

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I don't know about unknown body odor but I learned of a deodorant my new husband uses. Tussy cream, original scent, the cream in a tub. Amazon. Smells like cloves. He said he never has break through odor during the day anymore. I avoided creams always because I thought they seemed gross. My friend told me that many years ago that Tussy was sold in high end dept stores. Surprised me. Takes very little and goes on dry. Buy the red tub version for the clove scent and dry application. Have never found in stores. I have had people tell me I smell good.

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Profile picture for Helena341 @helena341

It sounds like you focus on something you don't need to. If family and doctors don't notice, then you need to just get out there and live. So what if somebody avoids you, who cares?? More room for you to walk:) Your family and your doctors would tell you if you had a problem so go for it!!

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That’s because they lying to them because they not real enough to be honest unlike strangers they don’t care they gone let you know that’s why it’s causing so much confusion and doctors just don’t want go further in helping so they lie

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Profile picture for Jjackson101952.jj@gmail.com @jjackson101952jjgmailcom

Good for you Deprest, im happy that you do not have TMAU. This thing is a terrible condition to have. Keep on looking and doing research on your situation to find out the problem, the answer is out there somewhere and someone has information and answers that will be able to help you. I hope and pray you have success. Also, thank you for answering my reply.

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What doctor to see if I want to be tested for tmau

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Please try gluten free diet for at least 6 months. Gluten is a culprit which damages the intestine tissues and can result in many related symptoms. I have suffered with this for 8+ years i know how it feels (had been through severe depression), and now 100% odor free since 4 years after going gluten free. Came back to post on a forum so it helps everyone. Don't give up there is solution 🙂 I have read every forum tried all deodrant and medications, been to every doctor and have been falsely diagnosed with IBS, Hemorrhoids , done Colonscopy and tons of other blood test which were normal, celiac test also came out negative but i was gluten free for a year and did test to confirm if it was celiac.

Go gluten free and you will find cure, reduce stress if possible relocate to new place change your environment.

If you've got time read these books

Joseph Murphy - The Power of Your Subconscious Mind
Viktor E. Frankl on the Meaning of Life

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Profile picture for ghb3 @ghb3

Are you still having problems with the odor??? I have it too and sometimes o can get it under control

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go gluten free.

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Hello everyone!I really need help figuring out what’s going on with me. I have impeccable hygiene! But, I smell horrible at all times! Most common odor is of sweaty socks. What’s weird is that my feet don’t smell at all. I can smell the odor around my nose. The crease of my nose to be exact.The odor would get worse depending on my diet. But, it doesn’t matter what I eat, I smell. The odor is very strong. I don’t consume dairy because the odor would get worse, and I get a fecal/poop/sewage odor.I’m not sure if these odors are coming from my stomach. I had endoscopy done, perfect oral health, tonsils removed, tmau test was negative. I was positive for Sibo only. No matter what I do, I smell bad, musty. I take 2 showers a day, scrub, use antibacterial soaps etc, nothing helps.I know is coming from inside of me. I constantly smell like cheese. I don’t have any parasites, fungus or anything else that could be possibly be causing this. I can’t take the embarrassment anymore. People don’t understand that is a health condition, not that I’m a dirty person. My hormones are fine, within range. I have notice that close to my ovulation the odor would decrease somewhat, and very rarely I get one good day where people don’t complaint about the smell. I have narrow it down to be close to my ovulation day. I really don’t know what else to do. I have visited, endocrinologist, ENTs, Gastros, functional doctors, dentists, Obgyns.

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