undiagnosed low back / right Sacroilliac Pain

Posted by BethCIowa @bethciowa, Dec 6, 2011

Severe low back pain, last week I went to a Neurosurgeon, had an EMG, he said I do not have sciatoic. I’ve been in this battle off and on since 08. My bodied was jarred down onto a snowmobile seat really hard. Since then, I’ve had pain from standing, walking, and sitting. The last 2 months I have been in constant pain. I limp due to the right side of my low back pain. I’ve had spinal manipulations, epidural steroid injections, MRIs, low back xrays. I’ve been to 2 family drs, 2 pain specialist, an orthopedic surgeon and last week the neurosurgeon. I pointed to him the place in my back where the pain is the worst (when I touch it, it immediately makes me nauses) he said that is your SI joint your hip… going this afternoon for xrays… from what I’ve read, xrays don’t show SI joint issues… I’m struggling with keeping my chin up … pain seems to distort my thoughts… I’m just not myself because of it. I sence some think that I’m not being honest or something about this nightmare I’m living. I’m a Christian, I normally wouldn’t wish bad on others, why do I wish they could have this pain for a couple of months…

Interested in more discussions like this? Go to the Spine Health group.

I have been experimenting on pain relief from various conditions for last 8-9 years. I was told that I have severe osteoporosis about 8-9 years back. Today I have perfect bones. I am actively playing competitive level badminton for last 5 years now. I understand that your pain is the result of some accident. If a person is extremely dehydrated then drinking 6 to 8 glasses of water for 2 days after accident may help a lot. But if a person has been drinking 6 to 8 glasses of water or other liquids for last few months or years then the best thing to relieve pain would be to give up all liquids and water for 24 hours and rest in bed. After 24 hours one should get relief from pain. But since it is cronic case the pain will return as soon as u start water and other liquids intake.

So the best thing would be to give up water and liquids for 24 hours then resume 2 to 3 glasses of water intake (1 glass 1 hour before each meal) for next 3 days and then keep repeating this for next 2 to 3 months till one gets full relief.

Giving up water and liquids for longer durations at one go may cause organ failure. Do risk that even if u get complete relief in first 24 hours.

REPLY

SI joint issues can be seen on an x-ray most of the time, for example, my SI joints are calcifying, and that was found on an x-ray. So, I hope you received an answer from your Dr after you had the x-rays done.

The SI joints aren’t actually a “joints” like knees, they’re thick tendons that hold the sacral bone to the ilium (near the hip), I believe.

If you do have calcifying SI or inflamed SI (Sacroiliitis), it should show up on an x-ray. If not, a flouroscopy under x-ray could help you get a diagnosis, possibly?

You mentioned Sciatica, I think? These can sometimes be helped by nerve blocks. But, I understand that you received no relief from an injection for Sciatica, is that correct? If you didn’t get relief from the injection — sometimes it can take days to make it better — it sounds like the Dr may have given you an injection in the wrong location? The pain from Sciatica begins in the upper part of your gluteous maximus, and often the pain travels down the back of the leg. Is this what is happening to you?

Just to let you know my experience, I’ve been dealing with progressing spine & pain problems for over 15 years; my problems began when I was considered “too young for any kind of serious spine trouble.” Well, I finally learned at the age of 36 that my neck was severely damaged. It took me years to get anyone to listen to me. By the time I was seen for C-spine probs, I needed surgery, STAT.

In my case, things have spiraled downward since I had the Cervical Fusion + Diskectomy @ 4 levels. In the last 5 years, I’ve developed 15 bulging disks, 5 herniated (C-5 to L-5), and many, many other spine & pain issues (CRPS).

You’re not alone in your pain. No one will understand how you feel except for us in the same boat as you are, and many Drs are ready to write people off that are under 40. I can only function when I’m on a variety of pain meds, such as methadone, gabapentin, Celebrex, Tylenol, Flexeril, and l still want to die on certain days. Well, I wouldn’t be able to make food for my kids or do anything if it wasn’t for appropriate medication.

Sorry you’re not sleeping, I’ve been there, too. And like I said, you’re not alone. Please reply if you can, and let us know what was found on your x-ray.

REPLY
@beth777

SI joint issues can be seen on an x-ray most of the time, for example, my SI joints are calcifying, and that was found on an x-ray. So, I hope you received an answer from your Dr after you had the x-rays done.

The SI joints aren’t actually a “joints” like knees, they’re thick tendons that hold the sacral bone to the ilium (near the hip), I believe.

If you do have calcifying SI or inflamed SI (Sacroiliitis), it should show up on an x-ray. If not, a flouroscopy under x-ray could help you get a diagnosis, possibly?

You mentioned Sciatica, I think? These can sometimes be helped by nerve blocks. But, I understand that you received no relief from an injection for Sciatica, is that correct? If you didn’t get relief from the injection — sometimes it can take days to make it better — it sounds like the Dr may have given you an injection in the wrong location? The pain from Sciatica begins in the upper part of your gluteous maximus, and often the pain travels down the back of the leg. Is this what is happening to you?

Just to let you know my experience, I’ve been dealing with progressing spine & pain problems for over 15 years; my problems began when I was considered “too young for any kind of serious spine trouble.” Well, I finally learned at the age of 36 that my neck was severely damaged. It took me years to get anyone to listen to me. By the time I was seen for C-spine probs, I needed surgery, STAT.

In my case, things have spiraled downward since I had the Cervical Fusion + Diskectomy @ 4 levels. In the last 5 years, I’ve developed 15 bulging disks, 5 herniated (C-5 to L-5), and many, many other spine & pain issues (CRPS).

You’re not alone in your pain. No one will understand how you feel except for us in the same boat as you are, and many Drs are ready to write people off that are under 40. I can only function when I’m on a variety of pain meds, such as methadone, gabapentin, Celebrex, Tylenol, Flexeril, and l still want to die on certain days. Well, I wouldn’t be able to make food for my kids or do anything if it wasn’t for appropriate medication.

Sorry you’re not sleeping, I’ve been there, too. And like I said, you’re not alone. Please reply if you can, and let us know what was found on your x-ray.

Jump to this post

Thank you for your reply. I went to the University of Iowa, and seen an Orthopedic Surgeon. He reviewed my hip xrays , MRI of my Lumbar he then examined me. Moving my legs, checking my strength etc. He pushed on my right bursa, and it was very painful. I told him I can’t lay on my right side. Most of my pain is in my low back. He said, my hip has some degeneration and that is what is causing my low back pain. He gave me a not so pleasant injection of Lidocain and Steriods into my right bursa. He said if you get relief, then we know we are treating the right thing. I did get a little relief for a few hours. I start physical therapy tomorrow, he thought that would get me back to normal. I’m a bit sceptical as my most severe pain is from L3~L4 & L4~L5 one the very right side of my lumbar. The reason I thought it might be my SI joint, is because of the jarring my body took on the snowmobile. I don’t want pills, I want my life back!!

REPLY
@rajan

I have been experimenting on pain relief from various conditions for last 8-9 years. I was told that I have severe osteoporosis about 8-9 years back. Today I have perfect bones. I am actively playing competitive level badminton for last 5 years now. I understand that your pain is the result of some accident. If a person is extremely dehydrated then drinking 6 to 8 glasses of water for 2 days after accident may help a lot. But if a person has been drinking 6 to 8 glasses of water or other liquids for last few months or years then the best thing to relieve pain would be to give up all liquids and water for 24 hours and rest in bed. After 24 hours one should get relief from pain. But since it is cronic case the pain will return as soon as u start water and other liquids intake.

So the best thing would be to give up water and liquids for 24 hours then resume 2 to 3 glasses of water intake (1 glass 1 hour before each meal) for next 3 days and then keep repeating this for next 2 to 3 months till one gets full relief.

Giving up water and liquids for longer durations at one go may cause organ failure. Do risk that even if u get complete relief in first 24 hours.

Jump to this post

Thank you Rajan for your reply, I agree with hydrating. What are your thoughts on my right hip being the cause of low back pain?

REPLY
@beth777

SI joint issues can be seen on an x-ray most of the time, for example, my SI joints are calcifying, and that was found on an x-ray. So, I hope you received an answer from your Dr after you had the x-rays done.

The SI joints aren’t actually a “joints” like knees, they’re thick tendons that hold the sacral bone to the ilium (near the hip), I believe.

If you do have calcifying SI or inflamed SI (Sacroiliitis), it should show up on an x-ray. If not, a flouroscopy under x-ray could help you get a diagnosis, possibly?

You mentioned Sciatica, I think? These can sometimes be helped by nerve blocks. But, I understand that you received no relief from an injection for Sciatica, is that correct? If you didn’t get relief from the injection — sometimes it can take days to make it better — it sounds like the Dr may have given you an injection in the wrong location? The pain from Sciatica begins in the upper part of your gluteous maximus, and often the pain travels down the back of the leg. Is this what is happening to you?

Just to let you know my experience, I’ve been dealing with progressing spine & pain problems for over 15 years; my problems began when I was considered “too young for any kind of serious spine trouble.” Well, I finally learned at the age of 36 that my neck was severely damaged. It took me years to get anyone to listen to me. By the time I was seen for C-spine probs, I needed surgery, STAT.

In my case, things have spiraled downward since I had the Cervical Fusion + Diskectomy @ 4 levels. In the last 5 years, I’ve developed 15 bulging disks, 5 herniated (C-5 to L-5), and many, many other spine & pain issues (CRPS).

You’re not alone in your pain. No one will understand how you feel except for us in the same boat as you are, and many Drs are ready to write people off that are under 40. I can only function when I’m on a variety of pain meds, such as methadone, gabapentin, Celebrex, Tylenol, Flexeril, and l still want to die on certain days. Well, I wouldn’t be able to make food for my kids or do anything if it wasn’t for appropriate medication.

Sorry you’re not sleeping, I’ve been there, too. And like I said, you’re not alone. Please reply if you can, and let us know what was found on your x-ray.

Jump to this post

I have the same issue with my right hip, inflamed bursa, degeneration, can’t lie on my right side — I totally know what you’re talking about!

I would go ahead with the Physical Therapy, but make sure you tell the PT that you’re skeptical, and that you’re very concerned about your low back & S.I. Tell the physical therapist all your concerns, the more people who know what you’re going through, the more help you’ll get. Keep up with the PT as long as you can, even get a new Rx for PT if your low back is still bothering you.

Have you been prescribed a TENS unit? I use mine often, it’s great for distraction when I’m in a bad pain episode, and it’s also helpful when I feel an episode is about to begin.

REPLY

The body is such a complicated structure. I was in pain for 12 years. 12 years of hearing it was this or that trying every treatment you can think of. I too had sever low back pain. It throbed and raidiated down both legs. I couldn’t stand too long, sit too long, forget exercise…I went from a very active person to someone crippled with pain most of the time. I missed worked, missed out on family time etc. Nothing worked, until I visisted the Mayo Clinic. After many tests I was diagnosed with Chronic Myofacial Pain Syndrome and some aspects of Fibromyalgia. I’m on Cymbalta to help with the pain, Trazadone to help me sleep and to handle the occasional melt down I have to take an antianxiety med. Occasionally, the pain gets to so bad I have to go to the ER and get a muscle relaxer. So, low back pain can be caused by a whole host of things…never thought I would have gotten the diagnosis I did. Hope you get an answer soon.

REPLY
@beth777

SI joint issues can be seen on an x-ray most of the time, for example, my SI joints are calcifying, and that was found on an x-ray. So, I hope you received an answer from your Dr after you had the x-rays done.

The SI joints aren’t actually a “joints” like knees, they’re thick tendons that hold the sacral bone to the ilium (near the hip), I believe.

If you do have calcifying SI or inflamed SI (Sacroiliitis), it should show up on an x-ray. If not, a flouroscopy under x-ray could help you get a diagnosis, possibly?

You mentioned Sciatica, I think? These can sometimes be helped by nerve blocks. But, I understand that you received no relief from an injection for Sciatica, is that correct? If you didn’t get relief from the injection — sometimes it can take days to make it better — it sounds like the Dr may have given you an injection in the wrong location? The pain from Sciatica begins in the upper part of your gluteous maximus, and often the pain travels down the back of the leg. Is this what is happening to you?

Just to let you know my experience, I’ve been dealing with progressing spine & pain problems for over 15 years; my problems began when I was considered “too young for any kind of serious spine trouble.” Well, I finally learned at the age of 36 that my neck was severely damaged. It took me years to get anyone to listen to me. By the time I was seen for C-spine probs, I needed surgery, STAT.

In my case, things have spiraled downward since I had the Cervical Fusion + Diskectomy @ 4 levels. In the last 5 years, I’ve developed 15 bulging disks, 5 herniated (C-5 to L-5), and many, many other spine & pain issues (CRPS).

You’re not alone in your pain. No one will understand how you feel except for us in the same boat as you are, and many Drs are ready to write people off that are under 40. I can only function when I’m on a variety of pain meds, such as methadone, gabapentin, Celebrex, Tylenol, Flexeril, and l still want to die on certain days. Well, I wouldn’t be able to make food for my kids or do anything if it wasn’t for appropriate medication.

Sorry you’re not sleeping, I’ve been there, too. And like I said, you’re not alone. Please reply if you can, and let us know what was found on your x-ray.

Jump to this post

Beth, I have not been prescribed a tens unit, but they put one on my back at PT and it does help. I still can’t stand for very long, I’m hoping to try and go back to work in a few weeks. Thank you so much for your reply!

REPLY
@volgal95

The body is such a complicated structure. I was in pain for 12 years. 12 years of hearing it was this or that trying every treatment you can think of. I too had sever low back pain. It throbed and raidiated down both legs. I couldn’t stand too long, sit too long, forget exercise…I went from a very active person to someone crippled with pain most of the time. I missed worked, missed out on family time etc. Nothing worked, until I visisted the Mayo Clinic. After many tests I was diagnosed with Chronic Myofacial Pain Syndrome and some aspects of Fibromyalgia. I’m on Cymbalta to help with the pain, Trazadone to help me sleep and to handle the occasional melt down I have to take an antianxiety med. Occasionally, the pain gets to so bad I have to go to the ER and get a muscle relaxer. So, low back pain can be caused by a whole host of things…never thought I would have gotten the diagnosis I did. Hope you get an answer soon.

Jump to this post

Volgal, thank for for your reply, I too was a very active person. We have considered a trip to Mayo. Your situation sounds very much like mine!

REPLY

hopefully you can get better answers at Mayo. Chronic pain can take you down a lonely path. But… there is hope and others out here to heIp you along this path. I to have this terrible chronic pain and am hoping for relief soon. I also am a Christian and like you, don’t wish my pain on others, but at times I feel others might understand better if they had a day or two in our steps

REPLY

Hello. I understand all your pain. I am experiencing that too. I have pain in my foot after walking 15 minutes sitting in my buttocks and i feel my hips are popping out pain all over I have diagnosed with chronic pain . E.R. Diagnose me Anxiety, Depression, Chest pain, i cant breath sometimes i need oxygen, mine is more on the left side my thigh on the left hurt I had a test for EMG that test was torture but I made it I have pain every morning all over my body.headaches cold coughing bad I am fatigue all the time .i went to the best orthopedic specialist maybe there’s something broke in my back he did an x-ray on me .why I’m having this pain questions myself whats wrong with me? I do really need to find out right diagnose for me so i know i can best handle myself i have ups and downs setbacks,battling this illness crying sometimes, become numb , cold, i feel that nobody is listening, until i ask for many peoples help reading more info and books from the library this support groups is best for me knowledge is power for our medical problems because I do like to get 2nd opinion because I am in denial and I have trusts issues .My best orthopedic said there’s nothing He can do on my side. So I went to neurologist he diagnose me with athritis, fibromayalgia, radiculopathy and sleep issues, and others then my primary doctor diagnose me with radiculopathy,high blood pressure and fibromayalgia . I ask myself now what are you going to do ? Do I hold on or do i give up? I went to psychologist and went to talk therapist soon I’m going to a psychiatry for bulimic issues and now I’m scared for another MRI .I had it in 2010 not fun for me. I Keep telling my self on and on I have to be strong for my children have to loose weight it is a battle for me everyday I pray to god take care all of you I know there is hope out there we have to strive finding a way to get out to this chronic illness . Good afternoon . Have a great day .

REPLY
@ltmom

hopefully you can get better answers at Mayo. Chronic pain can take you down a lonely path. But… there is hope and others out here to heIp you along this path. I to have this terrible chronic pain and am hoping for relief soon. I also am a Christian and like you, don’t wish my pain on others, but at times I feel others might understand better if they had a day or two in our steps

Jump to this post

Thank you for your reply. I am doing better, not great. I’m going to aquatic therapy now, and did physical therapy for a month before the aquatic. I’m still on pain need need, a new one it helps but doesn’t make me sleepy. I’m back to work part time. My boss/job have been very good to me, for that I am grateful. Trying to lose weight, and remain posive, counting my blessings…

REPLY
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